Ascending at 4.4

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dejakabe
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Date Joined May 2012
Total Posts : 1
   Posted 5/29/2012 11:54 AM (GMT -6)   
Echo just had me at 4.4 ascending aortic aneurism near heart. I live in Southern California -- anyone know of any cardiologists, surgeons or good facilities here for a consult or possible surgery? Thanks. D

jdiane
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Date Joined Jan 2003
Total Posts : 1156
   Posted 5/30/2012 1:59 PM (GMT -6)   
you might try contacting the American Heart Association and see who they know in the area? Maybe a local chapter with a support group so you can talk to others who live in the area with experience?

YOKI41
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Date Joined Jun 2012
Total Posts : 2
   Posted 6/15/2012 10:47 PM (GMT -6)   
IM A HEALTHY ATHLETIC 40 Y/O FEMALE THAT RESIDES IN SOUTH CAROLINA AND I WAS JUST DIAGNOSED WITH ASCENDING PSUEDO ANEURYSYM OF THE AORTA AND IM STILL REELING FROM THE DIAGNOSIS.... IVE BEEN HAVING HEART SYMPTOMS OF PALPITATIONS, CHEST, BACK AND ARM PAINS AND WOULD GO TO THE ER OF THE LOCAL HOSPITAL HERE AND THEY WOULD DISMISS AS CHEST WALL PAINS. I ALSO WENT TO MY CARDIOLOGIST WHO DID ORDER A STRESS TEST AND ULTRASOUND OF HEART AND THE RESULTS WERE NEGATIVE AND SHE BASICALLY DISMISSED MY COMPLAINTS AS PVC'S AND NOTHING MORE...IN FACT THIS WEDNESDAY I WENT TO THE ER AGAIN AND THE ER DOCTOR TRULY LISTENED TO MY COMPLAINTS AND ORDERED A HEART CATH, AND THATS WHEN MY DIAGNOSIS WERE FINALLY REALIZED AND IM VERY RELIEVED .HOWEVER, I NOW KNOW WHATS OFFICIALLY WRONG , BUT HAVE SO MANY QUESTIONS AND CONCERNS AND FEELING OVERWHELMED WITH ANXIETY. WHAT CONCERNS ME AT THIS TIME IS MY CARDIOLOGIST WHO DIDNT THINK THE HEART CATH WAS NECESSARY IN THE FIRST PLACE DISCHARGED ME WITHOUT A SCHEDULE DATE TO EVEN PERFORM THE SURGERY. THE CARDIOLOGIST GROUP BASICALLY SAID THAT MY PING PONG BALL SIZE (4 TO 5 CM) PSUEDOANEURYSYM IS A ELECTIVE SURGERY AND THEY WANT TO GIVE A TENTATIVE DATE OF A FEW WEEKS !!!!!! IM NOW WORRIED IF THEYRE CHOOSING THE WORDS ELECTIVE THAT MY INSURANCE WONT PAY !!!!!! I REFUSE TO WAIT AND IM CURRENTLY RESEARCHING OTHER LOCAL CARDIOLOGIST/VASCULAR GROUPS .IF ANYONE HAVE ANY PERSONAL EXPERIENCE TO ADVISE PLEASE HELP. THANK YOU.
 
<Edit>  Typing in all caps is considered yelling, screaming or at the very least adding emphasis to the word you type. Various studies on the topic reflect that it is more difficult and takes longer to read text that is typed in all caps. Thanks for your understanding.

Post Edited By Moderator (stkitt) : 6/17/2012 1:20:48 PM (GMT-6)


jdiane
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Date Joined Jan 2003
Total Posts : 1156
   Posted 6/16/2012 11:58 AM (GMT -6)   
5 cm is not elective surgery, It's protocal. 4.5 cm for congenital heart disease patients, and 5 cm for others. how was the aneurysm measured? Echo, MRI or CT?

YOKI41
New Member


Date Joined Jun 2012
Total Posts : 2
   Posted 6/16/2012 7:15 PM (GMT -6)   
I WAS ADVISED OF THE SIZE RIGHT AFTER THE HEART CATH PROCEDURE AND THEN WAS SENT TO DO ANOTHER CT SCAN TO GET MORE MEASUREMENTS ?... COINCIDENTALLY, I WAS BORN WITH A CONGENITAL HEART VALVE DEFECT WHICH WAS REPAIRED WHEN I WAS 2 YEARS OLD IN 1973 AND THE DOCTORS SUSPECT THIS IS WHERE THE ANEURYSM DERIVED, YET, THEY STILL ADVISED ME THAT IS A ELECTIVE PROCEDURE AND IM JUST OVERWHELMED WITH CONFUSION, FEAR AND UNANSWERED QUESTIONS.

jdiane
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Date Joined Jan 2003
Total Posts : 1156
   Posted 6/17/2012 12:43 PM (GMT -6)   
What is your congenital disease? I have/had Bicuspid Aortic Valve disease with severe stenosis (had my valve replaced in May after getting endocarditis). It is very common to have an aortic aneurysm with aortic valve disease. Where are you located? I would look for a cardiologist that works with adult congenital heart disease patients. You need a cardiologist that understands pediatric disease. My cardiologist and cardiothoracic surgeon are all pediatric docs (I'm 37).

I'm in Atlanta so am fortunate enough to have Emory in my backyard. http://www.emoryhealthcare.org/congenital-heart/index.html

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/17/2012 1:27 PM (GMT -6)   
 
Hello and welcome to the forum.  I can only imagine the fear you are going through and I would kindly suggest that you contact your medical insurance to see why you have been turned down for surgery.
 
In medical terminology, all surgeries that are not urgently required within 24hrs* of the medical assessment for surgery are “elective”. Elective surgeries go on a waiting list to be scheduled according to their urgency category (say within 1 week, within 1 month or within 6 months) while true emergency surgeries jump the scheduled queue for the OR.
 
The term elective surgery does not mean “unnecessary” or “on a whim”.  You should be able to have the surgery without any problems re the necessity of needing it.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"I am not afraid of storms for I am learning how to sail my ship" ~ Louisa May Alcott
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