Questions for heart failure patients

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MITengineer
New Member


Date Joined Sep 2012
Total Posts : 5
   Posted 9/29/2012 8:13 PM (GMT -7)   
Hi Everyone,

First, a short introduction, I am an electrical engineering student at MIT in Boston who is working a project to develop technologies to help HF patients better manage their health after diagnosis. On this project we have other engineers and cardiologists working as a team. The technology involves a continuous wearable device that monitors your heart’s health.

The technology is in its developmental stage, and I feel there is no better way to shape the technology than to interact with people living with HF, and to hear your thoughts about the questions I’m having. I’ve included them below, and it would be GREATLY appreciated if you can take some time out of your busy schedule to answer ANY of them.

Edit - Questions removed awaiting administration approval.

With your help, we hope this technology will someday help HF patients live healthier lives. Once again, thank you very much for your time and inputs. I will note down every single response and go over them with my team.

Kind regards,

David

Post Edited By Moderator (stkitt) : 10/1/2012 5:08:05 PM (GMT-6)


MITengineer
New Member


Date Joined Sep 2012
Total Posts : 5
   Posted 9/29/2012 8:16 PM (GMT -7)   
Sorry, post logo was supposed to be a "question mark."

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 42178
   Posted 9/30/2012 6:45 AM (GMT -7)   
Hey David,

Welocme to the heart forum. I am just filling in so I can't answer any of your questions. I hope you do get answers though. Weekends are slow here, you will probably get more response after Monday.

Take care,

Hugs, Karen
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

MITengineer
New Member


Date Joined Sep 2012
Total Posts : 5
   Posted 9/30/2012 1:07 PM (GMT -7)   
Thank you Karen!

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/1/2012 4:04 PM (GMT -7)   
Good Evening David,
 
I have been away ill for the past few days so please forgive me for getting to your post just now.   I am Kitt and it is my pleasure to welcome you to HealingWell.
 
We have a rule  that no posts regarding research studies, survery, or clinical trials are allowed without prior approval from the forum administrator. 
 
You may email Peter @ admin@healingwell.com. When you get permission just leave a post in your thread stating that you have received the Okay from Peter.  I will usually get a message from him too.
 
Meanwhile I will edit your post but safe the questions so I can reinsert them into your thread when I see your post stating you have permission.
 
Thank you in advance for your understanding.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"I am not afraid of storms for I am learning how to sail my ship" ~ Louisa May Alcott

MITengineer
New Member


Date Joined Sep 2012
Total Posts : 5
   Posted 10/1/2012 6:43 PM (GMT -7)   
Hi Kitt,

Thank you for the heads up. I have emailed Peter and hopefully will get a response soon.

Hope you feel better!

David

sandraA
New Member


Date Joined Oct 2012
Total Posts : 1
   Posted 10/2/2012 7:31 AM (GMT -7)   
i just found out that my 14 year old daughter has a loud heart murmur, i took her in for having shortness of breath and having some anxiety issuses. i am worried as well as she is too. ive got tomake her an appointment with a cardiology should i be this worried im freaking out. i lost a son with heart problems and my daughter is saying i dont want to die mom i need advise on what to tell my daughter shes really scared please send me advise and what this means please, thank u..

MITengineer
New Member


Date Joined Sep 2012
Total Posts : 5
   Posted 10/12/2012 1:21 PM (GMT -7)   
Peter has approved the posting of the questions. Please do not include personal contact information in your responses. Here are the questions again:

1. Besides symptoms, what is the #1 factor that degrades your quality of life? This could be tangible or psychological.
2. How many times have you been readmitted to the hospital due to HF?
2.a. Why were you readmitted?
2.b. Was the readmission preventable? If so, how could it have been prevented?
3. How do you currently monitor your own health between doctor’s visits? Is it through devices or by feeling?
4. Is there any guesswork or uncertainty that you wish could be taken out of your treatments?
5. If you can continuously monitor your heart’s health through a relatively unobtrusive wearable device, would you wear it every day? Or only when you are feeling the symptoms?
6. If there is one thing you can change about the current way HF is managed by the healthcare system, what would it be? This could involve physicians, nurses, hospitals, or insurance companies.
7. Any additional comments are welcomed!
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