Pericardiectomy and weight loss

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D R Johnson
New Member


Date Joined Oct 2013
Total Posts : 14
   Posted 10/31/2013 11:26 AM (GMT -6)   
I am 52, male with 30+ years of asthma treatment and now scheduled for pericardiectomy with Dr. Schaff at Mayo Clinic Dec. 12, 2013. In March 2012, my severe symptoms began with self admission into emergency room care. Severe shortness of breath, given breathing treatments, pericardial effusion noted. Released to see primary care doctor who began treatment with Lasix and 30 day follow up MRI. Pericardial effusion dissipated referred to cardiologist.

Cardiologist performed Lexiscan and MRI, released back to primary care doctor with no heart problem diagnosis in May 2012.

Continued Lasix with monthly follow ups with primary care doctor, but lower leg and abdomen swelling began to get worse. In January 2013 went to Cooper Clinic in Dallas for full physical. Failed treadmill miserably. Full body scan revealed cloudy lungs, swollen lymph nodes in chest and upper abdomen and pleural effusion. Referred to pulmonologists.

In late Jan. 2013, pulmonologist's clinical diagnosis was deep vein thrombosis embolism and immediate lower leg ultrasounds ordered. All test results negative and referred to Vein Cardiovascular and Thorasic surgeon.

This doctor recommended biopsy's of lung tissue and lymp nodes. Two separate surgeries performed in Feb 2013 with lung biopsy Feb. 6, 2013, and Chest lymph node biopsy on Feb 14, 2013. Lung biopsy was negative, day of lymph node biopsy my family was informed I had lymphoma cancer. Five days later, lymphoma diagnosis was retracted and referred to see a rheumatologist and connective tissue disease doctor.

Began seeing rheumatologist in March 2013. Lower leg edema pitting and significant abdominal swelling getting worse. Many different anti-inflammatory drugs prescribed through Aug 2013, but no improvement or firm diagnosis. Weight has now increased to approx. 350 pounds. I am 6' 2" and unable to perform any exercise due to severe fatigue and lack of breath. An issue I have dealt with for some 3-5 years where weight used to be 240 pounds.

Contacted Mayo in August 2013 with scheduled September apppointments. Initial Mayo cardiology clinical diagnosis was negative for constrictive pericarditis. Other Mayo appointments with Pulmonology, rheumatology, lymphodema and no firm diagnosis after some 15 blood test, Echo's, X-rays, lymphoscintigraphy.

After 7 days and no diagnosis at Mayo, initial cardiologist suggested I stay for another day and have another MRI with dye performed even though most recent was performed July 27, 2013 by rheumatologist.

Report was interpreted as Constrictive pericarditis. Follow up with another Mayo cardiologist confirmed with 80% confidence same diagnosis and recommended pericardiectomy, preceded by heart cath on Dec. 11th, 2013 to confirm pressures in heart prior to pericardiectomy on Dec. 12, 2013.

All of that said, I have not been able to find any substantial feedback from previous pericardiectomy patients as to amount of weight loss experienced during first 30 days, 180 days and 1 year. Any feedback would be appreciated.

Post Edited (D R Johnson) : 11/20/2013 7:27:54 AM (GMT-7)


stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 11/2/2013 4:31 PM (GMT -6)   
 
First of all,  I am sorry to read what a rough time you have had and the many different dx, tests ETC that you have been through. I read your post several times and I am not sure I understand your question re weight loss. I will answer the best that I can.
 
One person's ideal body weight may be completely different from another's. If you are looking for how much weight a person looses in water weight you are bound to be different as you must factor in your health condition and medications you are taking.
 
The body mass index (BMI) is a number derived from a formula, used to compare and analyze the health effects of weight on people of all ages and heights. 18.5 - 24.9 = Normal
 
Your body mass index measurement combined with your Waist Circumference measurement can be used to determine obesity and the increased risk for various diseases. A high waist circumference is often associated with an increased risk for type 2 diabetes, cardiovascular disease, dyslipidemia and hypertension when your BMI is calculated between 25 and 34.9.
 
Men with a waist circumference more than 40 inches are at increased risk of developing health problems.
 
I hope this was what you were looking for and remember you are a unique individual so trying to compare yourself to others is not in your best interest, IMHO.
 
Kindly,
Kitt
 
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

D R Johnson
New Member


Date Joined Oct 2013
Total Posts : 14
   Posted 11/2/2013 9:42 PM (GMT -6)   
Kitt,
Thanks for the response. I had seen in another topic, "share your pericardiectomy story", on this forum, a common theme of weight loss following the surgery. All of my vitals concerning blood pressure (110/68), cholesterol (144 w HDL ratio at 4.0), fasting blood sugar (91) and hemoglobin A1C in normal range at 5.7, coronary artery calcification score of zero are excellent. My primary symptoms have been sever edema, up to 1/2 inch pitting, from ankles to thighs and extreme abdominal swelling and distention

My BMI is very high at 41.68, which has increased from 36.31 in Jan 2013. In two years weight has increased over 100 pounds. Weight can fluctuate 5 to 8 pounds daily, depending on diuretics effectiveness. Sme days it helps, others you wouldn't even knew I took it.

Stress test at Jan2013 physical only lasted 3 minutes 58 seconds because of complete exhaustion. Peak heart rate only got to 139 and peak blood pressure to 137/80.

Intent of my question was to get responses from others on whether they had experienced any significant weight loss, and how much, due to extreme edema situations similar to what I am having due to the constrictive pericarditis.

Donny

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 11/12/2013 4:16 PM (GMT -6)   
Donny,
 
I just read you new thread and I am sorry none of our members had the information you were looking for re weight loss.
 
This is a good question for your Dr. who has followed patients after this procedure.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety, Osteoarthritis,
GERD/Heartburn and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."
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