Pediatric CHD question???

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

craig10
Regular Member


Date Joined Feb 2010
Total Posts : 115
   Posted 4/16/2014 9:48 AM (GMT -6)   
I have a daughter who is pregnant with a child who has been dx'd with Tetrology of Fallot syndrom. She is at Oakland California's Childrens Hospital----The doctors are fairly upbeat in the evaluatoon so far--- I can see from my early research that the center and the experience of the surgeon can certainly be outcome determanitive in many ways and in particular post surgical problems years later with leaky valve issues------ Does anyone out here know about this Oakland hospital and any general ideas?

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/16/2014 1:24 PM (GMT -6)   
 
I am sorry to read of your daughter's heart problem.  I have no personal knowledge of this particular hospital.
 
Perhaps another member will come forward and talk with you.
 
Kindly,
Kitt
~~Kitt~~
Moderator: Anxiety/Panic
and Heart/Cardiovascular Disease.



"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/16/2014 2:30 PM (GMT -6)   
Craig, the good news is that treatments for TOF have advanced greatly in the past few decades. If you haven't already accessed this web site, it has a lot of really good information:

/www.nhlbi.nih.gov/health/health-topics/topics/tof/

If you know the name of the surgeon who will be treating your grandchild, it may be informative to google his or her name, also.

Best wishes to you and your family as you move forward to face this new challenge.
Thyroid forum moderator

Ulcerative colitis since 2001, starting 8th year of remission with Remicade.
Inflammatory osteoarthritis; osteonecrosis from steroids
Grave's disease treated with radioactive iodine and now on Levothyroxine.
Type II diabetes induced by steroids.
Eczema, darn it!

"It's always something." ~ Rosanne Rosannadanna

jdiane
Veteran Member


Date Joined Jan 2003
Total Posts : 1156
   Posted 4/19/2014 12:13 PM (GMT -6)   
I've heard good things about Oakland. I work for a Pediatric Hospital in Atlanta, as a fundraiser, so I only really know the fundraising staff there.

However, below is the list of the top ranked pediatric heart programs in the country. I work for #4 Children's Healthcare of Atlanta. I was a patient there from 1980 until 1994 when I aged out. I still see a cardiologist and surgeon from Children's through a partnership with Emory University Hospital (Adult Congenital Heart Disease clinic). I do not have TOF, I have bicuspid Aortic valve disease. I do have a friend whose son has TOF and had surgery to repair at 3 months in Atlanta. He's doing awesomely!

Finding the doctors, surgeons, you trust who specialize in the diagnosis can relieve a lot of stress. If you are able to travel, you may look into some of the programs listed below. Most importantly is that you are at a Children's hospital and not an adult hospital with a pediatric department.

http://health.usnews.com/best-hospitals/pediatric-rankings/cardiology-and-heart-surgery
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, May 22, 2018 8:08 AM (GMT -6)
There are a total of 2,964,902 posts in 325,187 threads.
View Active Threads


Who's Online
This forum has 162915 registered members. Please welcome our newest member, Firoz Memon.
355 Guest(s), 9 Registered Member(s) are currently online.  Details
green beans, countess18, AnxietyKelller, annie42, Firoz Memon, InTheShop, cppoly, lazlolms, straydog