Heart Valve Issue

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Jenny13
New Member


Date Joined Jun 2014
Total Posts : 6
   Posted 2/8/2015 7:04 AM (GMT -6)   
I usually hang out in the Lupus group, but I'm now having a heart issue. A year & a half ago, I was diagnosed with a heart murmur caused by a dilated aortic root. Started experiencing chest pain & shortness of breath. An updated echo indicated the dilation has increased & the aortic valve is leaking. Had a TEE this past week. Turns out I need surgery ... I am 37 years old. So the cardiologist & surgeon are considering repair vs. valve replacement.

I'm kind of freaked out by this diagnosis. My father died of a heart attached at age 56 and my mom died of a brain aneurism at age 57 ... scary bad health.

I'm wondering if anyone else has had these issues. I'm wondering if the surgery will involve the typical 'cut open' sternum that's involved with bypass surgery.

Any info would be greatly appreciated.

Thanks,
Jenny

neil2524
New Member


Date Joined Jun 2014
Total Posts : 16
   Posted 2/8/2015 7:10 PM (GMT -6)   
hi jenny, I had ohs for my valve replacement 7 years ago, usually it is a open sternum job, but the good news is it is not as bad as you may think, if you want to ask anything fire away
had heart valve surgery 2008. replaced with a nice porky pig one

Jenny13
New Member


Date Joined Jun 2014
Total Posts : 6
   Posted 2/8/2015 7:30 PM (GMT -6)   
Thanks neil2524.

What was your recovery timeframe?
Have you had any value issues since the ohs?
Why did you select pig instead of synthetic valve?

jdiane
Veteran Member


Date Joined Jan 2003
Total Posts : 1157
   Posted 2/9/2015 9:37 AM (GMT -6)   
Hi Jenny, I had my aortic valve replaced almost 3 years ago when I was 37. I have congenital heart disease, born with bicuspid aortic valve. I also have an aortic aneurysm, but was unable to have it repaired with my valve replacement due to other complications.

My replacement was through open Heart Surgery. I was in the ICU for 16 hours and then went to step down and went home on day 4. By week 7 post-op, I ran/walked a mile. I couldn't have done that prior to surgery. Although I was totally healthy going in, I didn't realize how bad I felt until I didn't feel bad anymore :)

I was able to run 4 5k races within my first year following surgery and I continue to be very active, with different strength training and conditioning. I was even able to climb up the Cotopoxi volcano to 16,000 feet the year after my surgery.

I went with a bio prosthetic valve, bovine. I didn't feel mechanical was a good choice for me, as with my active lifestyle and also having Crohn's disease, I didn't want to live on the blood thinners. Once I decided tissue, I let my surgeon choose what kind.

Best of luck Jenny and feel free to ask any other questions!

neil2524
New Member


Date Joined Jun 2014
Total Posts : 16
   Posted 2/10/2015 11:41 AM (GMT -6)   
hi jenny, I think jdiane has gone through most of the details well, i was in hospital 6 days and being older found the recovery a tad harder but by no means as bad as i thought it would be,i went for a pigs valve as didnt want to be on anti coags, but plenty choose mech and find the anti coags no problem, whichever you go with am sure you will do just fine
had heart valve surgery 2008. replaced with a nice porky pig one
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