I am very sorry dolson! I'm sure you have been through a lot with all this. I haven't heard of that disorder but there are quite a few. I have Multiple System Atrophy diagnosed in 2005 & Multiple Sclerosis diagnosed 2001. I thought MS was bad but an Autonomic disorder is scary and simply hell.
I feel for you really and am here if you need anything. I don't think too far ahead or plan things anymore. I never know how im gonna feel and most usually it's not good. However, trying to stay positive and keeping my focus on today helps greatly.
Please keep posting and keeping us updated on how your doing.