**PFO closure? Pros and cons please! (good and bad feedback)**

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Vikki1975
Regular Member


Date Joined May 2005
Total Posts : 190
   Posted 9/20/2005 2:09 PM (GMT -7)   
I am a 29 year old with a PFO (hole in heart - patent foraman ovale).  It was found last year after I compained of dizziness, food sensitivities, palpitations, pains, sensitivity to brings lights and noise, bad constand headaches, migraines, severe tiredness, anxiety, depression etc.
 
I saw a cardiologist in the UK who found the PFO with saline injections, scan and a TOE.  Although he found the PFO, he did not offer to close it as I have not yet had a stroke.  (Which raises the question - WHY shoudl I have to wait til I siffer with a stroke befor I am offered closire??! isnt this awful? Do I have to be paralysed or unable to speak before I get closure?)
 
Anyway, I am now seeking the opinion of another cardiologist in London.  He specialises in PFO closure, apparently.  I am having to pay over £200 to see him.  What I want to know is, if he takes a different view and offers me closure, should I go for it?  Could it save me life??
 
I have alss heard of dangers of havings closure, mainly due to the fitted device being made of nickel and possibly causing problems to the patient later on in life.  Does anyone have any comments on this?
 
Id be glad to hear from people who have a PFO, those who may or may not be considering closure, and people who had already had their PFO closed.  I dont know whether I should push for the op to close the PFO, or whether I should stay as I am.   
Has anyone had the symtpoms mentioned the first paragraph, only to find that these all dissapeared after PFO closure?
 
All comments very welcome please.  And any advice please.  I am confised!!!!  MANY THANKS IN ADVANCE.  Vikki x  sad

Teri16
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Date Joined Dec 2003
Total Posts : 5230
   Posted 9/20/2005 2:33 PM (GMT -7)   
Hi Vikki!
 
I'm glad to hear that you've taken such a positive stance here and are trying to find things to help yourself!!  We've had a few others posting here re PFO's, so I hope they see this and can reply.
 
Thanks for keeping us posted - and btw I think getting this 2nd opinion is so worth it!!
 
Big Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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Vikki1975
Regular Member


Date Joined May 2005
Total Posts : 190
   Posted 9/21/2005 10:42 AM (GMT -7)   

Vikki1975
Regular Member


Date Joined May 2005
Total Posts : 190
   Posted 9/26/2005 1:24 PM (GMT -7)   
any advice from anyone?

Teri16
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Date Joined Dec 2003
Total Posts : 5230
   Posted 9/26/2005 6:56 PM (GMT -7)   

Sorry, Vikki!! sad

Let's try this again and I hope someone sees this!!

Big Hugs, Teri tongue


"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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Vikki1975
Regular Member


Date Joined May 2005
Total Posts : 190
   Posted 9/28/2005 12:28 AM (GMT -7)   
Thanks Teri, seems that noone has any advice for me at the moment!  Lets hope someone can offer some soon xx

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 9/28/2005 10:14 AM (GMT -7)   
Vikki,
 
How have you been feeling?  Any new symptoms, or problems going on?  I'm not sure if I've put this link up for you or any of the others with the PFO problem.  However, I thought it might be well worth reading, in any case.
 
I sure wish you the best, Vikki!!
 
Hugs, Teri tongue
 
 
 
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


Vikki1975
Regular Member


Date Joined May 2005
Total Posts : 190
   Posted 10/4/2005 3:52 AM (GMT -7)   
just been diagnised with PCOS! polycystic ovaries! something else to learn about!

Kathlyn1950
Regular Member


Date Joined Mar 2004
Total Posts : 462
   Posted 10/4/2005 7:42 AM (GMT -7)   
Vikki, I wish someone could have given you the advice you need. I certainly know nothing about PFO. I hope that you can get the information that you need soon. It sounds like you have a proactive stance when you have an illness and that's a positive thing! Hugs, Kathy
Happy Grandmommy to Amanda, Alayna, Wyatt and Ezekiel


Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 10/4/2005 10:19 AM (GMT -7)   
Hi Vikki! tongue
 
I was hoping to hear from you soon, but not that you had something else to contend with!!  sad
 
Take care.
 
Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


littlebuger
New Member


Date Joined Sep 2005
Total Posts : 12
   Posted 10/6/2005 9:54 AM (GMT -7)   
HI Vicki as we have chatted with each other through E-mail.. Dont' have alot to offer .. I 'm in the study for the Implant and today was told I'm wasn't picked for the implant .. not much choices .. I did have a stroke without having any problems afterwards..
Now I'm asking to have open heart surgery to do the closure of the hole..
I feel I don't want to wait til the next stroke comes which may leave me in worse off than I am ..
I have heard from a few others on another board that had the surgery for closure not the implant and are doing well.. without thoughts of having another stroke in the future ..

hoping you the best ..
Dennis

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 10/6/2005 12:28 PM (GMT -7)   
Hi Dennis!
 
I'm sorry you weren't able to get the implant.  You know more than I do re this procedure...will you be able to have the surgery?  Please keep me updated, Dennis, I hope that they are able to do something to help you soon!!
 
Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


littlebuger
New Member


Date Joined Sep 2005
Total Posts : 12
   Posted 10/23/2005 6:34 PM (GMT -7)   
Just stoping in to say hello . I will have surgery this Thursday for the closure .. open heart surgery ..
it si a relief to know that the closure will be done .. .
ty all for your support ..

littlebuger
New Member


Date Joined Sep 2005
Total Posts : 12
   Posted 10/23/2005 6:43 PM (GMT -7)   
forgot to say . I was told the only way you could be a candiate for the closure in a study was if you met the guidelines . you have to of had a PFO & the stroke .
if not in a clinical study you should be able to have closure .. it does depend on the size of the PFO hole.. have you had a TEE test to look at teh hole and see how much it is leaking ? also.. sometimes the PFO is not reason for the stroke .. there are many reasons for a stroke , and finding the cause is important.. If I canhelp in any way please let me know ..

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 10/23/2005 6:55 PM (GMT -7)   

Hi Dennis! tongue

That was quite informative already!  Please come back afterwards and let us know how you did!  Perhaps give us some info on the recovery process for this surgery?

So you will essentially expect a hospital stay of about 5 days?  Do you know how often this procedure is done and did you have to go to a special hospital to have the surgery?

Dennis, Good Luck and I'm sending all my best wishes!
 
Big Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


littlebuger
New Member


Date Joined Sep 2005
Total Posts : 12
   Posted 10/26/2005 5:39 PM (GMT -7)   
I'm told the prodcedure can be done by a Cardiologist in that field .. you do have the closure once .. unless something should happen ..

you can have this done anywhere I"m told ..make sure the DR does that type of surgery .. the biggest is risk is if your have a heart defect ..

4-5 days stay ... hope it all goes fast ..

ty for the support
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