MITRAL VALVE PROLAPSE

hi everyone! im just new in this board. i was diagnosed with MVP last january and im very symptomatic. my symptoms include chest pain, shortness of breath, lightheadness, palpitations, dizziness...anxiety and panic attack. i've had 2decho and treadmill stress test and been to 4 cardiologists already. im doing ok now though i still feel the symptoms but im thankful to God that this is just MVP and not a heart disease (though the symptoms itself are scary) anyone who has this too? we can share infos...thanks and God bless!

Welcome jhet, to HealingWell and I'm glad to see that you've  started this topic!!  There are many people that have this diagnosis of MVP, or Mitral Valve Prolapse and some go symptom free!

Others with more symptoms are treated with beta blockers-are you on anything as yet?!

I found a great informational site and thought you and others with MVP might like to take a look!!

Best Wishes and Hugs, Teri

http://www.merck.com/mmhe/sec03/ch028/ch028c.html#sec03-ch028-ch028c-604

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"Because he is he and I am I."......E. V. Lucas

Hi jhet

I too have a question on this subject, perhaps you can share some info with me? My friend is having a mitral valve replaced soon and will be on Warfarin afterwards. She is very concerned about the impact this will have on her life - she's a very sociable person who likes a drink. I think she's worried that her whole life will be taken over by meds and blood tests. Surely that need not happen?

Hey---i' was diagnosed w MVP back in 1978 (i'm 57 yrs old)--Listen--my main complaint is irregular beats (Arrythmia)----feels like i'm gonna die---they come in cycles---one wk i'm ok--then i get em in nunches. Had "loop monitor on FOUR different times (twice in LA--twice here on East coast)---Finally caught the darn things---SVT (Supraventricular Tachycardia---3 Different cardios told me nothing to worry about--including one in LA (Cedar-Sinai)--who is one of top in USA in arrythmias!!! Yet----these things continue--i'm on 25 mg Tenormin once/day.

ALSO----the darn fatigue!!!! All Drs reassured me--to live w it---I am NOT a candidate for ablation (as the arrythmias are not "dangerous"-----There is a GREAT newsletter/support group (e-mail me for info)----with a list of people to call or e-mail for support. Again---the darn SVT episodes....Fatigue....& headaches--anyone else have this problem...??? Rob

Thanks--Teri---you're most helpful. This Wed. me & my wife flying from East Coast to S. Dakota (visiting friends)---Teri ---i tell you the FEAR of these SVT episodes is driving me nuts!!!! I am on Tenormin--25 mg once/day---as stated i have been Reassured by 3 different cardiologists--don't woory---the SVTs were caught on "event recorder".....Drs say..."no big problem---but--darn--feels like my heart is coming outta my chest!!!!! My cardio nurse called me Fri--after i left message---told me IF i think i might be having a bad day (i go DAYS---without any problem--then DAYS of on & off SCT attacks!)---she told me to take an EXTRA Tenormin...in AM...(i take one at nite)-----as a preventative. So----i have MVP--with SVT-----am seeing an endocrinologist in S.Dakota cause my TSH was high last month with my cardio (5.4)-----MAYBE the underactive thyroid is contributing to my SVT...AND my faigue...AND my depression........BUT---all in all ---its this DARN SVT that has me scared---(i read the site on SVT---i can read all i want on that----BUT---Drs have reassured me---but---these things are SCARY!!!!!) Also---told IF my Thyroid is underactive i MAY have to take synthoid.......Will THIS help????? I HOPE...it does NOT give me more IRREGULAR BEATS!!!!! I'm a mess.........SOMEONE......give me some reassurance---i find OTHER patients....better than most Drs.....!!!!!! Thanks......someone get back....Wotan (Robert)

Hi Rob,

I have many of the same problems you do and a few more. I have SVT's also and have been on Amiodarone for some time now. It is generally used as the drug of last resort when dealing with arrythmias, but it works. I haven't had a problem with SVT since I was put on it. Unfortunately, Amiodarone can cause other problems in some people. I am one of those lucky ones that had some other arrythmia problems compounded by some other more serious existing heart and arterial problems.

The amirodarone definitely helped with the SVT. Maybe check with your doctor about it. I also have an ICD and the EP doctor was the one that prescribed this for me. It might be worth a try.

Steve

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