Husband is having pericardiectomy.....I'M SCARED TO DEATH

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lorrie328
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Date Joined Aug 2012
Total Posts : 5
   Posted 8/14/2012 9:26 AM (GMT -6)   
please help us/me.....my husband is only 51 and developed a cough and wheezing and when they xrayed his chest they could hardly see the heart for all the calcium. after seeing a cardiologist 10 days ago they say he has constrictive pericarditis and needs a pericardiectomy. his cath showed a healthy strong heart (at least as far as they can tell) with no blockages at all. he is physcially fit and not at all overweight but..........I AM SCARED TO DEATH. has anyone had this surgery? we saw dr. sina moainie in indianapolis and he has done 12-15 of these surgeries. anyone? cry cry

getting by
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Date Joined Sep 2007
Total Posts : 42530
   Posted 8/14/2012 1:53 PM (GMT -6)   
Hi Lorrie,

I am not from this forum, but would like to welcome you. I hope that you get some responses soon. If he has done 12-15 or these surgeries, that sounds like a lot. Best wishes to you and your husband...

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

lorrie328
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Date Joined Aug 2012
Total Posts : 5
   Posted 8/14/2012 1:54 PM (GMT -6)   
thank you karen

lorrie328
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Date Joined Aug 2012
Total Posts : 5
   Posted 8/27/2012 10:57 AM (GMT -6)   
hi karen. i have not heard from a single person about my post confused

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 42530
   Posted 8/27/2012 3:04 PM (GMT -6)   
This forum is rather slow at times. I think it all depends how many people come on it. I moderate depression and fibromyalgia and they seem to have a lot more people on the sites. I am sorry nobody is responding. I hope that somebody does.

Hugs...
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Doodle1
New Member


Date Joined Sep 2012
Total Posts : 4
   Posted 9/5/2012 5:01 PM (GMT -6)   
sBless your heart.  I have ALL your answers.  My husband had a pericardiectomy 4 months ago.  Wish I'd had this site then.  I am also a RN.  He is 58 and very healthy.  I'll answer any questions.

rockchick63
Regular Member


Date Joined Sep 2012
Total Posts : 28
   Posted 9/17/2012 11:06 PM (GMT -6)   
hello, my husband is 44 and has constrictive pericarditis as well, im very worried as he has always been in tip top shape, seems to be moving fast and at times scares me as no doc has told us what to look for or expect... frustrating... watch and wait... is there answers... i have been assured the best will do the surgery, sounds like a risky one????? i see varibles play into the end result, like age, health, ect.. do all pts who have surgery have heart failure? from this condition? my husband does... fliud build up on legs, and seems to breath heavy most of the time when he does things, he still works and works in manual labor. he does not think he has any symptoms at all, not sure if he just says this.... he also had not been sick recently.... love to meet others and chat more on this topic... thanks :)

NYCMusicMan
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Date Joined Sep 2012
Total Posts : 4
   Posted 9/20/2012 9:59 AM (GMT -6)   
Hi Doodle-

Do you have an personal email where you can be reached with questions about pericadiectomy? I've had calcification around my pericardium since I had acute pericarditis ay 15, but it didn't start becoming symptomatic until I developed a-fib last year at age 39. My doctor at NYU is now leaning towards the Constrictive Pericarditis diagnosis, and I'm extremely confused and anxious. if you're able to answer some questions via email or instant messenger, I'd greatly appreciate it.

Thanks,

Trevor

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/21/2012 2:33 PM (GMT -6)   
Hi Lorrie,
 
I am so sorry I was not here to help you out with your questions as I had major surgery on 8/16 and am just getting back into the swing of being online.  I do hope your husband had his pericardectomy and that he is doing well.  I hope that you are hanging in there and as a wife I understand what it is like to have your husband dx with a serious problem. 
 
My husband has Crohn's Disease, had Prostate Cancer and coming up on the 5 year post op mark and just last September was dx with cardiomyopathy.  Since he was 29 I have worried about him but the cardiomyopathy through me for a loop as I never thought he would develop a heart problem
 
Blessings to you and be well.
 
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"I am not afraid of storms for I am learning how to sail my ship" ~ Louisa May Alcott

DStein
New Member


Date Joined Aug 2012
Total Posts : 5
   Posted 10/6/2012 5:27 PM (GMT -6)   
Kitt,
Sorry to hear about your husbands medical problems did he also have a pericardectomy or was that you glad to hear you are doing well, i,just had a pericardecfomy three weeks ago. Daniel

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/6/2012 7:42 PM (GMT -6)   
DS,
 
No my husband did not have any procedures when he was dx with cardomyopathy. The Dr. started him on medication but hubby reacted to the med so he is back to just dealing with his Crohns.   I do not have a heart problem just hypertension well controlled. 
 
My surgery was for newly dx colon cancer but I have started chemo and expect to do well.
 
I am glad to see so many members have responded to this thread.
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"I am not afraid of storms for I am learning how to sail my ship" ~ Louisa May Alcott

DStein
New Member


Date Joined Aug 2012
Total Posts : 5
   Posted 10/6/2012 10:55 PM (GMT -6)   
Kitt,
Glad you are recovering well from your surgery and hope everything else goes well for you as well. Daniel

McAlhany
New Member


Date Joined Feb 2015
Total Posts : 7
   Posted 3/25/2015 10:26 PM (GMT -6)   
Hello,

Just wanted to share that my dad who is 79 years old just had a successful pericardectomy at the University of Chicago. It was done robotically and they were able to get all calcification (posterior, anterior and lateral) using this approach. Dr. Balkhy is one of the few (or only) surgeon that has done them robotically, esp. with a lot of calcification. Other major centers turned my father down due to high mortality risk of conventional approach. Good luck to everyone here struggling with surgical decisions.

Helen (Atlanta)
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