Hi Im a 54 year old female and about
3 months ago I suffered a cardiomyopathy event that they are certain was takotsubo even though I did not suffer the event from bad news etc; I was really shocked when they told me that was what I was experiencing I would have taken the news of heart attack (which they originally thought it was) better.
Since the event I have been on beta blockers and BP medication to help in repairing my damaged heart muscle.
Noone can tell me why it happened all I can think of was the fact that I had had time off work from an accident and had just returned to work and was feeling a little stressed by it but not overly stressed. I had worked the day before the event and remember feeling a vice like discomfort across my chest but somehow thought it was heartburn from a coffee I had had earlier. The "heartburn" remained all day and I remember feeling a bit dizzy and that my vision was blurry. This didnt go away and I went to bed feeling like that.
The next morning I woke up and the first thing I thought was that the pain I was feeling which was now high in the middle of my back was a pinched nerve and I complained about
it to my husband as I was making his breakfast. For once he took notice of what I was saying (highly unusual for him !
) and looking at me said out of the blue I think it might be your heart. I poo poo-ed him saying nah its not that but he persisted and before he left he said call me if it gets worse and Ill come home doesnt matter where I am Ill come home.
So he left and things got very bad from there I remember feeling completely out of it and freezing cold but clammy sweaty and sick I decided to go back to bed but then the flopping heart and a feeling that something was terribly wrong began and I rang my husband who was half an hour up the road to come home. He got home took one look at me and dialled emergency who told him to give me aspirin and that an ambulance was on the way. It took 20 minutes for the ambulance to get to me at that point I was frozen completely out of it I barely remember it they put me in the ambulance and had to stop on the way to stabilise me then it was sirens and a mad dash they clearly thought I was having a heart attack to hospital.
When I got there I was hooked up bloods were taken my troponin level was 300 and next thing I knew they were talking about
an angiogram and stenting my heart. I remember looking around my cubical for the person they were talking to I couldnt get it in my head they were talking about
me that it was happening to me. So I remember the angiogram and the fact that they were surprised at what they had found and I actually got to look at the screen and saw the distinctive pot shape. When I was back in recovery a group of medical people lead by the cardiologist came in to talk to me the others were medical students because its unusual they wanted them to see my case. The cardiologist told me what it was and that I would be staying in hospital because I had damaged my heart muscle and needed treatment for it. I was there for 2 days feed a lot of intravenous drugs and responded really well and was allowed home. In follow up they told me I had no evidence of CAD all my arteries were clear my cholesterol levels were good.
So I was sent home on Bisoprolol perindepril and aspirin I was told I needed full rest for 2 weeks with a gradual return to exercise over 4 weeks which I did expecting to get the all clear I was told that I needed a further 2 months on drugs and recovery time before returning to full work duties (I work in a fairly active role lots of walking). The drugs were awful even though I was on low dosage I have hypersensitivity to the drugs and have spent nearly everyday of recovery feeling appalling dizzy, sick, blurry vision, shortness of breath, anxiety, loss of concentration not to mention overwhelming grief, fear and sadness.
I have now returned to work I have sorted out the drugs so that the side effects are manageable I have begun counselling after a panic attack saw me back in emergency because my BP went through the roof. I have never had one before and I wasnt even feeling panicky at the time! but the drugs must be working because troponin was nearly zero so that was reassuring. I am hoping that in a months time Im going to get a clean bill of health that the shortness of breath and tiredness goes away oh and the weird red rash that has appeared on the tops of hands (have no idea what is causing that never had it before). They are hopeful it was a one off and certain it wont happen again and seem happy with my recovery thus far.
But there so many unanswered questions that I have asked but go unanswered like what caused it and why it happened? The other thing is I was told that going through menopause makes you vulnerable to stress and taking HRT can protect you from this vulnerability which really annoys me because of course as women we are not told this and in light of the fact that I have heart disease in my family if I was told about
the risk of menopause without HRT I probably would have taken HRT as I would perceive the risk of HD as higher than the risk of breast cancer from taking it. But cant change the might of been's and I must look forward to the future the fact that it may happen again it may not.
I must keep active eat healthily and actively find ways to manage stresses that Im not aware that Im experiencing Im not sure how long I will have to take the drugs my cardiologist says it might be 6 months it might be a year.....well that is my story I hope it helps someone even if only in the fact that someone else is experiencing the same thing as you. Thanks for reading
Post Edited (helenbeee) : 8/3/2017 2:33:47 AM (GMT-6)