My recent diagnosis is stiff heart syndrome. I am taking Bystolic, only tolerating 2.5 mg per day. My blood pressures are good with Bystolic, only sometimes raising too high ( 160/107) when exerting myself.
I'm looking to understand this disorder better, as there is little input from my Dr on how to manage this other than the medicine. I have always been a very active person and this is limiting my activity significantly (heavy pressure in chest in doing things I used to do routinely). I do get swelling in my stomach and ankles routinely. I am seriously limiting salt intake. Heat/humidity make me worse.
What is the prognosis for stiff heart (based on the echo they surmise
mine is from uncontrolled high blood pressure)... what activities are acceptable and what is usual management of this disorder?
I appreciate any and all information... and one more question is it always amyloidosis or is stiff heart not always about deposits in the heart? I do have two genes for hemochromatosis (father and brother had it), they test me once a year and so far it seems I do not have it. I am 72 years old, female. Thank you.