New to forum, wondering if there is anyone else with tetrology of the fallots.

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New Member

Date Joined Jul 2012
Total Posts : 2
   Posted 7/31/2012 2:03 PM (GMT -6)   
I was born with TOF and had my first op when I was 2 in 1982, I went on to have a pulmonary valve replacement in 93, I since went on to have 3 children, I've known for the last few years my heart has been getting worse with valves starting to leak, I normally work full time around 40-60 hours per week but since November last year I've been signed of as I was coming home nearly collaspsing, my condition has slowly got worse I'm tired all the time breathless, and has now been told I need another operation to replace the pulmonary valve and a ring in my tricuspid valve, some damage to be removed and pacemaker wire put in, my tricuspid valve is leaking 68 percent I was just wondering if any other TOF people have had more ops for help and support.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 42528
   Posted 7/31/2012 3:42 PM (GMT -6)   
Hi Sarah,

I am just popping in to greet new members. Wanted to welcome you to the forum. I Hope you get some answers to your questions. Keep posting and know that we all care about you.

Take care, Somebody will be posting to you soon I am sure.

Hugs, Karen
Moderator-Depression and fibromyalgia

fibromyalgia, Chronic fatigue, depression, allergies
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