Just diagnosed with the congenital Long QT syndrome at 42! Thank goodness i was in the ER at the time, i woke up in icu to have them tell me i went into cardiac arrest twice and i wont be driving for 6 months. LAst friday 3-21 I had an Implantable Cardioverter Defibrillator put in. I have lots of questions but cant see my cardiologist until april 28! does anyone have any info support experiences related to this?