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bekah64429
New Member


Date Joined Jul 2005
Total Posts : 3
   Posted 7/1/2005 11:56 PM (GMT -6)   
I just turned 24 less than one month ago, and 5 days ago I was diagnosed with a PFO(patent foramen ovale ) I'd never heard of such a thing before. The dr who did my bubble echo guarenteed me before the test that they would find nothing wrong with my heart. Come to find out, she was wrong. I've been reading and reading for the past few days, and the more I read the more freaked out I get. The dr told me they don't usually do anything about a PFO until I was to have a stroke. Everyone says I'm young and not to worry about it, although  I have read about people my age and younger having a stroke caused by nothing else except the PFO. I'm not really sure what I'm doing here in this forum, due to I've never used a forum before. I'm just freaking out. I've been having these "episodes" which the cardiologist tells me are anxiety attacks, and nothing to do with this new found hole in my heart. I've had anxiety attacks for as long as I can remember, and these are nothing like them. I can't feel my legs or hands, and my mom says my mouth turns blue, and my face white as a ghost. Doesn't sound like or feel like any anxiety attack I've ever had. I don't pass out. I can't speak, although I can hear what's going on around me. These have only been going on recently, which is why I went to the cardilogist to begin with. I also last month was put on progestrone, due to the fact I had 5 periods in 9 weeks...come to find out tonight as I was reading...progestrone can cause blood clots, which is what the dr said causes a stroke with a PFO. I don't know what to do, I'm scared to death.

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 7/2/2005 12:19 AM (GMT -6)   
Hi and Welcome, Bekah, to HealingWell!! tongue
You've come to the right place!  yeah We've had a few people lately that have come here with the PFO diagnosis and I've done a bit of research on this, so I can imagine you're a bit freaked out!
 
You are very young to have to deal with Heart disease of any kind, but it does happen. sad
 
I have found a very reputable site that talks about the Patent Foramen Ovale and I hope this helps.
 
 
One thing that I can mention to you is that I've never heard of your symptoms as ones that match the PFO symptoms.  That doesn't mean it can't be, but if you've seen a Dr. and he or she feels this is not part of it, you are always encouraged to seek a 2nd opinion!!  We do have an anxiety Forum here and you are more than welcome as a member of HealingWell, to check that or any other forum out as well.
 
I hope this helps you, Beckah!! - and I wish you the best!
Hugs, Teri tongue
 
Please come back whenever you have a any questions - I hope that I've helped you?!
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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bekah64429
New Member


Date Joined Jul 2005
Total Posts : 3
   Posted 7/2/2005 9:34 AM (GMT -6)   
Wow, that was quick...just being able to voice my concerns helped alot. Thanks for the web page, I had already read that one. I've been seeing alot of "facts" and things. Although I'm not the kind of person who lives based on "what are the odds of that happening" Everytime I get in an airplane I'm convinced it will crash..I'm the person who always says "It could happen" Probably where most of my anxiety does come from, oh and thank for letting me know about the anxiety forums, I will have to check those out too. Thanks~Bekah

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 7/2/2005 10:45 AM (GMT -6)   
Bekah, keep in touch with us and let us know how you're doing!!
 
Big Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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Vikki1975
Regular Member


Date Joined May 2005
Total Posts : 190
   Posted 7/3/2005 12:26 PM (GMT -6)   

hi there.  I have  PFO and am only 29.  Was found this year.  I know a lot about them if you want advice!  You can email me at iancoughlin@dsl.pipex.com

happy to chat to you.

i think your attacks may be due to anxiety.  I have had all these symptoms too, and I think it can be anxiety.  haveing said that, ill happliy disucss any thing with you in detail if you want to email me.

 

regards, Vikki


Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 7/3/2005 6:34 PM (GMT -6)   
Hi Vickki!! tongue
 
How have you been doing?! 
 
Anxiety or Panic attacks are much more prevalent than I've ever noticed before in a lot of people - I've had them in the past myself!  Hope they stay there, too. yeah I suppose maybe more people admit to them as they are talked about so much more, plus with the computer era we can stay on top of health issues much more easily!
 
Are they just watching your PFO?, are you on med.'s or anything?
 
Please stay in touch!
 
Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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V00Jeff
New Member


Date Joined Jul 2005
Total Posts : 1
   Posted 7/15/2005 8:40 PM (GMT 0)   
I just got diagnosed with a PFO, and I'm only 23 (well, they're not 100% sure yet, but ...). I had a seizure and lost consciousness for about a minute for the first time in my life just two weeks ago. When that happened, I was really afraid that I had something completely incurable and life-threatening, like a brain tumor. When the doc first described the PFO problem, I was freaked out ... but after thinking about it, I've realized that it could have been a lot worse.

I would try to think of it that way, too ... Bekkah. Your blackouts are probably scary. But at least you know, now, what caused them. And the PFO thing is very treatable, either with aspirin or the closure procedure. Isn't it so much better that you know that you have this problem, rather than some other worse issue like a more serious heart defect or, even worse, some kind of brain defect?

One question for anyone that understands the treatment procedure for a PFO. My doc was trying to refer me to a PFO specialist at Duke, but the specialist asked me to have a neurology consultation first. Is this standard procedure for PFO's? Or does it indicate that perhaps they think something else is going on? I had an EEG and an MRI of the head, and I was told that they did not show anything abnormal. I had thought that the PFO was the end of my worries, but now I am beginning to wonder if the Docs think that I may have some other problem.

Also, somewhere I read that taking blood thinners such as aspirin puts you at risk for internal bleeding, including internal bleeding of the brain. I'm currently on very small doses of aspirin. Does anyone know how common this risk happens?e

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 7/15/2005 7:37 PM (GMT -6)   
Hi Jeff and Welcome to HealingWell!! tongue
 
I found a site that you may like to take a look at...
I'm not sure if it explains everything, but perhaps will give you a lead as to what they are looking at.
 
I do not have PFO, however I did have a stroke after my bypass and it left me with migraines with auras and seizure activity, which was seen on the EEG, coming from the stroke damaged area.
 
I've never had an actual seizure that I'm aware of...I'm going in this week to try another med.  The first one gave me some problems.  I do see a neurologist for all of this.
 
Please keep in touch and let me know what happens!!
 
Best of luck to you, Jeff!!  Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 7/15/2005 7:38 PM (GMT -6)   
By the way, Jeff, you seem to have a really great attitude re all this!! That's a great first step!

Hugs, Teri :)
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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bekah64429
New Member


Date Joined Jul 2005
Total Posts : 3
   Posted 7/17/2005 11:28 AM (GMT -6)   

Jeff, Well I would think of it as a good thing that I now know what's causing these "episodes" but my cardiologist told me that it has nothing to do with my PFO. I'm going to see the neurologist on August 9th. I don't care for the hospital I go to, but I don't have much choice considering I don't have medical insurance. They also told me closure wasn't an option. She said they won't do anything about it until I have a stroke!! She didn't say the size of the PFO, nor did she even tell me what PFO stood for. Everything I have learned about I learned online. Pretty sad if you ask me, which is why I'm gonna do some looking into getting a second opinion. My regular dr doesn't know anything about a PFO, so she's gonna do some research.

I'm not sure if going to the neurologist is standard testing after being diagnosed with a PFO. The cardiologist didn't say anything to me about it, it's my dr who's sendong me there, because apparently the episodes and PFO have no connection. I have already been to the endocrinologist, he said my thyroid is large and my levels are on the low side, but nothing I need medication for.

As for the asprin, I'm alergic, so I have read up on some other ways to keep my blood thin, I found that purple grape juice is just as good, and red wines...veggies...there were quite a few different things, I'll try to find the page for you.

I also am on medication for other things, which I now have stopped taking, because they could cause blood clots. I'm not taking this PFO lightly, although they say it's not a big deal until you have a stroke. Well I would like to prevent a stroke, so I'm reading everything I can get my hands on. Good luck to you Jeff, feel free to email me, seems like we're in the same boat. Bekah     trubekah@hotmail.com


Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 7/17/2005 11:43 AM (GMT -6)   
Hi bekah!  I'm glad to see you check in here - and I think you are absolutely right about seeking a 2nd opinion!  I wish I had a few more answers for you, but you seem to be on the right track...
 
Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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littlebuger
New Member


Date Joined Sep 2005
Total Posts : 12
   Posted 9/16/2005 6:34 AM (GMT -6)   
WOW .. I'm in the same scare .. had the stroke with a PFO .and now i'm lost .. they would like to do a study to close the hole without the open heart surgery?? any help appreciated ..
anyone have the PFO closure ??
thanks Dennis

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 9/16/2005 3:43 PM (GMT -6)   
Hi Dennis! tongue
 
I'm still checking but in the meantime you may want to take a look at couple of these sites...Hugs, Teri tongue
 
Does this sound familiar?
This site you need to scroll further down to read...
http://www.americanheart.org/presenter.jhtml?identifier=3025019
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 9/17/2005 6:18 PM (GMT -6)   
Hi everyone!  tongue Hope you are all doing okay?  A friend of mine pointed out an article that I thought you might find interesting. 
 
Do you have migraines?? 
 
Bunches of Hugs, Teri tongue
 
Can a heart operation really cure migraine?
 
The heart condition, called patent foramen ovale (PFO), is present in up to a quarter of the population, and is thought to cause tiny blood clots and chemicals which travel from the heart to the brain, where they can cause migraines.
 
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


Vikki1975
Regular Member


Date Joined May 2005
Total Posts : 190
   Posted 9/20/2005 3:16 PM (GMT -6)   
hi Bek.  Any news?  I did post months ago (at the top here).  How are you doing?  xxx
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