Newbie to site...runner with PFO questions

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superheart
New Member


Date Joined Apr 2013
Total Posts : 2
   Posted 4/9/2013 12:10 PM (GMT -6)   
Hi All,

I am new to this site but not new to heart issues :( I have RVOT and had an ablation of my rt ventricle 3 yrs ago. I am 40 and an avid athlete. My RVOT was found when I would pass out during races. After the ablation I was feeling great and fully recovered....yes it took 10-11 months to get back to where I was which was frustrating but I had so many wonderful friends who walked/jogged with me on my road to recovery.
Well, that was the short story and now for about a year, I have been struggling big time! I am so tired (which was one of the most annoying symptoms of my RVOT) lightheaded all the time and have such bad shortness of breath. Before, my ablation I was about a 1:45 half marathoner and 1 yr post ablation I was back to about 1:50. Please don't get me wrong....I am so grateful that I can still run that I really don't care how fast I am running but the frustrating part is that it no matter my speed running is sooooo hard and miserable for me. Running/exercising has always been my outlet and running with my friends has always made everything better. I can barely breath at an 11 min pace and forget about carrying on a conversation. When I spoke to my cardio he sent me to the pulmonary dr and they tested everything and my VO2max was amazing so it was not my lungs. Next, during a stress test my O2 dropped to below 80% and I had to stop since I almost passed out. In Oct, I woke up in the middle of night with left arm paralysis. I called my cardio and was sent to the Neuro for an emergency MRI.....yes he thought I'd had a stroke. Nothing on the MRI but it could have been an TIA or massive migraine. Oh, yes I have had consistent migraines with auras all my life and just have grown to live with it....I am a suck it up and deal with it type of person. I've also had left arm weakness and have found that I can't open jars anymore. Bottom line is that I have become pretty much exercise intolerant. I can barely keep up with my husband on a walk and I am usually the one yelling at him to move it :) I recently went and saw another cardio who thinks I may have PFO and given all my symptoms. I was shocked....um after ALL the tests I have had trying to figure out what is going on with me. I would have thought they'd have found it. Apparently TEE is the way to go so I am now trying to get that scheduled.
What I was wondering is if any of you had desaturation of your O2? and what were your symptoms before they figured it out?
yeah yeah yeah
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