Posted 3/17/2013 10:01 AM (GMT -6)
In pediatrics, we also do stenting when possible for coarctation of the aorta. I'd ask about that.
Also, as a fellow adult with congenital heart disease (I have/had bicuspid aortic valve disease), it's a really, really good idea to find an adult congenital heart disease clinic. (http://www.emoryhealthcare.org/congenital-heart/index.html)
This area of cardiac services is becoming more popular as more and more kids are living longer with heart defects. Basically, you work with a pediatric cardiologist and an adult cardiologist. The peds cardio will better understand the anatomy of your heart, as will a pediatric cardiothoracic surgeon.
I had open heart surgery last year to replace my aortic valve.