None ST segment MI

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Texrose
Regular Member


Date Joined May 2005
Total Posts : 30
   Posted 6/4/2005 8:49 PM (GMT -7)   
I just got my Cath drwaing in the mail and prior to me receiving this, we were told i did not suffer an MI.
 
In BIG BOLD LETTERS the CATH REPORT indicates UA/NSTSMI.   This stands for Unstable Angina/Non STMyocardial Infarction!  Why this Cath Doctor lied to my hubby and I is beyond me.
 
Looking up this information tonight, UA/NSTSMI is very serious and can cause instant death and if the patient survived this ruptured plaque and has an elevated Troponin level, there is a good chance that death can occur within 30 days of an event.  The article went on to say that even if the artery is occluded 40% a piece of plaque can break off causing a 100% blockage in a matter of seconds.
 
In December when I had my first Cath and stents, the cath doctor told me I was cleared and good to go with no occlusions any where and most likely will never have to have another cath.
 
Then when they cath'd me last week, they stented an area where it was 40-60% blocked.  This makes no sense to me.  All clear 5 months ago and now a dangerous area that could cause instant death.  I must not be living right. sad
 
Has anyone had similar?

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 6/4/2005 10:02 PM (GMT -7)   

TexRose, 

That's terrible that you found this out the way that you did!  I've done a little reading tonight trying to find something to help explain this not only to me, but for me to help explain this to you.  Did the drawing show where the MI took place?

It's called Unstable Angina and Non-ST-Segment Elevation Myocardial Infarction (UA/NSTEMI)

The following article, I felt explained this the best-most of the articles were written such that you need your PHD to interpret them and you may for this one as well...My very limited understanding is that you should have first been given aspirin and possibly a blood thinner to prevent possible clotting-which is what they do for anyone suspected of a MI.  The decision as to what to do at that point would be if you were at high risk or not...to continue, please read the following.

I hope this helps.  Hugs, Teri tongue

http://www.aafp.org/afp/20040801/535.html



"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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Post Edited (Teri16) : 6/6/2005 7:14:37 PM (GMT-6)


Famulus
Regular Member


Date Joined Jun 2005
Total Posts : 127
   Posted 6/6/2005 2:07 PM (GMT -7)   
Hi TexRose - Wow - that would be a shocker to get something like that in the mail! That alone could give you a heart attack! I would suggest going to Medical Records at that hospital and ordering all your records from that visit (better yet, from ALL your visits)

I haven't gotten anything in the mail like you did, but I did pick mine up from my last experience in January, and found that on the bottom of the handwritten sheet for the thalium stress test, the cardio wrote "likely infarct" and signed it, but then crossed it out and stamped something over it (but you can still read it). I was told everything was fine - and that I had GERD. (I don't!)

The same medical records from the same visit showed S-T wave abnormalities, QRS abnormalities, and right BBB (new to me), and LVH, PH, and 3 disfunctional valves.....((((however)))) - when I read the top of the sheet closely, under patient description, it said that I was a 5'-3", 180 lb woman but I am six inches taller and 50 pounds lighter. So....I don't know if SHE had a likely infarct - or if I did!!! I'm still trying to get to the bottom of that.

Maybe you can track down more info. That really makes me angry that your Doc would treat you that way and not answer you. He owes you an answer.
Hope you are feeling better soon!

hugs,
Oona

Stardreamer
Regular Member


Date Joined Mar 2005
Total Posts : 68
   Posted 6/6/2005 2:23 PM (GMT -7)   
My MY, I haven't had an MI, but I can tell you I have had numerous blockages that occur rather quickly,  like I started a couple of years ago with a blockage in Sept and was stented, then again in Dec, and again in Jan (was stented in different areas each time)  then I had a break and then pretty much have done the same thing again unitl I have had  8 angioplasties and 7 stents placed.  It happens quickly for me it is like I am ok and then suddenly here I go again--
 
I hope you recognize your symptoms so you are able to obtain help promptly--  I can't imagine why the cardio did not tell  you you had an MI-- Do you see h9im again soon??
Or did he just do your cath and you see another cardio?

Texrose
Regular Member


Date Joined May 2005
Total Posts : 30
   Posted 6/6/2005 8:46 PM (GMT -7)   

Thank you all for you comments and support.

Yes, I called for all medical records 7 days ago and when they did not arrive in todays mail, I called the hospital again.  They said they were mailed.  I need them in hand when I see the Cardio on Wednesday or i am cancelling the appointment.  Paronoia is setting in that they do not want to send them...The Cath doc is not who I am seeing.  He is the one who told hubby 5 times that I did not have  a heart attck but never produced for us the drawing of his cath before we left the hosptial even though we asked twice to see this.  He was no dummy.  He knew if he showed us the cath report indicating a UA/NonSTMI, that we would corner him for more information. I really feel this is the case.  he also figures we were some indigent dummies who would not asked questions and take his word as gospel truth and then quietly die in my sleep.  Sorry for my morbid feelings but hubby and I feel very down at this time. 

I heard today that HD is worse than a diagnosis of cancer.  I can attest to this.

Wishing everyone better days ahead.


Texrose
Regular Member


Date Joined May 2005
Total Posts : 30
   Posted 6/6/2005 8:50 PM (GMT -7)   

Stardreamer, have they ever told you why you have these blockages close to one another?  Are you diabetic?  Autoimmune disease?  How do you recognize these blockages? Thanks 


Famulus
Regular Member


Date Joined Jun 2005
Total Posts : 127
   Posted 6/6/2005 10:55 PM (GMT -7)   
TexRose....me again.
I was reading your earlier thread "Another so called event", and in it, you mentioned other possible causes for the A-fib's and the elevated Troponin levels, and that both could have been caused by drugs you were taking. Am I correct in assuming this is the same event you were talking about?

You said this: "I got into the site and it states that Trop levels can be elevated when one gets heparin.  I was given a heparin drip before leaving the ER room and before the Next Serum Heart Enzymes were taken.  I am remaining hopeful that this is the cause of the rise in Troponin and that the A-fib was the result of the Albuterol I took twice the night before...."

Therefore isn't it just as possible that you did not have UA/NSTEMI????
If I were you, I think that is the scenario I'd be latching onto.

I know this is very scary, and we sometimes fear the worst, but try to stay open until you have the records in hand and have a talk with your Doc.

BTW, I happen to think they were very aggressive in stenting you with a 40-60% block, but I'm not a Doc, and that is just my opinion.

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 6/6/2005 11:16 PM (GMT -7)   
A blockage of 40-60% is not a common percentage in which they would normally place a stent, but it does depend on the Dr. and the location of the blockage, size of the artery, along with they symptoms at the time.  Perhaps they felt this was appropriate for this particular blockage?
 
Normally, it's when an artery is 70% or more, as this is a dangerous procedure and anytime you do any invasive procedure such as this, unless it's absolutely necessary you run into risks that can be life threatening.  I know this, as my 3rd stent ruptured the artery during placement that was 100% blocked and I ended up with a triple bypass.
 
Wishing everyone the best!  Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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Texrose
Regular Member


Date Joined May 2005
Total Posts : 30
   Posted 6/7/2005 5:41 AM (GMT -7)   

Hello ladies,

Reading up on Cath/stents, normally they do not stent unless it is 70% or more.  This Stent doctor told us the % of blockage is in the eyes of the beholder!  One doctor may say 40%...One may say 50%, one says 60%.  I have the drawing of the Cath in December and the area they claimed they stented was CLEAR in December. When I questioned the cath doctor on this last week , he lifted up his pencil and asked me how long I thought the pencil was.  I said, 6".  he said, "no it is 7".   Hubby guessed 5 1/2". 

Now on the Heparin.  What I am interrupting on the Heparin is this, "if they use the area where the Heparin is dripping into the vein to get blood for various blood work, this area could cause errors in heart enzyme readings.  This should all be documented in the nurses notes of which I have not received yet. But, I know I had 4-5 high readings (have not seen all the lab results reports yet, either)  The time on these reports are also important as I remember once, the nurse taking blood from that Heparin site when she could not get a good vein on the other arm but looking back and racking my brain, I remember them also getting a good vein at various times and being told the Troponin level numbers.  They removed the Heparin just before the Cath and did not hook it back up.  Two more sets of blood were taken after that. (waiting to see reports) So, this is a grey area also as to what is truth and what is fiction.  The verdict is still out till I can see the blood reports and time listed.

I have an e-mail into one of the cardio doctors that wrote articles on Tropinin for his understanding on this.  I received a reply back that this cardiologist is out of town and shall return on the `13th of June so hopefully I will hear back soon.

I am also waiting to see EKG reports.  I did know in the ER room that the ER doctor stated the EKG showed A-fib but he never mentioned that it showed UA/NSTSMI.  He never mentioned the words, "heart attack" unless they are not suppose to.

Back to the Cath doctor. Most of our questions were answered with, "heart disease is a grey area". mad


Texrose
Regular Member


Date Joined May 2005
Total Posts : 30
   Posted 6/7/2005 3:03 PM (GMT -7)   

Hi all,

 

I received an e-mail back from an Internventional Cardiologist who has written articles on the net about Troponin levels.  His response to me was:

"Given your excellent ventricular function, it is unlikely that a troponin level of 5ng/mL is going to have any significant effect on your prognosis. Go on planning your life and enjoying your grandchildren. Buy that new car!

Of more concern to me is the A-FIB!  I suspect that you using the Albuterol Inhaler may have provoked the A-Fib-as you probably know, Albuterol is a beta agonist and increases the heart rate, predisposes it to arrhythmias.  Do they have you on Coumadin?"

*******************************

I wrote  him back and said NO to Coumadin although they did want me on this but with the newly placed stent, they wanted me on Plavix and said I could not be on both.  I told this doctor I was put on Sotolol for A-Fib.  I asked his thoughts as I feel I should be on Coumadin for 4 months.

He failed to mention the Heparin/Trop theory so I asked this again...

Will post more when I know more.  I see the regular Cardio doc tomorrow with hubby.

Should I buy that Mercedes?? eyes nono eyes nono yeah


Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 6/7/2005 5:23 PM (GMT -7)   

TexRose,

This is only my opinion, but I think the biggest question and suggestion on this whole thing that I can ask and make is are you happy with your cardiologist now?  If you are, then don't look for answers from Dr.'s on the net...they don't know your case like your own Dr. does from A to Z.  They've never examined you either.  If you are not happy with your cardiologist then I would really encourage you to talk to him and tell him this and try to remedy this situation, or fire him and find another Dr. that will answer your questions to your satisfaction!  This is your body and your health.  Make sure they include you on your health team!

Wishing you the very best and hoping someone can help you out with this soon!!  Big Hugs, Teri tongue


"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


Texrose
Regular Member


Date Joined May 2005
Total Posts : 30
   Posted 6/7/2005 8:25 PM (GMT -7)   
Hi Teri, Thanks for your concern but 68% of patients search the net for answers.  70% of patients are unhappy with their current health care providers.  These numbers are alarming.
 
I am an astute and well educated patient and will not do anything rash. 
 
I know of three ladies on line that came to Houston from various parts of the country to seek medical attention after coversing on line with well known physicians. All three were treated and now on their way to full recovery.  They all loved Houston but not the heat. redface
 
I received more information this evening that fit me to a tee.  Hubby and I were impressed with this physician. I am very happy I found him and grateful that he took the time to help me in my situation. 
 
I am not saying that all cases turn out well.  There is good and bad in everything.
 
Wishing everyone a good nights sleep.

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 6/7/2005 8:40 PM (GMT -7)   
I'm very glad that it did help you, TexRose!!-just wanted to make sure all was okay with you-And I am a worrier. :)

Hugs, Teri :)
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


heartangel
Veteran Member


Date Joined Mar 2004
Total Posts : 638
   Posted 6/8/2005 3:47 PM (GMT -7)   

TEX ROSE

Why does Autoimmune Disease have to do with yuor heart I know I have hashimotoes thyroiditis and get it checked scanned every 6months and I do know any typeof thyroid problem wether HYPER or HYPO can lead you into worse heart failure.

you know so much did you use to be a RN or something or just geting readding up on yuor condition for yuo are PO on how yu are being treated for you are a woman? I now women get diagonsed so many times wrong like I was too. bet bust of luck getting to the bottom of yuor problems.

Heidi


 Heidi
Be kind for everyone you meet is fighting a harder battle
Plato
 
 
 
Friends are angels who lift us to our feet when our wings
have trouble remembering to fly.
 
Mighty hands are guiding me to protect me
from what I cannot see
 
I am a SURVIVOR :)

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