Bicuspid Aortic Valve

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Cadester18
New Member


Date Joined Nov 2011
Total Posts : 3
   Posted 11/22/2011 9:17 PM (GMT -6)   
My name is Cade, i am 20 years old, 5 ft. 7 inches tall weigh 130 pounds. I have always been slender. Recently i was watching tv for a while and a started feeling kinda funny i got up and went to go get something to drink, everything started getting dizzy felt like walls were closing in on me also noticed my heart was pounding. i went outside got some fresh air and sat down for a minute. i also noticed i had started to sweat. A couple weeks later i went to the doctor to get a check up, everything came back fine in my bloodwork except my doc heard a pop noise in my heart beat "murrmor" i guess? so i went to a cardio doc to get an echocardiogram. I was then diagnosed with a biscupid valve i also asked the doc about this feeling i been getting in my chest, kinda feels like my chest is full or "tight" as you would say. it happens about everyday and he says it could be anxiety. I now went for a stress test for my heart "treadmill" all the nurses said everything looked fine blood pressure etc. I have to go back to get the doctors answers for that. im just wandering about this anxiety feeling, i have never felt anything like this before. DIDNT EVEN KNOW about THE HEART MURRMOR TIL NOW! all this has really freaked me out and i just dont know what to do, what if this chest tightness and sensitivity is somethin other than anxiety? but i have to say i took a xanax my friend gave me and i felt alot better didnt really think about it or anything, is anxiety what i am feeling or may my valve be leaking? would the doc be able to tell by the echo??

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 11/23/2011 10:41 AM (GMT -6)   
Hello and welcome to HealingWell.  I would say you are doing all the right things in seeking out the help of your Drs. and now wait for the final report from the Cardiologist.  My hubby has had a heart murmur for many years, also in his early 20s when the Dr. first mentioned it.
 
Anxiety and chest pain also go hand in hand so I would suspect  your Dr. is right that you have some anxiety going on.  We have a great anxiety forum if you would like to read through the forum or search for "anxiety and chest pain" on our site you will get lots of hits.
 
Please do talk to your own physician re RX for anxiety as using someone elses meds  is always a bit dangerous.
 
Kindly,
Kitt
 
 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

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jdiane
Veteran Member


Date Joined Jan 2003
Total Posts : 1156
   Posted 11/25/2011 9:15 PM (GMT -6)   
Hey there. I also have bicuspid aortic valve disease.  Have been following mine since birth.  What did your echo show?  Where do you live?  It's important to see a cardiologist that works with a lot of patients with congenital disease and not just acquired!  If you can find an adult congenital heart disease center near you, that would be best.  Your cardio should be meauring the stenosis of the aortic vavle that comes along with it being bicspid, it is a progressive disease.  Also, and most important, they should be wathcing for an aortic aneurysm. Some cardiologist are still not aware to look for this, it's a result of the bicuspid vavle and is most impiortant.  The more stenotic the valve becomes, the more regurg you get, the larger the aneursym will grow.  Also, shortness of breath, chest pain and fainting are serious symptoms of this disease!
 
I'm a bit older that you (36) and now have severe stenosis, with regirgitations and an aneurysm measuring 3.6 cm.  Not everyone with a bicuspid valve gets this, but I'd ask about it.  Not Everyone with this needs surgery, but it's a possibility.  Although my disease is now pretty severe, I'm still not symptomatic. I get checked every 6 months to re-evaluate if I'm ready for surgery.  I'll have my valve replaced and the aorta repaired.
 
Feel free to ask me anything you want. 

Cadester18
New Member


Date Joined Nov 2011
Total Posts : 3
   Posted 11/28/2011 5:49 PM (GMT -6)   
I live in Gadsden, Al. That is near the UAB I have thought about gathering all my current doctor info and heading to see one of there doctors, I have been feeling weird, I never even knew I had this until now. My chest sometimes feels sensitive to zippers, buttons etc. on my shorts or jackets, it also feels really tight at sometimes no pain just discomfort and annoyense. My doctor tells me it's signs of anxiety but idk. I have had a stress test and echo done that is all, I really wanna know more about this and the condition I am in.

pixie333
New Member


Date Joined Jan 2012
Total Posts : 8
   Posted 1/17/2012 6:34 PM (GMT -6)   
hi there I no all two well
just had my arotic valve replaced 5 weeks ago
wth a st jude valve
today i walked up my street without stoping
good luck with your valve verry scarry they can work wonders now :)

Scuba
New Member


Date Joined Apr 2011
Total Posts : 9
   Posted 4/22/2012 8:20 PM (GMT -6)   
I was diagosed with a bicuspid valve and a thoracic aortic aneurysm along with major blockage on each side of my heart about a year ago. In June I underwent triple bypass and repair of my aneurysm.
it has been 9 months since surgery and I feel no better today than i did before surgery. they decided to not replace my valve as it is not leaking enough to justify replacing as I am only 47 and it would meen being on cumiden the rest of my life. I still have major back and chest pain and the doctors can't figure out what is causing it.
unless the valve is major leaking I wouldnt worry about it as much as if you have developed a aneursym.
good luck
steve
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