Posted 6/3/2012 1:10 AM (GMT -6)
I, too, have multiple health issues - so keep in mind I have so many things going on - that they often merge together when I'm talking it. So bear with me, lol.
I'm 38 years old. I was relatively healthy until about 30 (before that - just migraines, some depression/anxiety issues that came and went, etc). When I was 30, though, it literally felt like a semi-truck crashed into me - and, honestly, I've not been the same since then.
Since then, I've been diagnosed w/ POTS/Dysautonomia; Fibromyalgia and Chronic Fatigue Syndrome; Chronic High BP; Hypothyroidism; Chronic Pain issues - beyond the fibro, I have cervical and thoracic back issues; sciatic nerve issues down my legs; severe carpal tunnel syndrome in both hands; oh, and that lovely depression and anxiety that comes out ever little bit, lol.
Back to the heart thing:
The main things before my diagnosis.... my resting heart was about 100. ANY activity - I'd immediately be in the 180's to the 200's. Well, this did not make doctors happy - to see a pretty healthy mom in there with multiple issues - and a heart doing crazy things. Another main thing at the time - ANY positional change would cause me to get so dizzy that I would almost black-out. At night, I often read to my kids while stretched out on the floor on my stomach. Well, I'd go to get back up - and I would become dizzy, light-headed, my heart rate would speed up and I would feel a rush of blood to my brain. This still happens w/ any positional changes.
POTS is something that branches off of Dysautonomia.... basically - your "autonomic nervous system" (the thing that runs all those fancy systems in our body that we don't have to think about, because our body automatically makes it work - such as our hearts, lungs, some GI stuff - even our body temperatures and some muscle/joint pain issues can be related).
I had every test imaginable - EKGs, Holter Monitor, 30 day monitor where I kept a diary of all activities, Echocardiogram, the echo w/ the treadmill test.... (it took me exactly 3.29 minutes to get to where my heart rate needed to be - in the 170's. I thought that was ridiculous.
Instead of me rambling on (which I do SO very well, lol) - why don't you peek at www.dinet.org. You might find that if you really read through the different components.... you might find things that you can identify with. You might see enough that puts you on that path to look more into it.... OR it still might help point you in other directions. Once you are familiar w/ the site - go to the "Forum" section... then click on Enter Discussion... then click on Dysautonomia Discussion. Maybe by reading some of people's stories - you might read something that sounds exactly like what is going on w/ you.
Managing POTS is finding the "right" meds to work - just like any other thing. I've been on a bunch of them.... That's for sure! Right now, I'm only on Atenolol (beta blocker) but at really high doses. For the moment, I'm stable... but that can change any time.
I think asking for another stress test make perfect sense. I'd really encourage you to do that.
Glad you talked to the Lyme board!! Anything hurt in your body?? Then, come visit me and my team at Chronic Pain - we've really got a great group there, lol. Point being, you are very welcome here, on any forum..... and so many of us end up becoming really good friends, it's funny.
Once you read all that stuff - if you have other questions about any of it - please fee free to ask away. I'll help you as much as I can. My e-mail is in my profile OR we can just keep discussing it on this thread :)
Well Mr. AKA - Jon :) It's been nice talking to you - and, again, I wish you so well on this journey. Please keep me updated, ok?
Moderator - Chronic Pain Forum
My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.
Health/Pain Issues - too many to list; feel free to ask