Hello to the participants on the chronic pain forum. My name is Natalie Mast and I'm a research assistant working under Dr. Arun Garg at the University of Wisconsin Milwaukee. We are beginning to research the degree to which people with physical weakness (hemiparesis) after stroke are able to independently complete activities of daily living with tools and environmental modifications. I have asked for permission from HealingWell admins (Peter), so I want you to know that we're not trying to break any rules.
We're interested in:
*How effective the tools and environmental modifications you use each day are
*If there is a need for new tools for certain tasks
*Whether available tools aren't accessible due to cost
*Which activities of daily living require the help of another person
Because there is very little research showing the efficacy of available tools and adaptations used by people with weakness from stroke, hearing what you have to say is one of the first places we can start finding relevant information. We would like to hear first-hand accounts of your experience with maintaining independence.
For this particular research, we are interested in activities of daily living, which may include dressing, bathing, toileting, eating, mobility, cooking, house care, and other activities that maintain your independence. We are not recording information relating to sexual activity. For the purposes of this study, we are only concentrating on physical disability and not cognitive or emotional disability, so we ask that answers are limited to the physical realm of maintaining independence. Also, we are restricted to interacting only with adults, so if you are a minor (under the age of 18), we ask that you do not participate in this online discussion.
This research has minimal risks to you. We will maintain confidentiality by separating your responses from your user name in our database, we will not use direct quotes that can be searchable online, and we will not use any personally-identifying language in the database of answers. There will be no direct benefits to you other than further research. Your participation is voluntary and there will be no penalty if you do not participate or decide to stop participating. Your decision to participate or not will not change any present or future relationship with the University of Wisconsin Milwaukee. If you decide after posting a response that you'd like to withdraw your response, you can contact me and I will remove your answers from the database. It is our intent to take the information gathered from the responses to this thread, assess and organize them, and present them in academic papers and presentations. By responding to this thread, you are consenting that you have read the above information, are 18 or older, and that you voluntarily agree to participate in this research study.
Thanks for reading this and participating! We look forward to learning more about these issues.