i am a 36 year old female and just had a total pericardiectomy . they never found the cuase so they say it was viral. i have been through hell these last 3 months. i was perfectly healthy till this. the only thing i can think of is about
a month before this started i had a bad throat infection, i had high fever , my throat was completely closing it was red and white inside . i was literally in the er less than 20 mins i wasnt even seen in a room everything was done in triage.3 tylenols for my fever, shot to
open up my throat he looked in my throat and said aaahhh pharyngitis sent me home with antibiotics for 5 days which i did complete and my throat still hurt after the 5 days. youd think he could have taken the time to at least take a culture a simple swab. no he did not. several weeks later my lungs and heart started filling up with liquid i went to the same er becuase its closest to my house with severe chest pain and shortness of breath, the dr was rude sent me home saying i had nothing didnt mention i also had a high fever quid ,no prescript
ion for pain the nurse told me take ibuprofen or learn to deal with the pain. i couldnt believe it! i went to another hospital where there they found i had liquid around my heart and both my lungs i was in icu for 11 days there. they drained 950 cc of liquid from one lung and 650 from the other they said i had liquid around the heart but not enough to remove. the liquid removed from my lungs was tested, every test possible nothing came up. i was sent home after 11 days in icu. 4 days later at home i was awoken by and incredible pain in my chest, i could not move so much i had to end up calling rescue which i begged them please to not take me back to that same hospital i wont name ,and they told me they had to it was the closest to my house. there they found the liquid around my heart had increased so much i had to have an emergency surgey called a pericardio window,. supposedly that was suppose to fix the problem , i was going to be fine after that i was in icu there for about
another 11 days. i was sent home again several days later incredible amount of chest pain i did not want to return to that hospital so was taken else where and they found once again my lungs and heart were filled with this mysterious liquid i was in icu there for about
10 days where my lungs were drained again .and a number of doctors were discussing what to do all but 1 agreed i needed to have surgery or i would die. all but the most important one the heart surgeon. there was this cradiologist wonderful dr. he told me he lost his brother at 23 yrs of age from the same condition i had and that he was not going to let that happen to me, i seriously believe he was heaven sent. that dr. had me transfered to the best hospital where the best heart surgeon in miami,fl would be my surgeon, i was transferred on a sunday and surgery was done monday at noon. they went in to remove partof my pericardium but what they found when they went in was very surprising to them i had pus,i had blood clots, i had calcified hard tissue well they ended up having to remove my whole pericardium this was done on july 30,2012 almost 3 weeks . i can not describe how much pain i am having i guess considering i had a sternotomy and the whole pericardium removed but omg i am going through so much, not to mention i have 4 small children which is not making recovery much easier. i am glad i found this page and i was just wondering if there is anyone who has gone through something similar. and if yes how long will this pain last.
Post Edited (dbestmommy) : 8/10/2012 6:27:59 PM (GMT-6)