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pvct
Regular Member


Date Joined May 2014
Total Posts : 128
   Posted 8/25/2014 4:35 PM (GMT -6)   
PVCs, supraventricular ectopics, isolated PACs, 4 and 5 beat runs of SVT, 5200 ventricular ectopics in a 42 hr holter and all tests ok.
I know I should (and do) feel lucky compared to many people, but the randomness of the flairups just makes me crazy. What really causes it? And what really makes it go almost completely away for weeks, months, never years, but then OUT OF NOWHERE start back up.

Mystifies and bedevils shakehead

JungRulz
Regular Member


Date Joined Jan 2014
Total Posts : 394
   Posted 8/25/2014 8:46 PM (GMT -6)   
On the site:

Benign PVCs: A heart rhythm doctor’s approach.

www.drjohnm.org/2013/06/benign-pvcs-a-heart-rhythm-doctors-approach/

Is the following:

"If I had only one adjective for PVCs, I would use capricious. We can’t often find a reason why PVCs come, why they leave, or why they come back."

I know you're familiar with the site, but wanted to bring the quote and figured I'd bring the address. I have a feeling that more could be done but doctors aren't motivated to do it.

I went to the rhythm specialist, I had my theories, some of which I still feel are valid, but on the second visit he laughed at me, saying these things just happen, that I would need to have ablation or anti-arrhythmic medication to relieve the symptoms, not for medical reasons. I sat there and told him that his office had the results of my second Holter, he explained that it could take several days for them to come in, and as I was leaving, told his nurse to forward the results to me. She told him that she already gave him my results (and informed him that morning) and that they were available on her computer as well. He didn't listen to me or her. How much do they listen when we complain? We speak sincerely, they hear blah blah blah.

(One of my cardiologists (over the years), when I called him because I was concerned about some strange rhythms, even though he was at home, probably watching T.V., told me he didn't have time to listen to me, he had patients with "real" problems. He told me to lie to an Electrophysiologist, tell them I can't stand the PVCs anymore. My wife worked for him at the time, he phoned back a few minutes later, told her to tell me not to lie to the E.P., that I could make things worse by having the procedure.)

But something changed, in my case, I started on Prilosec, two 80 mg aspirins in the morning, take 1/4 of a 0.5 mg Klonopin at bedtime only, started drinking one Ensure a day, one Carnation Instant Breakfast, one Vitamin water (we use a few different brands) and eat one banana and we have a little humus every day. This won't work for everyone, but I had 6500 PVCs the first Holter this year, 3974 the second, both before I started on the stuff I described. After being on the items I described, I went to hundreds per day, to dozens per day, to a few dozen per day now, all in the course of two weeks. I also eat less sugar, less sweets that is. But the Ensure, Vitamin Water, and Carnation Instant Breakfast are taken a different times during the day, and none of them represent the massive amounts of vitamins that one would expect with Energy Drinks, which I avoid, since Energy Drinks would cause me problems rhythm and seizure wise.

I wish that cities had doctors that specialized in benign rhythm disturbances. Perhaps a doctor that also experiencec PVCs.

My theory is that I was deficient in some vitamin or mineral, and my regular cardiologist feels that may be the case. I just did a stress test, under normal meds, for 6 minutes. My previous Stress Holter, in December of 2013, I had tons of pre and post stress PVCs, but this time, pre and post, only a few.

There are so many things it could be. I take Phenytoin for seizures, and Phenytoin is an Anti-Arrhythmic drug as well. Prilosec interferes with the elimination of Phenytoin, so my levels may be slightly higher. I take Hyzaar for blood pressure, and Hyzaar interferes with the elimination of Potassium, so the little extra potassium I get from the Ensure, Banana, and Carnation Instant Breakfast may have built up slightly more than their face value. It may be the potassium, or other elements, that helped change things without regard to my regular meds. It might be treating documented inflammation of the duodenum by taking Prilosec. The aspirins may help to reduce GI Tract inflammation or, actually, an area on the heart may have been inflammed, and the aspirins reduced that inflammation, also, slight additional thinning of the blood from the extra aspirin. Probably, it's a combination of several factors.

Regardless, you'd think that doctors would want to know what changed, but they don't. I've read about subclinical Hyper and Hypo Thyroidism, people with symptoms of either but their level is in the normal range. When treated to increase or decrease blood levels of thyroid hormones, however the case may be, they normalized. Despite having "Normal" levels of vitamins and electrolytes, maybe I needed a little more of something.

pvct
Regular Member


Date Joined May 2014
Total Posts : 128
   Posted 8/26/2014 1:04 AM (GMT -6)   
Thanks JungRule

Your informative reply is appreciated and well taken. I may have to try humus. I do eat a banana, and try to watch what I eat.
It sounds like you have been through a lot with some doctors.
Thanks again for your reply.
pvct
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