MRI to rule out ARVD on Monday......paralysed with fear x

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New Member

Date Joined Feb 2012
Total Posts : 1
   Posted 2/25/2012 9:14 AM (GMT -6)   
Hello everyone,

I'm 37, married with three children who are my world.

For the last 7-8 years I have suffered with ectopic beats, sometimes they are there constantly, sometimes I won't feel them for months.

In 2005 I had an echocardiogram whilst pregnant with my son.....nothing of concern was reported but I was sent for an MRI, with no reasoning given. I went.....but backed out as I'm very claustrophobic. Ever since, I've had the palpitations and had umpteen tests which have all come back 'normal'.....ecg's, holter, chest x-rays.

I've kept going back to my GP, simply because, although the ectopics are painless, they are a nuisance. I had another echo last October but was never notified of the results, despite numerous calls. Next thing I know I'm referred to a top cardiologist " for a second opinion ". I still don't know what the first opinion was.

I went on the 10th of February, had another echo and saw the cardiologist straight after who announced my echo is abnormal. After hearing ' abnormal ', things are a bit hazy but I remember some things which have literally put the fear of God into me.

He needs to rule out ARVD... the main thing I remember. I can't explain how terrified I am. I went to pieces last week and ended up admitted to hospital and monitored.

Initially, I was expected to wait between 8-12 weeks for a cardiac MRI. My husband has taken the matter out of my hands and used our holiday savings to go private as I'm not coping at all.

It has emerged that the echo from 2005 is exactly the same as the echo this time around.....the same abnormality is still there (which I was never told about back then ).

They have said the left side of my heart is perfect and working as it should.....but the right side just isn't * right * with a slight bulge on my right ventricle.

Just to add.....I have no history of any heart disease in my family, let alone ARVD. I have never smoked, I don't drink, I have never touched drugs, I have exercised all my life. I'm constantly on the go. I'm never breathless, never tight-chested, never faint or ever get's only the palpitations that I have ever had. The cardiologist said that, had my echo been " normal ", he'd have politely sent me packing. He said he doesn't * think * it's ARVD or that there's anything serious to worry about....but that doesn't reassure me at all.

The palpitations started after a year of horrendous life-changing events that affected me terribly, things that most people don't see in a lifetime.

I'm frightened, please somebody help x

Elite Member

Date Joined Apr 2007
Total Posts : 32602
   Posted 3/1/2012 4:44 PM (GMT -6)   
Dear lady,
I am sorry I am just responding now to your post. I am not very familiar with this disorder and I was hoping another member may have input for you.  I can understand your fear and kudos to your hubby for getting you in for an MRI sooner rather then later.
Here is a link to Cleveland Clinic that you may find helpful:
I don't usually do this but I have found an online support forum that may be helpful and supportive for you as we don't seem to have any members that are dealing with this problem.  I feel bad that we are unable to give you awesome advice but please know we do care about you and want you to have the best care and support during this difficult time.
I hope that you will stay with us and that you will share what you learn about ARVD with all of us.  We have a huge following of people that read the forums but never post so know anything you share will help others .
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.

"The road of life twists and turns and no two directions are ever the same. Yet our lessons come from the journey, not the destination."
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