Long QT Syndrome

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Regular Member

Date Joined Nov 2013
Total Posts : 28
   Posted 3/27/2014 4:13 PM (GMT -6)   
Just diagnosed with the congenital Long QT syndrome at 42! Thank goodness i was in the ER at the time, i woke up in icu to have them tell me i went into cardiac arrest twice and i wont be driving for 6 months. LAst friday 3-21 I had an Implantable Cardioverter Defibrillator put in. I have lots of questions but cant see my cardiologist until april 28! does anyone have any info support experiences related to this? shocked

Elite Member

Date Joined Apr 2007
Total Posts : 32602
   Posted 3/28/2014 12:32 PM (GMT -6)   
Glad to read you were in the right place when your heart arrested.  I am wondering what kind of questions you may have?  Your Cardiologist is your best source of information and I would have expected him/her to have talked with you at great length re your arrest and placement of the ICD.
You may post questions here as we do have other members with an ICD.
Here are a couple of links that are strictly for information only.  Nothing can take the place of your Dr.
The first link is from Boston Scientific, a company who produces ICDs.
This second link is from Medtronic, another company that produces ICDs so please remember the info about registering your devise with them is a moot point for you unless you just happen to have one of the Medtronic Devises.
Please continue to post with us and know we care.
Moderator: Anxiety/Panic
and Heart/Cardiovascular Disease.

"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."
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