Pericarditis - Not Feeling Pain but Feeling a little Fatigue When Lying Down

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Daily Dil
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Date Joined Mar 2013
Total Posts : 1
   Posted 3/14/2013 3:14 AM (GMT -6)   
I was diagnosed with pericarditis on March 7, 2013. They took a EKG, blood test and chest X-ray and everything seemed fine. They gave me tordah while I was in hospital to ease the pain which helped. There after, they prescribed that I take 800 mg of Ibuprofen 3 times daily for pain and inflammation and omeprazole 1 time daily to ease the side effects of Ibuprofen on the stomach. It's been 3 days so far since I've been taking Ibuprofen, and the pain is gone for the most part (just a twitch every now and then)but I still feel a little fatigue and have a little problem with breathing when I lay down. Can someone explain whether there is a cause to remain concern? I am schedule to follow ups with my cardiologist.

CandyMaam
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Date Joined Mar 2013
Total Posts : 2
   Posted 3/15/2013 9:49 PM (GMT -6)   
With some people the pain and breathing are worse while lying down. This is common. You might want to prop yourself up a bit with an extra pillow.

I have pericarditis right now. I definitely feel worse lying down.

Good luck. Let us know how your doc appt goes.

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 3/16/2013 9:35 AM (GMT -6)   
DD,

The most common sign of acute pericarditis is sharp, stabbing chest pain. The pain usually comes on quickly. It often is felt in the middle or left side of the chest or over the front of the chest. You also may feel pain in one or both shoulders, the neck, back, and abdomen.

The pain tends to ease when you sit up and lean forward. Lying down and deep breathing worsens it. For some people, the pain feels like a dull ache or pressure in the chest.

CandyMaam gave you great input.

I hope you keep getting better every day.

 


~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"The wind blows, the sun rises, the snow falls and the ocean relentlessly pounds the shore. Life rolls on with fresh new possibilities at every turn."

KLJ26
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Date Joined Mar 2013
Total Posts : 1
   Posted 3/16/2013 7:02 PM (GMT -6)   
Hello everyone,

I am new to this site and have found it very informative, although I am sorry there are so many out there who are dismissed or misdiagnosed when presenting with pericarditis symptoms.  I believe that I had this for 3 months in 2012 and was shuffled from an ER, where I had the million dollar cardiac work-up and sent home (all clear from cardiac cath, EKG, ECG and cardiac enzymes), to my PCP who was convinced I had GERD. When treatment for that did not help and after having a completely clear upper endoscopy, he pretty much washed his hands and threw me back to cardiology. 
 
Well, by the time I got to a cardiologist, the symptoms had completely subsided. But just to make sure I had done everything I could to help rule out CAD, I scheduled a heart scan. The calcium score was "zero", meaning absolutely no calcification inside or outside of the scanned arteries.  The appointment with the cardiologist went well and he assured me that structurally there is nothing wrong with my heart, no blockages, ejection fraction was good and the muscle itself seemed strong, based on all of the medical documentation I had brought with me.  Unfortunately, since the symptoms had subsided, I still could not get a conclusive diagnosis.
 
On March 8, 2013, the pain in my chest began to creep in and by the middle of the afternoon I was in moderate discomfort.  I have worked in the disability field for years and for some reason, after all of this, I thought maybe this was pericarditis (the light went on).  I googled symptoms of pericarditis and I was having textbook symptoms.  I called the cardiologist, spoke to a nurse and she scheduled an appointment for me on 3/18/13, told me she was going to speak to the doctor and call me back.  Can I just say I love this office?!!  She called me back within 10 minutes and the doctor advised that I begin ibuprofen 800 mg 3x/day for inflammation.  But, if this did not help to relieve the pain, it probably was not pericarditis and to call them back.
Unfortunately, or maybe it was fortunate, it did not help and I ended up in th ER again a few days later with intense pain, but thankfully the ER doctor was willing to listen to the history and after all the cardiac protocals were completed and everything was normal, he ordered a CT scan, which showed the effusion.  I was admitted, given IV pain medication and began treatment with indocin.  I was in the hospital for nearly 3 days, but when the pain became manageable without IV dilaudid, I was allowed to go home.  I missed a week of work and hope to go back on Monday.
 
I guess what I want people to know is DO NOT let ER's send you home until they find out what is causing the pain.  I had 3 months of hell in 2012 and would not have if the ER doctor had had some real interest in determining the cause of the pain. I have been on Indocin now since 3/13/13 and the pain is manageable with aspirin and tylenol.  I am absolutely keeping the appointment on 3/18, and if the pain has not subsided more by then, meaning inflammation is reducing, I plan on speaking to the cardiologist about colchicine, as well. 
 
Thank you for reading this post.  I hope it helps someone struggling with these symptoms and cannot get a conclusive diagnosis. Insist on a CT scan and ECG--I truly believe had a CT scan not been performed, I would have had the same outcome as last year.

BlueRey
New Member


Date Joined Mar 2013
Total Posts : 1
   Posted 3/16/2013 11:36 PM (GMT -6)   
Hello, I'm just new to this site but I had a pericardiectomy last Jan 31, 2012 and was away from work for 1 year and 3 days to be exact. I was supposed to return last July 1, 2012 but our Company Nurse told me to finish the rehab up to Oct 2012. Unfortunately, I encountered blood pressure problems around Nov 2012 so they prescribed some pills to control it. By the last week of Jan 2013, my Cardiologist gave me the go-signal to return to work with no restrictions. I'm still on medication but my main goal right now is to stay fit by using the treadmill, lots of walking and eating "little bit of everything".
To Daily Dil, just follow what the Doctors say and all will be well. I was diagnosed with constrictive pericarditis after almost five years of taking lasiks to reduce water retention. They did a lot of tests and posed a lot of problems with my schedule both personal and work. I will post my story next time and I hope you get well.

Beth Louw
New Member


Date Joined Apr 2013
Total Posts : 1
   Posted 4/2/2013 10:50 AM (GMT -6)   
BlueRey, I would love to hear more about your condition that led to the decision to have the pericardiectomy....my husband has constrictive pericarditis, and it is time that we considered next steps, scary though they may be. Beth Louw Swellendam South Africa

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/3/2013 12:45 PM (GMT -6)   

Hello and welcome to HealingWell. 

Glad you've found our online community. It’s a great place to connect with others traveling the same road...you'll find much support, encouragement and advice from others who understand.

I've missed welcoming several new members so i thought I would do a big shout out welcome to all new comers. Glad you found us but sorry you are suffering with pericarditis. I am glad to see the new comers talking and sharing with each other - kudos to you. 

 


~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"The wind blows, the sun rises, the snow falls and the ocean relentlessly pounds the shore. Life rolls on with fresh new possibilities at every turn."

Post Edited (stkitt) : 6/27/2013 11:43:33 AM (GMT-6)


sheryl wheeler
New Member


Date Joined Jun 2013
Total Posts : 11
   Posted 6/26/2013 8:18 AM (GMT -6)   
pericarditis is easily diagnosed by properly reading an EKG and by symptoms. Unfortunately many young ER docs have not encountered this condition and do not recognize it. I was fortunate to have the second trip to the ER with a doc who did diagnose correctly. Rest and ibuprofen are the main cure. I also read everything on the net. I heard a gurgle in the heart one day and new immediately that it was fluid around the heart. The best natural diuretic is watermelon. I drove to the store bought a watermelon and ate the whole thing during that day and another one the next day. I also limited my water intake to try to dry myself out. It worked and I continue to eat watermelon but not near food intake as it will ferment. I have seen 2 naturopathic docs that specialize in heart conditions. I take a lot of supplements but do not have health insurance so I figure it is up to me to take care of this body. I am 60 years old and determined to recover. I slept 20 hours a day for the first month and you have to sleep almost sitting up. I tried to come off the ibuprofen at 4 weeks but had a bad attack. I think this condition has been lingering around the heart for years before it became bad. I had the shoulder pain and a little heart pain for a long time. A virus a week before the attack. I am not going to do prednisone or colchisine unless it is not gone at 3 months. Prednisone can cause it to come back later and colchisine can affect bone marrow. Ibuprofen is a miracle drug. I have no pain at 600mg every 4 hours. If i go longer i have some pain. dont stop the ibuprofen until it is all gone or the inflammation can come back. I am back at work but i try not to move too fast or stress my heart. Tai chi is my exercise and slow walks. good luck everyone.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/27/2013 11:49 AM (GMT -6)   
 

Certain patterns on ECG can suggest a pericardial effusion or pericarditis. 

The first stage in the diagnosis of pericarditis is to ask about your symptoms and recent medical history, such as whether you have recently had a chest infection or been in an accident.

The next stage is to listen to your heart with a stethoscope. Pericarditis can change the sound of your heartbeat to a distinctive rasping or grating sound, which is clearly detected by the stethoscope.

You may have blood tests to check for infections, and to check how organs such as your liver and kidneys are functioning.

In some cases, a needle may be used to drain any fluid from around your heart so it can be tested.

A diagnosis is usually confirmed by electrocardiogram (ECG). During an ECG, electrodes are placed on your skin to measure the electrical activity of your heart.

People with pericarditis usually experience a distinctive change in the electrical activity of the heart, which can be detected with an ECG.

Further testing is only usually required if the test described above proves negative or you have additional symptoms not normally associated with pericarditis, such as swelling of the arms and legs or extreme tiredness.

These tests may include:

a chest X-ray
a magnetic resonance imaging (MRI) scan
a computer tomography (CT) scan
an echocardiogram
 

I would not encourage anyone to eat a whole watermelon to cause dieuresis.

The EKG Over-Read-Service is designed to provide a quick EKG interpretation to requesting Physician. Many smaller hospitals as well as clinics use this service with no cost to the patient.

Hope you all stick with us and keep on posting.

Kindly,

Kitt


~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"The wind blows, the sun rises, the snow falls and the ocean relentlessly pounds the shore. Life rolls on with fresh new possibilities at every turn."

sheryl wheeler
New Member


Date Joined Jun 2013
Total Posts : 11
   Posted 6/27/2013 3:11 PM (GMT -6)   
I have had pericarditis for almost 8 weeks. for about 6 weeks I have had a strange red circle under my chin about 3 inches in diameter. It is red with a white ring around it. Any ideas what this is. thank you

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/27/2013 5:00 PM (GMT -6)   
I am sorry, but I have no idea what it is; did you ask your Dr. about this strange phenomenon ?
 
Are you taking any medication for your dx of pericarditis?
 
Be well,
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"The wind blows, the sun rises, the snow falls and the ocean relentlessly pounds the shore. Life rolls on with fresh new possibilities at every turn."

sheryl wheeler
New Member


Date Joined Jun 2013
Total Posts : 11
   Posted 6/27/2013 8:29 PM (GMT -6)   
I am only taking Ibuprofen. Can't find any info on what it could be. Could be a stone in a salivary gland. I am going to see my doc on Monday. She might have some ideas. I take 2400mg of Ibuprofen a day. It might be a reaction. Thank you Kitt, I dont think it is causing any problem. Sheryl

sheryl wheeler
New Member


Date Joined Jun 2013
Total Posts : 11
   Posted 6/28/2013 8:20 AM (GMT -6)   
I have this strange red circle on my throat just below the chin and now I have some throat pain and my sternum is swollen. I have a little achey feeling when I breathe but no chest pain. I am still taking the 600mg of Ibuprofen every 4 hours when I am awake. I have a little ear pain in the left ear. I dont know if this is related to the pericarditis or a reaction to the ibuprofen. Sternum hurts a little when I breathe. I have an appt with my naturopath on monday, 3 days from now but i am thinking I should see a cardiologist instead. I have another naturopathic doctor that specializes in cardiology that I saw initially after I was diagnosed at the ER. I am working and it is very busy at work but I will be off for 2 days soon. I have that 3 inch diameter red circle under my chin and my palms and bottom of the feet are redder than normal. I am 60 years old with no previous heath issues other than under active thyroid. I have medication for the thyroid. My pericarditis is from a virus. I also think I have fibromyalgia. Thank you for any input.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/28/2013 8:59 AM (GMT -6)   
SW,  I am sorry you had a tough night.  I had a blocked salivary gland once and the whole left side of my face puffed up suddenly with pain into my ear and when I tried to chew.  My Dr. did order and MRI to check for any serious medical problem.
 
Here is a site that will answer questions re your concerns:
 
 
Your pain and swelling concern me; do you have access to a walk-in- clinic or same day care clinic?  I would recommend that you call your Dr. or your clinic triage nurse and see what they advise you to do today.  It is a long week-end so today would be much easier to find someone to guide you.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"The wind blows, the sun rises, the snow falls and the ocean relentlessly pounds the shore. Life rolls on with fresh new possibilities at every turn."

sheryl wheeler
New Member


Date Joined Jun 2013
Total Posts : 11
   Posted 6/28/2013 2:56 PM (GMT -6)   
Kitt, thank you for your response. I think it is probably not a stone in the salivary gland. I read about stones and that usually causes a lot of swelling. I think it is some kind of response to the ibuprofen or part of the pericarditis. I will have to wait till monday to see my doctor but i think I want to try the colchicine. My pericarditis is almost 8 weeks now. I have this swelling of the sternum and some pain when i breathe. My son is also a doctor but specializing in male hormones. I try not to involve him in my health issues in case I die. He should not be my doctor. He does do research on my condition. thank you, sheryl

sheryl wheeler
New Member


Date Joined Jun 2013
Total Posts : 11
   Posted 7/2/2013 12:32 PM (GMT -6)   
Kitt, I have seen my doc for my pericarditis. thought it was viral but I have or have had lyme disease. I have a bullseye mark under my chin. Now I think it is lyme. I am going to have a new test for lyme and some other tests. I might have to have fluid extracted and have it tested. My doc said to get accurate test it is tested on brain material . I may have to go to singapore for medical help. too expensive in the U.S. I have no insurance. Maybe just the lyme disease test and the bullseye are enough proof it is lyme related pericarditis. thank you for any advice, sheryl

jonathan123
New Member


Date Joined Jul 2013
Total Posts : 2
   Posted 7/2/2013 11:41 PM (GMT -6)   
Hi, I am new to the site as well, and would like to post my experience with pericarditis. I'm 16 years old, and I have had chronic pericarditis for over 2 years now. i have have been to so many doctors, yet no one seems to be able to find a root cause and have been put on so much medication, and nothing seems to work. Last year, my doctor put me on steriods in an effort to help the inflammation. Now, we keep trying to slowly ween off of the steriods, only to have a reoccurrence of my pericarditis every time we go down to a certain dose. I missed so much school last year because of frequent reccurences that i had to drop out for the year, and now i will have to repeat the grade. Pericarditis has ruined my life, and i honestly don't know what to do. I've gained a lot of weight do to the medication, i don't see myself being able to do school next year full time because the pericarditis comes so often, and nothing the doctors are doing seems to help. i just really want my life back.

sheryl wheeler
New Member


Date Joined Jun 2013
Total Posts : 11
   Posted 7/3/2013 7:48 AM (GMT -6)   
johnathan, Have thy discovered the cause of your pericarditis. Fluid need to be extracted from the heart to area next to the heart to determine the cause. The cause needs to be treated so your pericarditis will not return. You are young you can recover and have a full life. get your doc to test the fluid. I think mine is from lyme disease. Dont give up you can be well in a few month if the cause is treated. Prednisone is not a good treatment and causes it to just come back. dont just stop the prednisone. talk to your doctor or get a new doctor that will test you. Stay positive and happy. You need to heal there is hope. You are young and you will have a happy life. It will get better. I am 60 years old but I know i will get better. Keep doing research on the internet. we are so lucky to have this to help us find out how to heal. In times past people just died without help and suffered. You can overcome this. Sheryl

jonathan123
New Member


Date Joined Jul 2013
Total Posts : 2
   Posted 7/3/2013 10:44 PM (GMT -6)   
thanks sheryl. I've been in the hospital over 10 times in the last two years for flare ups, and they have tested everything. i feel like i've seen every type of doctor, but none seems to be able to find a root cause. My pericarditis flare ups usually have a lot of inflammation, but only a small amount of fluid, so they can't remove the fluid. it's just so frustrating.

sheryl wheeler
New Member


Date Joined Jun 2013
Total Posts : 11
   Posted 7/4/2013 7:07 AM (GMT -6)   
Jonathan, have they tested you for lyme disease. I am only taking ibuprofen. I have returned to work. I only stayed home for the first month. You have to be careful taking meds that suppress the immune system. talk to your doc. this forum is very helpful and I see that others are in the same boat. I must say I have not suffered as much as others. I have no pain as long as I stay on 600mg every 4 hours but I cant do this forever. I have thought to go to singapore to have fluid extracted and tested. what if they cannot get any fluid like in your case, hmm, new dilemma. I thought I had this figured out. I am having lots of blood work done next week. my son is a doc and he thinks he can figure it out but maybe not. I am going to find out if i still have lyme and maybe that is the cause.we need a magic wand or the medical device from star trek to find the cause and treat the cause not just the result. have you been on colchisine with ibuprofen. I am still leary of trying the colchisine. I eat an extreme healthy diet. I juice kale,and eat mostly from my garden with some chicken. Black seed is suppose to cure all disease, I will try anything. Have hope Jonathan, do your research. best wishes, sheryl

SouthernAllStars
Regular Member


Date Joined Jan 2013
Total Posts : 30
   Posted 7/24/2013 1:01 PM (GMT -6)   
I'm a year with pericarditis. I'm currently trying ibuprofen 2400 + 2.5mg of colchicine. I also think rest is very important I seem to feel OK after a lot of rest but flare when I'm even remotely active (even washing dishes).

I thought it would go away by now but it never has. I wish it could go away for a day or two. The pain is not so bad but still tired of it.

sheryl i am surprised you are back to work. I would highly recommend for you to rest until it truly goes away otherwise it could prolong the time to recover. I am not a doctor but ive seen it happen in other forums/peoples experiences. I will also try ibuprofen the same way you try it, maybe it will work better.

Post Edited (ideservethis88) : 7/24/2013 1:04:48 PM (GMT-6)


sheryl wheeler
New Member


Date Joined Jun 2013
Total Posts : 11
   Posted 7/24/2013 5:04 PM (GMT -6)   
Hi, this is sheryl. I still have signs of pericarditis. I went to the ER on May 3rd. I am on colchicine .6mg and 600mg ibuprofen every 4 hours 24 hours a day. Still cant back off on the ibuprofen or i have chest pain. I am going to start taking a baby aspirin also. almost 3 months on ibuprofen and no kidney or liver distress. Now we think my pericarditis is due to lyme disease. So I have gone back on lyme disease medication. I was bit by a tick 4 years ago, test positive and did the cure meds but evidently it did not get rid of it. I also have a bullseye mark on my neck. I have no symptoms of lyme so i thought it was gone. I did take a month off from work but i had to go back to work. But now i am on so many meds it is a full time job just to take the pills so i am going to take off some time until i get better. I think it will take 3 more months to get rid of this.i only started colchicine a few weeks ago. I think it is starting to work. I still have a lot of energy and i have not slept during the day for 2 weeks so i think i am getting better. I think i have a lot of fluid around the heart it kind of bounces when i am driving. good luck everybody. sheryl Being careful to not miss a dose of ibuprofen really helps with the pain.

kortnie21
Regular Member


Date Joined Jun 2013
Total Posts : 493
   Posted 7/31/2013 9:18 PM (GMT -6)   
I'm new to this part of the forum I was recently diagnosed with pericarditis and I'm not taking anything actually my cardiologist never told me about it my family doc did and I've been hearing gurgling from my heart so I'm calling the cardiologist back tomorrow and scheduling an apt! How do they take fluid from the sac? Do they put you to sleep?

Abstrkt
New Member


Date Joined Nov 2017
Total Posts : 3
   Posted 11/11/2017 9:24 PM (GMT -6)   
Hi I'm John. 27 years old. Glad to read your experiences. Make me feel a little better. I've had pericarditis for 3 months now and was starting to feel hopeless. I've been reading a lot about pericarditis and was starting to think it might be forming into constrictive pericarditis. I'm glad to see people can still recover after the 3 month mark. The only question I have is, did anyone have elevated jugular vein pressure? I can actually feel the pressure in my neck going up to my right ear. It doesn't look distended but bothers me. Been feeling really short of breath because I've been cycling to work and my job is labor intensive. Going to have to stop working now that I see it's making it worse... Feeling hopeful that if I stop working and stick to the ibuprofen I will get better. Thank you for sharing and hopefully someone replies with some insight.

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20164
   Posted 11/11/2017 11:04 PM (GMT -6)   
welcome, very old thread, have not seen any of these members around. cycling makes ya ticker work harder as it got tp pump more, i would reduce the cycling first, might help. esp with breathing and pain. keep tal;king with ya doc. all the best. ht.
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