Post Pericardiectomy Questions

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

CharlieMcGruff
New Member


Date Joined Jun 2015
Total Posts : 2
   Posted 6/22/2015 2:37 AM (GMT -6)   
Hi Everyone, I am a new member here, even though I lurked a lot previously, especially last year, when going through some tough times.

Anyway, a bit of a back story:
Just over a year ago I was diagnosed with constrictive pericarditis. At that stage I had actually lived with it for a number of years, getting an "attack" once a year, roughly a year apart. It stayed undiagnosed for many years, with different doctors ascribing the pain to various things, from pneumonia to stomach problems, but never being able to give any relief or concrete evidence or anything like that.

Last year I had another flare up and went to a GP which thankfully picked it up on the EKG.
He gave me some medicines (colchicine and something to slow my heart rate) but my condition did not improve.

I eventually got an appointment with a specialist physician/cardiologist, and he saw a noticeable thickening of the pericardium on the echo, and scheduled an angiogram and some other tests. By that time my condition had deteriorated quite a bit.

I do not have a medical aid, but only a hospital plan, so in order for them to pay for the tests I had to be booked in to hospital. By the time the results came back there was tamponade and my lungs were extremely full of fluid. (I am not that learned in all the technical terms, so I might be off on some terminology.)

Anyway, I didn't leave the hospital, and they scheduled an emergency pericardiectomy. I had to stay in the hospital for a week and wait for my condition to improve enough so that they could operate.

The surgery was successful, although I did not experience any of the immediate relief some people report. Maybe I am just not good with pain, but the first few days after was excruciating.

After about another week I went home and recovered there. After about 8 weeks I had another relapse, with identical pain and a CRP that was through the roof. I was hospitalised for another week, and all they could really do was give me cortisone and weight for the infection to go away, which it eventually did.

Now, it's been just over a year since my operation, and I seem to be getting sick again. I am again experiencing the tell tale out of breathness, raised pulse and pain when I lie down, especially on my back and left side. Has anybody experienced anything like this?

The doctors that helped me are very much of the opinion that they fixed the problem, and it cannot possibly be the same thing, so I am trying to get in to see another doctor.

TLDR; has anyone ever heard of pericarditis returning after a pericardiectomy? Is it normal to have so much discomfort and pain a year after the operation still?

Any reply or input will be muchly appreciated.

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20279
   Posted 6/22/2015 6:50 AM (GMT -6)   
hi charlie. hope it is cool to call ya charlie. just easier with vision issues. one would hope that all is good after the op. there are members who have had the op and hopefully will jump on and give you some info. definitely get that second opinion. sorry about ya pain and stuff. these symptoms are not to be taken lightly. keep strong. do not hesitate to call for assistance if you need to. better safe than sorry. many healing thoughts. even though you have lurked, welcome aboard the hw forums.
THE HAPPY TURTLE.

NOT DEAD YET!!!!! STILL KICKING AND SCREAMING!!!
'

CharlieMcGruff
New Member


Date Joined Jun 2015
Total Posts : 2
   Posted 6/22/2015 7:05 AM (GMT -6)   
Hi Turtle

Thanks for the reply. Charlie is fine smilewinkgrin
I've actually managed to get an appointment with the original gp that picked it up this friday, so I'm hoping he can give me some clarity.

If he also leads me to believe that this is just how I am going to feel from now on, then so be it, I will have to get used to it, but something sure doesn't feel right. I also worry that a pericardiectomy only fixes the symptoms and does not really address the underlying cause, which I understand is usually hard to pin down. They initially though it was TB, but all the test and biopsies came back negative.

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20279
   Posted 6/22/2015 7:26 AM (GMT -6)   
hey charlie. glad you get the same doc. yeah, maybe just something you live with. i have a heap of stuff, like us all that we live with. i feel that you will better informed once you see the doc. keep posting.
THE HAPPY TURTLE.

NOT DEAD YET!!!!! STILL KICKING AND SCREAMING!!!
'
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 24, 2018 4:43 PM (GMT -6)
There are a total of 3,006,193 posts in 329,313 threads.
View Active Threads


Who's Online
This forum has 161825 registered members. Please welcome our newest member, TheRayf.
300 Guest(s), 6 Registered Member(s) are currently online.  Details
TheIsomotion31, Kent M., BillyBob@388, 61Impala, Chutz, Kcheves