next step for figuring out my health issue.. heart or ??

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arf007
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Date Joined May 2014
Total Posts : 32
   Posted 6/8/2014 11:26 PM (GMT -6)   
Saw a 2nd Cardiologist who is supposed to be very good. He basically said my heart is really clear and if it had inflammation there might be more muffled sounds. Since my Ct chest and echo did not show anything for my heart and my bloodwork I did back in April was very clean they seem to think my heart is fine.

Said he did not want to do a Holter monitor unless I felt like I was having tachycardia when I feel the palpitations. Also didn't seem to want to do anything regarding Blood Pressure due to my age and said if my BP stayed more in the 160 range versus the 140/90 range as it has been in the past couple months then he might consider meds. Also didn't want to do bloodwork- his thoughts are if it shows inflammation it doesn't show where so it's not that helpful...

So basically he did nothing and not even a new EKG. Told me to try and exercise again and so I have taken a couple classes at the gym as a student and I made it through both but I sure feel like something is off. I just feel like my pulse gets going much more easily that usual or at least that is my perception. I only feel about maybe 60 percent of my normal and not because I have take a month and a half or so off of the gym.

Would it be normal for BP in the range mine is in (142/92-98 seems to be the reading) to actually make me feel really weird, or could that be the reason I can't lay flat in bed to sleep still? I am pretty sure I had a panic attack back in April at the beginning of all this but even in a calm state I am still having the palpitation feelings and did try to lay flat in bed the other night and woke up on my side with my heart feeling like it was totally thumping in my chest within an hour.

Prior to this illness I always had normal BP up to my most recent Dr. appt. last year in May. So not sure if BP can make me feel so weird, not exercising and all the anxiety I have had worrying re do I have Pericarditis or not I am sure did not help and my grandma and aunt both got high BP at my age and other grandma and dad's brother have it too. So it is in my family.

I also still have a pressure feeling in my chest when I am sitting kind of at the bottom of my sternum area and the squeezing feeling when i take a really deep breath -really notice if i am leaning forward. I have a pretty sore spot on my upper ribs on the right side.. I just wonder if maybe it is costrochondritis that is giving me a squeezing feeling...since it feels like it is right under my sternum.

So all those things, squeezing/pressure feeling center chest, the high BP and feeling like my pulse gets up quickly, not being able to lay flat in bed and also the palpitations and just not feeling like my normal self still... two plus months after I was sick...makes me wonder...

I am quite frustrated by going to the Dr. as no one is helping me and I can't afford to keep going to the Dr. every week. If you think of any stomach/gallbladder other issues that this sounds like.. let me know..I have had no tests regarding stomach. lol. I don't even know what to do now or who to see, I am feeling like my primary care Dr. just thinks I have anxiety and doesn't know what to do with me anyways...

Amber

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 6/9/2014 2:12 AM (GMT -6)   
heart palps and omeprazole?? I was on it for about 2 months and my palps started after 5 weeks or so when I was off work on a stay-at-home vacation.... Don't know if it was related...but I thought it was interesting to note after reading that lots of people have complained about that side effect. thoughts?
Arf007

stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 6/9/2014 8:34 AM (GMT -6)   
Amber,
 
If you are taking Prilosec take a look at this thread in the Anxiety Forum from yesterday:
 
 
I am sorry to know you did not receive the work-up you hoped for from the new Dr.
 
I wish I had more to offer.    Stress and palpitations are so common, and almost always benign. That said, I can't tell you specifically what is going on and you have not had any luck with your Drs. but do not give up.  Have you talked to your Dr. re anxiety as the culprit?
~~Kitt~~
Moderator: Anxiety/Panic
and Heart/Cardiovascular Disease.


"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 6/9/2014 8:54 PM (GMT -6)   
laying down is the worst thing but I have a general feeling of weirdness all the time.. my body just doesn't fell healthy and normal only in the center of my chest though..the rest of me feels totally fine as usual....I wondered if the high bp would make me feel weird.. I don't know... I have definitely been feeling stressed.. have even having a second outbreak of my lip herpes which only comes out when i am feeling very stressed or get too much sun...and usually only get that once every couple years..but this is second time in a week... and I can't deny the squeezing in my chest when i take a deep breath as I am sitting here typing.. leaning forward it seems worse... I haven't had any meds in about 7 days... so far no major chest pains but the difficulty laying down continues on... I feel my heart immediately when I lay down and when I wake up I have been feeling it too.. if my Dr. has no ideas when I call him tomorrow... I will probably go see the female dr I know and see what she says...I am still not convinced I don't have heart inflammation...but not sure if after two months and all the negative tests.. what that means.. I have been on some sort of anti- inflammatory almost all of that time though...
Arf007

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 6/9/2014 8:59 PM (GMT -6)   
thanks Kitt, I did read her post last night as well as some other ones I find just searching on the interent...i know mine didn't start until I had been on it over a month.. who knows I have def been anxious...but I def also have some weird symptoms feelings I have never had prior to the illness... that are there all the time... ugh lol
Arf007

JungRulz
Regular Member


Date Joined Jan 2014
Total Posts : 394
   Posted 6/9/2014 9:20 PM (GMT -6)   
Maybe your GP rather than cardiologist should be consulted. A slight bit of Beta Blocker goes a long way for some. I was using 1/4 of a 50 mg Atenolol (12.5 mg) twice a day and my resting heart rate was 60 beats/min. The GP can request a Holter as well.

It's possible (probable) that it will benefit your heart rate and blood pressure. There are selective and non-selective Beta Blockers. If you had breathing restrictions, like asthma, the non-selective may need to be avoided. In the absence of breathing restrictions, if a non-selective is used, it may reduce anxiety as well, though these effects may be seen, to a degree, with selective also.

There's the story of a truck caught under the limb of an historic tree in a small town. Of course, the driver wants them to cut off the limb to free the truck without damaging it more. The townsfolk, valuing the tree, want the top of the truck cut off to save the limb and free the truck. A little child walks up and says to the people overseeing the accident site "why don't you let the air out of the truck tires".

Sometimes the answers are simpler than we want to make them.

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 6/9/2014 9:32 PM (GMT -6)   
well interestingly enough, my GP mentioned a beta blocker and the cardiologist basically said unless my BP was staying in the 160 range he wouldn't put me on meds at my age.. but I also said i had had anxiety regarding thinking I have pericarditis etc... mainly i really just want to know do I have it or do it not so I can move on or deal with it..I just worry that all the strenuous exercise I like to do and am trying to move back into would make it worse so that is my biggest concern. I want to workout strenuously like I always have and I actually don't feel like i can at the moment and I am not sure if it is because my BP is high now and its making me feel weird when i do or something else ....i did a couple classes in the past few days.. first cardio classes since April.. I just don't feel right and wonder if it is the BP making me feel that way... I was probably in the best cardio shape of my life prior to this because I had been teaching a lot this past year, more than I ever had in past 15 years. I made it through the classes to the end but I sure don't feel like I could go back to teaching my own classes which are harder... at this point.. and I just want to make sure I am not doing more damage to myself by doing so...exercise is my happy place so having it taken away made me a little crazy. lol. I have been to my GP at least 5 times since I got sick originally maybe 6 lol.... and was just there last week. He did mention beta blocker but I said I would wait to see Cardio since it was only 5 more days...I have seen him more in 2 months than in past 10 years lol
Arf007

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 6/9/2014 9:34 PM (GMT -6)   
If I can go back to teaching my Zumba classes...I won't have anxiety ! =)
Arf007

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 6/10/2014 6:46 PM (GMT -6)   
today I had 8 panels of blood drawn checking thyroid, cbc, sed rate, ck, metabolic panel, tsh, crp... I had one of the Drs. i work with order the labs so I will know soon if it shows anything.
Arf007

jdiane
Veteran Member


Date Joined Jan 2003
Total Posts : 1157
   Posted 6/13/2014 2:58 PM (GMT -6)   
have you had your gallbladder checked?

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 6/16/2014 4:23 PM (GMT -6)   
No I have not Jdiane. Unless things wrong with it would show on the bloodwork I had last week. I don't know how you test for it. I have not even considered that too much as an option, but I am working my way there. lol. I will have to ask the Dr. I am going to a GI doc on Wednesday for the first time? I feel discomfort to lay in bed flat and when I do try to fall asleep that way I wake up very shortly after that within an hour. I feel like it makes my heart feel weird, and I can't lay on my sides either as it makes my heart feel weird. Not sure how to describe it. I have had to sleep sitting up or at least propped up on extra pillows for two months now.

I also continue to have a tightness feeling in my chest under my sternum when I inhale deeply and I notice it when I am sitting in a chair.. standing up continues to be the least noticeable symptoms for me. I have been off all medication for two weeks ( anti-inflammatories for the possible heart issue I don't seem to have and the Prilosec I took for my stomach protection. I don't feel any better and possibly my chest tightness feels a little worse. I basically feel like if you removed the center area of my chest I would feel 100 percent normal. The rest of me feels fine and I haven't noticed any particular GI symptoms so far though.

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 6/16/2014 4:25 PM (GMT -6)   
oh, and ALL of my bloodwork all 8 different tests were totally normal!! and still having heart palps in addition to the pressure and lying down issue.
Arf007

stkitt
Elite Member


Date Joined Apr 2007
Total Posts : 32602
   Posted 6/17/2014 7:45 AM (GMT -6)   
Arf007,
 
If you have  reflux disease there  are many ways to manage GERD, including diet and lifestyle changes, medications, surgery and alternative therapies. You may want to read over some of the posts by several of my friends from the GERD Forum.
 
Elevation of the head of your bed (because lying down can make GERD worse) and avoiding lying down for 3 hours after eating are some of the first things GERD patients are instructed to do if nighttime is hard for them.
 
I hope the GI Dr. discovers your problem - I am not dx, just posting some info so you have some ideas about what GERD is and how GERD can mimic heart pain. Link with general info from GERD Forum:
 
GERD Treatment Options !
 
  • A doctor said that you have gastroesophageal reflux disease (GERD), a chronic disease that causes ongoing pain and burning in the chest and throat (heartburn). GERD is also called “acid reflux disease.”
  • You want to know what research says about your options.
  • Check out this link provided by Denise, one of our wise members.  Thanks Denise.

http://effectivehealthcare.ahrq.gov/index.cfm/search-for-guides-reviews-and-reports/?productid=756&pageaction=displayproduct

Hope your wife is doing well.

Kindly,

Kitt

 
 
~~Kitt~~
Moderator: Anxiety/Panic
and Heart/Cardiovascular Disease.


"She Stood in the Storm & When the Wind Did Not Blow Her Away, She Adjusted Her Sails."

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 6/19/2014 6:09 PM (GMT -6)   
thanks for your reply Kitt, I actually didn't go the the GI dr. I really don't think that is what my issue is at all so I decided to cancel it for now...my pain/pressure is under my sternum or at the sternum and the only thing i notice specifically is that leaning forward makes my chest hurt more to breath in deeper and sitting up more it feels better overall..


Amber

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 6/20/2014 12:48 PM (GMT -6)   
now I am back on for GI dr next week on friday.... my friend's dad is ER physician and says it has to be my heart, espophagus with my symptoms as the most likely culprit.. unless I have some weird musculoskeletal thing.. but all I know is I have been completely off meds about 16 days and feeling more chest pains although nothing too severe at this point...I still lean towards its my heart because of my virus I had... but ... IDK..my co-worker had Pericarditis and she said her tests were negative and she was told she had anxiety and eventually had an effusion and needle drainage.. ugh
Arf007

kamikazee
Regular Member


Date Joined Sep 2009
Total Posts : 31
   Posted 7/14/2014 1:12 PM (GMT -6)   
Hello "arf007" I'm wondering if you have an update on your status? I've have many similar symptoms and I'm also looking for answers, please let me know if you learned anything. I tried emailing you but never received a response. So hopefully this will get your attention.

pvct
Regular Member


Date Joined May 2014
Total Posts : 128
   Posted 7/15/2014 9:57 AM (GMT -6)   
have you found some doctor who can explain what is going on with your BP, it could be anxiety, but You might want to find a doctor and cardiologist that can give you some peace of mind. are your daily BP reading lower than the one you posted? I wish you well :-)

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 7/17/2014 6:25 PM (GMT -6)   
UPDATE AT THIS POINT---
I had my stomach scoped last week and few little biopsies from the esophagus. everything was normal and unremarkable as I expected it to be. I have started exercising again recently as in more cardio and I feel like my chest symptoms are getting worse. I still don't have the typical stabbing chest pains of Pericarditis that seem to be more commonly described...but in my mind I still believe that is what is wrong with me. I am seeing the cardiology people again next week at the office I have been to twice already, I am not hopeful they will help me because they already blew me off once but I hate to start over waiting for another appointment with a brand new Dr. but do plan to switch to another one right away if they don't help me or run any more tests. I am quite frustrated at this point. My BP has actually went down and my heart palpitations seem to have gone away...I attribute all of the BP and palpitations to taking Omneprazole for two months straight and Ibuprofen...and anxiety as well. I think last week my BP was back down to 123/80 at my pre-endoscopy BP check. from 140/90's range! It was normally 116/74 prior to my illness at the end of March, which is what set off this whole mess of medical stuff.... a viral respiratory infection...

I am also laying in bed sleeping like a normal person now, but my chest sure does not feel normal at all times It just feels "off"... and because it sticks with my 24/7 that is why I am still convinced something inflammatory is going on with my heart... as it still makes the most sense...

Post Edited (arf007) : 7/17/2014 5:28:34 PM (GMT-6)


arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 7/17/2014 6:27 PM (GMT -6)   
kamikazee, sorry I hadn't been on the site for a few weeks now . I will check in and definitely will post my whole story if I do indeed finally get a diagnosis to help others with their issues...=)
Arf007

kamikazee
Regular Member


Date Joined Sep 2009
Total Posts : 31
   Posted 7/19/2014 12:23 AM (GMT -6)   
Thank you for finally replying lol. Have you ever thought about trying to get into Mayo Clinic? I've come to the conclusion that it's my best chance. I feel that if I would have gone there years ago I probably would have saved both time and money. They take the holistic approach meaning they analyze the who body and not just the symptoms. I'm just waiting for my insurance to be in place so I can go.

Just to give you an idea I met this lady through work one day. While I was working on the job I briefly explained my symptoms and how ultimately no doctors have found answers. So she felt obligated to tell me the hell she went through a couple years prior. Essentially one morning she woke up feeling sick or just not her usual self thinking it was a bug or something she let it go. After a while realizing that the symptoms she was experiencing were not getting any better she decided to go to the doctor they ran a bunch of tests and concluded that nothing was wrong with her and it was just induced by stress. One doctor told her it was stress caused from lack of sexual activity if you can believe that and they all insisted that she get on anti depressants. After being both furious and frustrated because she knew her body and knew it wasn't from stress of any kind she went to another doctor and demanded results so they sent her to Mayo. She said they start from the head and work their way down until they find something wrong. In her case she had a hair line fracture in her hip that was causing a low grade infection that was making her sick. They operated on her and repaired the hip and she said within a couple of weeks she never felt better! And the scary thing is that not only did she not have any pain of any kind in her hip, but all the tests and previous doctors totally dismissed her and found nothing.

kamikazee
Regular Member


Date Joined Sep 2009
Total Posts : 31
   Posted 7/19/2014 12:46 AM (GMT -6)   
A lot of my problems for years where gi related so that's mainly what I focused on thinking that's what was causing all my symptoms. They have done every test possible and the only thing that shows up is a mild form of lactose intolerance and rapid gastric emptying. Which doesn't make any sense because I never had any kind of surgery. And I'm sorry but lactose intolerance should not cause the breathing problems I am having.

I'm 27 but about 5 years ago I developed a lot of new symptoms such as chest tightness/pressure, shortness of breath I can't walk up steps without getting winded and I'm not out of shape, headaches, feeling of faint I swear to god the first year these symptoms developed I constantly felt like I would pass out at any minute it was terrible, vision problems, hard to breath while laying down on back so I always have to sleep on my side, when it first started I had numbness in my extremities along with pin pricking sensations, nausea, extreme fatigue. In a nutshell it constantly feels like I have a 45 lbs brick sitting on my chest. And the worst thing is the fact that I feel like I can't take in a deep satisfying breath causes me to have severe panic attacks to the point where I feel like I'm going to pass out because I feel like I'm not getting adequate amount of air.

And after seeing numerous doctors they are unwilling to run any tests and they keep telling me its all caused from anxiety and stress. In which I refuse to believe especially after hearing a story like I shared above.

So thats my hell in a nutshell.

pvct
Regular Member


Date Joined May 2014
Total Posts : 128
   Posted 7/19/2014 10:56 AM (GMT -6)   
hello,


I am sorry to hear about your story. I would recheck with your Cardiologist and have them run some tests if you are having trouble and chest discomfort - has any doctor given you anything for anxiety idea I hope you feel better. :-)

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted Yesterday 2:09 PM (GMT -6)   
it's not anxiety-related at this point although I have definitely had some and some of my earlier symptoms were related to that. I am seeing Cardiologist tomorrow but they haven't been helpful so far, but my regular Dr. will order tests for me if they won't...I am basically demanding it at this point, whether it makes sense to them or not. I will let you know... I still think I am having a heart -related issue as originally thought. Anyways will update in the next week after I finally get someone to order some tests. Sorry kamikazee for all your troubles!! That is rough! hang in there!

AMber
Arf007

kamikazee
Regular Member


Date Joined Sep 2009
Total Posts : 31
   Posted Yesterday 4:34 PM (GMT -6)   
I'm not trying to contradict what your saying because I'm exactly in the same boat and I believe you, but how are you so sure that it's not anxiety related? I was 100% sure that mine wasn't anxiety related but anymore I'm not to sure because nothing ever shows up on the test results. Everything from my ibs to chest pain supposedly it's all from anxiety/stress.

Though I haven't had any heart or vascular tests done, every time I bring it up my doctor she discourages it and says it's just anxiety and I would just be wasting my money to run tests. I guess after hearing it for so long you began to believe it. Whats even scarier is I have a friend that works with disabled people and she says they give them anti depressants like candy because it acts like a band aid and masks the symptoms so there not so obvious. Meaning they dull the pain, that's why doctors like to use them especially when they don't know the cause of the symptoms.

But thank you for the best wishes and please keep me updated on your status because I still refuse to chalk it all up to anxiety especially if there a possibility of feeling better.

arf007
Regular Member


Date Joined May 2014
Total Posts : 32
   Posted 7/24/2014 3:00 PM (GMT -6)   
I saw the Physician assistant to the Cardiologist yesterday and I will do a stress echo test on Monday since I have basically done most other tests already. Hopefully that will shed some light on something. I really like the PA better than the Doctor personality-wise. I was relieved that he was as pleasant and easy to talk to as he was. Will report back after I get the results. Also, my BP is back to almost my normal 124/76 so I now am sure anxiety and ibuprofen contributed to it going up so high for a couple months.
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