Atrial Septal Defect

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Bama1984
New Member


Date Joined Jun 2012
Total Posts : 3
   Posted 7/26/2012 3:58 PM (GMT -6)   
I'm a 27 year old male who just found out I have an ASD that was found in a routine exam. Not exactly sure why it's never been found before, but that's beyond the point. They said it's large 22mm, but I do not have a lot of shunting which was odd to them. So they aren't entirely sure if I have one or not...supposedly. My question is, I would like to hear strories, both long and short of people who have had it done around my age. I know the older you are the more "things" or complications you might have, so I prefer to only hear around my age. They plan on closing it with the amplatzer device if that helps any. I look forward to hearing anything. Thanks!

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 7/26/2012 4:17 PM (GMT -6)   
 
Welcome to HealingWell and I do hope some members respond to your questions.  I have no personal experience with ASD but I know we have members who do so hang on and I will look and see if I can find a link to a previous thread that may give you some info.
 
Here is a link to another thread re ASDs.
 
 
Kindly,
Kitt
 

 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"I am not afraid of storms for I am learning how to sail my ship" ~ Louisa May Alcott

rubiejulz
New Member


Date Joined Jul 2012
Total Posts : 1
   Posted 7/29/2012 12:44 PM (GMT -6)   
My ASD was just discovered this month, I am 47 My Doctor wants to close it August 22nd using the Amplatzer device but...................I have read some disturbing things about it. I am now looking into Robotic surgical closure.

http://217.219.214.30/documents/10129/49728/222.pdf


http://217.219.214.30/documents/10129/49728/222.pdf


http://onlinelibrary.wiley.com/doi/10.1002/ccd.20211/full


http://www.healingwell.com/community/default.aspx?f=42&m=1401284













Medicdad73
New Member


Date Joined Aug 2012
Total Posts : 2
   Posted 8/3/2012 4:31 PM (GMT -6)   
I am 39 and getting my ASD patched next week. i am not sure about my cardio doc, he seems to think 1.75cm is "small" and don't require much more than watching it. It is a primum asd, which everyone says has to be closed with surgery. Is this info correct? Should I ask for another opinion? See my other post.

http://www.healingwell.com/community/default.aspx?f=42&m=2479378

hennysson
New Member


Date Joined Oct 2012
Total Posts : 2
   Posted 10/16/2012 6:23 AM (GMT -6)   
Hello!

My name is Hannah, I am 24 years old. I had my ASD-closure for 1 year ago. I, aswell as alot of others have got big problems with migraines after the closure. My hole was 22-23mm in diameter and I had a big shunt. After my mother got problems with her heart they found the hole and closed it, because I am so alike my mother we also checked me, and yes, I also had a hole, mine was the double size of y mothers. My mother has not have any problems with migraines after her closure, so I don't know if my problems and approximately 10-20% of other patients (according to a cardiologist who's done studies regarding migraine after ASD-closure) have anything to do with the size and the shunt.

I almost feel like I regret the procedure, because of my problems with migraines with aura, but also the heaviness in my head that I have almost every day.

It is a big concern that all patients doesn't get better while some (most of the patients) have no problems at all. Still, it feels as if there is a risk of getting problems post-ASD Closure.

The best thing for you who still haven't got it done, look into all different options, maybe you don't have to close it with the device and therefore not have any problems afterwards.

Try to talk to your doctors and see what they think, but there is certainly a connection between migraines and the procedure for some patients, it can not be a coincident that so many get these problems.

If you would like to talk further you can always email me on: hannah-vikingsson@hotmail.com
I have been in contact with 2 different doctors from the US, who agrees with these problems. So if you have any more questions, I might be able to answer them or give you my opinion.

Good luck everyone!
Hannah
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