A Fib, POTS, and seizures

Hi, I've posted in here before with cardiac symptoms that were in the process of being dx in a really bad medical county for those with state insurance. I finally was dx in Omaha while visiting my dad, as having POTS (postural orthostatic tachycardia syndrome) and Atrial Fibrillation, both of which I knew from having a positive tilt table test done here and a holter showing tachy of 199 and total afib flutter, but were not followed up on until visiting omaha. He put me on topral xl 50 mg, and told me to follow up with a cardiologist here in northern california. the first cardio I saw would not treat me as his patient because I did not have a general practitioner, due to the fact that I also have fibromyalgia and I hadn't been in to the doc who will treat that yet as he is in another city. So because he wouldn't see me, he would not refill the topral that I ran out of. The topral btw worked ok, didn't completely get rid of the episodes but seemed to help them a bit. I ended up in ER after going into AFib and then into a grand-mal seizure which has never happened before and thankfully a doctor was around to witness it. I hjave since had six more seizures and have had syncopy and shallow respiration and been life flighted out to the hospital. they got me into a cardio that will see me becuase I finally got an appointment with the gp, and have a holter moniter on as we speak and have an eeg scheduled for next week, and a cardiologist consult and follow up on the 24th, and a neurologist appointment being set up; they have speculated that the afib untreated currently and although treated before but not controlled has worn down my body and heart along with the other medical issues and has thrown me into seizures. my question and reason for posting is: because I have had positive tests blown off and not followed thorugh with and do not totally understand what is going on with my body, but am finally being agressivley treated, how do I get all the information I need from my cardio? I never seem to get all my questions answered and get flustered talking to specialists. how do you guys approach getting understandable answers from your cardios? I just don't want to waste any more of my time and want to get this resolved and understand this. I am 19 years old and know little aboutmy conditions except what web md says, and I'm spinning.

Hi Amy,

Hello, Amy, sorry to hear you have to go through this at your young age. Well any age for that matter, but you are young to have to deal with all of this. Sounds like you have received good advice from Lil and Teri. I am glad you got some words of encouragement as well as advice. Welcome to our forum. Kathy

---

Hi Amy

I'm sorry to hear you're having such a terrible time at the moment.