New to this site after pericardectomy, still having PAIN?

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SwampDonkey
New Member


Date Joined Oct 2013
Total Posts : 2
   Posted 10/2/2013 10:22 PM (GMT -6)   
 Hello my name is Scott,  in 2010 I was having some very bad chest pains but ignored them thinking they would just go away. I had pains in my left side that became very sharp when taking a deep breath. I finally gave in and went to the hospital for a chest x-ray and was told that I had a broken rib and that was the cause of the pain. I could not remember breaking a rib and after racing motocross I knew when ever I broke a rib :-). My Wife and I were going to the everglades for 5 days and I was concerned as there is no emergency care down in the everglades. When down there I got worse everyday I could not breath and had to sleep sitting up because it felt like a bowling ball rolling around in my chest. I continued to fish and came back early to return to work. The day I returned back to work I felt worse than ever, cold sweats, fever, couldn't breath and no energy. My mother stopped by because my wife called her and told on me for going to work looking like death, I am sort hard headed. My mother was an OR tech and one look at me and I was on my way to the E.R. and 20 mins later I was life flighted to Tampa General where I was informed I was going in for open heart surgery and my bp was too low to put me under so I would be awake...fun. People were flying around everyplace and a voice from behind me explained my heart was just quivering and I had less that 30 mins to live. They gave me a local and put me in a twilight state while they gut me open and drained 18 ounces of fluid off my heart. Two weeks later Dr. Cedric Shefield from the Tampa transplant institute opened me back up and removed my pericardial sack because it had become thick and hard and was keeping my heart from beating properly. 3 years later I am still feeling a lot of pain in my left lung. I went to Mayo clinic in Jacksonville Fl and they ran several test one being a cat scan that revealed my heart had grown to my lung with scar tissue and I now have finger like scar tissue going through my left lung. I am wondering if anyone else has had this issue? I have not paid much attention to my health as of late as our daughter was killed in a car accident last August a month before her 19th birthday. I am turning 44 this October and we also have a 8 year old Son and I am concerned with my own mortality for the sake of my son and my wife. I know she could not deal with any more than she has already faced. Her Faith is strong and she is an incredible Lady but I would like to be able to give her some good news about my health. I am hoping someone here has some insight as to what is happening to me. Thank you all for your time and consideration. God Bless you all.

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 10/5/2013 7:55 PM (GMT -6)   
 
Hello, I am Kitt, one of the  moderators for the  Heart & Cardiovascular Disease Forum. Please accept my deepest sympathy not only for the untimely loss of your daughter, but also for the tragic circumstances surrounding her death.
 
I can understand why you have not been thinking of yourself as of late but you are on track in finding out what treatment can be done for you.  I have never seen anyone post a similar problem to yours.
 
I am going to post the link to Cleveland Clinic and suggest that you talk with them as they are ranked # 1 in the country in regards to Cardiac problems.  It may be possible to surgically remove the scar tissue but I will admit that I do not know thus Cleveland Clinic.
 
 
I understand why you want to be able to give your wife good news re your health and I suspect you are honoring your daughter's memory also by taking care of yourself.  Now I would like you to consider doing this for yourself as you are obviously a kind and loving husband and father and you have the right to be healthy. I too lost a son to a car crash when he was just 21 ( 23 years ago already).  Your daughter will be forever in your heart.
 
My email is open if you ever want to send me a message or you just need someone to talk with. I am open for venting too if you ever need someone to listen. Just click on the blue envelope beneath my name of the left hand side of this screen.
 
Blessings and prayers to both you and your wife.
Kitt
 
God Bless,
Kitt
 
 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

SwampDonkey
New Member


Date Joined Oct 2013
Total Posts : 2
   Posted 10/7/2013 7:51 AM (GMT -6)   
Thank you so much for your kind words and your response. I have gone to the Mayo clinic and Tampa transplant institute but I am willing to try anything. I know there is a Cleveland Clinic here in Florida. I am as of today back on a strong dose of prednisone because of the extreme pain and hoping it will help short term. The Methotrexate is a better long term solution but the long term results from metho to me in the long run is much more detrimental to my health. I am going to get a referral to Cleveland clinic. Thank you again for your response. God Bless you.
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