49 yr old with TAA & PAA (and more)

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Date Joined Oct 2014
Total Posts : 8
   Posted 10/28/2014 12:19 PM (GMT -6)   
Hi there,

I'm 49, turning 50 next year and new to this forum. I found it through a search for info about my conditions, and I'm thankful such a support community exists. I have a few questions, along with the telling of my tale.

in 2011, I was diagnosed with an ascending TAA of 4.1cm, and that has grown to 4.4CM as of the last MRI. I also have a PAA of 4.3cm, a trace of aortic regurgitation, mild mitral regurgitation, been told I have an enlarged heart and also chronic chest pain that is releived by nitro. My PCP referred me to a cardiologist who delivered this news, but only part of it. The rest I had to read for myself when I obtained a copy of the radiology report. I have since requested all documentation pertaining to my heart issues and have received them, and been going through them, researching what I find.

I am on 25mg of atenolol and 60mg of isosorbide mononitrate daily. The chest pain persists. I am not panicking, but rightfully concerned about my conditions. My current provider is very tight-lipped about information sharing with me, and much of what I've leared has been on sites like Cleveland Clinic and others of the same caliber.

Having aneurysms on both the aorta and pulmonary artery has me concerned. I understand that pulmonary aneurysms are even more rare than the ascending aortic aneurysm. My provider recently changed the imaging from every year to every two years - and I think that is against all the information I have read elsewhere - is the gold standard a yearly cardiac MRI (to reduce rad exposure from repeat CT's - I've had two, spaced one year apart).

I'm looking to change health care providers and have all the imaging etc on DVD's. Given the fact my health provider is not listening to my complaints (frequent) of chest pain, and unwilling to tie it into the conditions I have with my heart - should I be looking for a new health care provider? I probalby will since I feel I'm at an impasse with my current ones, but from a medical standpoint, am I right in wanting to change? I'm currenlty with a large HMO that's building lots of new facilities here in CA.

I've been told not to lift heavy weights or do that sort of workout excersize, but not sure what else I should be doing, or restricting.

Any advice would be greatly appreciated.


Post Edited (Shasari) : 10/28/2014 3:22:51 PM (GMT-6)

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