Talk about quality of life with arrhythmias!

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actoreddie
New Member


Date Joined Nov 2014
Total Posts : 2
   Posted 11/21/2014 8:55 PM (GMT -6)   
Hello cyclist56. I am no stranger to these forums and have been a former member of many like medhelp and medscape. Anyway, After 20 long years of poke atrial and ventricular arrhythmias and finally a 1st reluctant ablation back in 2009 at UPENN in PA by a renowned EP doctor who wrote the book on RF ablation. Sadly enough it was unsuccessful for my worst episodes of PVCs, Bi/Tri and Quadrigeminy, among the rest of the so called classified "benign" Ventricular and Atrial arrhythmias. Mainly the nasty uniform and later documented mutiform PVC and the short runs of horror I would get intermittently but the the garden variety PVC s bit more frequently but at least after almost 20 yrs. I was able to develop some tolerance and as time went on endure the uniform or single PVCs. Then in 2000 came the short runs and nasty interpolated PVC's which were harder to swallow. The whole onset and the lousy quality of life from this affliction has caused for many yrs., the unsuccessful ablation by the very successful EP doctor was a real disappointment, especially when it was believed he at least cured my PSVT.

Well it was only a few months or more when I realized I still had inappropriate sinus tachycardia that he never said he could cure and was difficult and could result in heart block and needing a pacemaker. He did say he thinks he got the culprit bypass tract or focus causing the PSVT and my HR to climb to 180 bpm. So I was very disappointed. Oddly enough I would get an "alcohol" induced episode just last Friday. I/we knew alcohol was a trigger and if I drank just 2 beers as I discovered recently, I would later wake up with a true PSVT not IST where I could tolerate the 130-150 rate a little better. Anyway this had me going online and googling things like most of us do AFTER a rare and very disconcerting bout of SVT. Anyway, I noticed you are also from NJ I assume from your post I saw. I am curious who the NJ EP doctor is you say helped you is? I know of most of the reputable ones in NJ as well as NYC. I am "contemplating" on MAYBE a 2nd ablation. .I have had a consultation with Andrea Natale another Top EP doctor who I was suppose to have another EP study/ablation with last Nov. But something came up and as luck would have it he had to go back to Texas where his practice is but every few months he comes up to NYC to do AFib ablations which he is highly skilled at hence thr reason he's going n demand. Anyway all 8 ablations for that day were cancelled and I never rescheduled because wasn't sure when he would be back in NY. Oddly enough almost a month before and on the day scheduled I had no PVCs at all especially the bothersome one. So maybe it wasn't meant to be at least for last year in Nov?? I have to see if they stick around like they have for a fewmonths now although Intermittently but today non stop but not continuous. Anyway let me know who the NJ EP DOCTOR is and at what medical center. I am guessing either Englewood ot Hackensack? Thanks cyclist56

actoreddie
New Member


Date Joined Nov 2014
Total Posts : 2
   Posted 11/21/2014 9:03 PM (GMT -6)   
Sorry site moderatorm I am new to this site and probably posted this story in thr wrong place. I hope you can please put it up in the appropriate section of heart disease-Rhythm area so the member cyclist56 and others as well can reply to yet another great "people with arrhythmias" experience and story.

Thanks and sorry for any other inconvenience I might have caused. Actoreddie
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