Question about getting on the heart transplant list/receiving an LVAD

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saj1jr
New Member


Date Joined Mar 2012
Total Posts : 1
   Posted 3/6/2012 12:12 AM (GMT -6)   
My dad is 50 years old with severe, end stage CHF. He has been on continuous IV Milrinone at home for nearly 8 months.

Unfortunately, he has been denied getting on the heart transplant list, and has been denied the LVAD. The initial reasoning for denying the LVAD was "lack of family support". That issue has apparently been resolved, however, now the new excuse(s) range from "we don't trust you that you'll take your meds" to "your blood thinning numbers were off too many times".

To me, these seems like absolute ridiculous reasons for denying my father LIFE. He does indeed take all of his meds, and going off of pure asumption like they are is absolutely ridiculous.

As for not getting on the heart transplant list, at age 50, they really don't have an excuse, aside from the same ones listed above.

Aside from his heart condition, my dad is, and always has been in good health. His kidneys are good, his liver is fairly well, he has no cancers or anything like that, and his arteries are clean.

Does anybody know if what they are doing is legal? Is it legal to prevent someone from getting on the transplant list only because of some assumption? We're being seen at the University of Michigan hospital, which is already 2 hours away from home, so going anywhere else would be outside of out means and our income to do.

Any advice on this would be appreciated.

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 3/6/2012 3:15 PM (GMT -6)   
saj1jr,
 
Hello and welcome to HealingWell.  I am sorry to hear of the problems your Father is experiencing.  I do know that each facility has their own eligibilty criteria for being accepted into the transplant program. 
 
Doctors evaluate potential candidates individually. You must be willing to adhere to a regimented medical program and work closely with your medical team to maximize the benefits and reduce the risks of transplantation.
 
I would suspect that a social worker has been assigned to your Father and this may be a good person to talk to re your concerns as to why you Father is being excluded access to the transplant list. Reading from the University of Michigan Hospitals website it states, " The heart transplant specialists at the heart transplant center will determine whether a patient is eligible for a transplant." 
 
Sincerely,
Kitt
~~Kitt~~
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GERD/Heartburn and Heart/Cardiovascular Disease.

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PATHLV
New Member


Date Joined Jun 2012
Total Posts : 1
   Posted 6/23/2012 9:24 PM (GMT -6)   
I understand your concern. Find a hospital that will say yes. It took me three times before I got one to say yes. It is his life; they are playing God,
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