POTS and Disability

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Mindy123
New Member


Date Joined Jul 2014
Total Posts : 1
   Posted 7/23/2014 7:34 AM (GMT -6)   
I am new to this forum and seeking advice.  I am 40 year old female who has been battling POTS for the past 5 years.  I have managed to keep my full time job.  My employer has been great and making accomdations for me.  However, that is getting more difficult to do.  I work in a fast past environment and my position is a full time.  When I'm not there due to my "Potsy" days, someone else has to pick up the slack.  I am a Director of a Community Health Center. However, that is getting to be a burden on other staff. 
 
I am being treated by a Caridologist for the past 2 years.  I have POTS symptoms on a daily basis (dizziness, fatigue, pre-sycnope spells, weakness, shakiness, etc.)  Luckily, I am one that does not stress out or have an anxiety issues.  I'm a pretty easy going person.  However, I think the demands of my job and POTS is taking a toll on my physcial well being. 
 
I am seeking any advice from others who may have applied for disability.  My current employer does have disability insurance and have thought about requesting a leave of absence.  However, I'm not sure what that will solve in the long term.  Maybe I'm in denial or oblivious to my situation as co-workers and family members have questioned me as to why I've not on disability.  Its been a internal struggele or battle for me to go down that road as I don't want to personal be declared "disabled".  However, I do see the writing on the wall and realize I have a family to help support and must do what is best for everyone. 
 

JungRulz
Regular Member


Date Joined Jan 2014
Total Posts : 394
   Posted 7/23/2014 7:07 PM (GMT -6)   
Welcome to HealingWell.

Here's a mention to disability in the context of POTS, I saw a similar reference to disability for PVCs earlier today.

"Prognosis
Currently, there is no cure for POTS, however researchers believe that a good percentage of patients will recover over time. Detailed long term follow up studies on the course of POTS are sparse. Doctors believe that most patients who develop POTS during puberty or adolescence usually recover by their mid teen to early 20s. Estimates are that about 50% of patients who have post-viral POTS will fully or almost fully recover within a two to five year period. With proper lifestyle and medical treatments, many patients will see a substantial improvement in their quality of life. If an underlying cause can be identified, and if that cause is treatable, the POTS symptoms may subside. While the prognosis is good for most patients, researchers have noted that some patients will not improve and may actually worsen over time. Approximately 25% of POTS patients are disabled and unable to work.

http://www.dysautonomiainternational.org/page.php?id=30

Post Edited (JungRulz) : 7/23/2014 7:12:57 PM (GMT-6)

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