For Charlie, PFO Research Foundation ROCKS, Bray does even more, so thank YOU as well....
Jaggirl & Charlie,
doing some digging on my own (how I found this website) I have a form of (at least) 1 type of Dysautonomia. After a surgery in '09, I began fainting and having symptoms which you two have described. My surgeon blew me off about the symptoms, saying it was from the pain meds (took 2 post-op) or too much 'bed rest' following, which didn't jive with me either, given I was up and about practically a few days post-op. Soon after, I had another faint, and an episode where I was sitting, got many of the symptoms I had prior to the prior faints. Bewildered, I went to my regular Dr. and GRATEFULLY he took me seriously, immediately took my B/P lying down, sitting up & standing. He referred me to have something called a Tilt Table Test afterwards, which is evaluated by a cardiologist. I was diagnosed shortly afterwards by an EP as having Neurocardiogenic Syncope, but I had many tests to rule out any underlying cause for it, that's when they found I had a PFO. Although I have had migraines since I was a young child, he decided no closure at this time. In June/July I had started developing SEVERE memory loss very suddenly, told my EP cardiologist about it, and was referred to a Neurologist. I was at low risk for a stroke, according to him so in NO way did I expect to find out that I had one after an MRI, after all, how do you have a stroke (not a TIA) and NOT know it?? Answer: "Silent Stroke", and yes I had some brain damage, thus my memory loss. Back to my EP cardiologist after, and PFO closure was now recommended. I had that in Sept. '09 with an Amplatzer device.
Bottom line as to why I am posting all of this is that here is because since then, some of the symptoms you two have mentioned have actually gotten progressively worse. Just from my own research as per my own health issues, PFO closure & forms of autonomic disorders are often (for lack of a better term) 'uncharted & misunderstood' by many, for now anyway even many medical professionals.
Lastly, if either of you want to contact me, feel free to, I hope that in some way, this somehow may have made some sense, due to my memory & cognitive issues or "brain fogs" due to stroke issues and/or autonomic disorders.