NAN!! HI YA! CONGRATS ON your almost one year anniversary, that is so very cool! Even tho, I was cut under the breasts, it still goes up halfway up to my armpits, so you can surely see it, but, yes, its getting raised a bit too, they said you can have shots of collegen to correct it, but its extremely painful, I think I will just deal with it!!
JOHN, yes, we all know that constrictive pericarditis can be caused by a blow to the chest, I was speaking in terms of the people who had constrictive pericarditis due to mysterious reason, or idiotpathic. In other words, us who have never had a blow to the chest ever. When you have not been hit in the chest, you are considered to have idiotpathic, "of unknown orgin". The only thing the doctors can trace this too in MY life, is this massive fever that I had at age 19, otherwise, I have never been sick in my life. Its interesting now, that FOUR of us, that have never had a blow to the chest have all had fevers of unknown orgin. The surgeon's at Cleveland are certain it occured from that, so if it did, then we know that this virus, that is called pericarditis, starts with a fever. (again, if you have never had a blow to the chest) If this is the case, it can be controlled by sterioid and the damage can be minimal, if realized in time. So, if anyone else that has constrictive pericarditis, due to an unknown reason, (no trauma to the chest), I still would be interested on continuing the count. Also, in answer to your question on pain upon inspiration, I had it badly, it got too the point where I would hold my breath as long as possible. I was put on pain meds, and that helped control it a lot. I still have pain, but they told me that I have so much scar tissue on and around my heart, I may always have to deal with it.
Gerry, I completely understand your frustration, I certainly went through the same thing. Strange thing is, almost fifteen years ago, I had a chest xray, and since I have pulled every record from the last 19 years, it had said at the bottom, "possible pericardial calcification", my doctor ignored it, or maybe didn't notice it, and never said a word too me. Certainly the calcification at that early stage would have been minimal, versus, the 11mms when finally diagnosed correctly. One thing I find strange as well, is they act like this is SO rare. I am shocked after this site, on how many people are getting this, I don't think this is as rare as they would like to believe. DO you have a surgery date scheduled? You will do fantastic, we all here are proud too say, everyone has done excellent in surgery, and all have gone to experienced centers to have it done, if you do that, your entire life will change after. Its been five months since I have swelled. OMG< its wonderful, not to live with that. !! Good luck to you Gerry!
Les, thank you for your kind words. The reporter was completely ignorant, and put words into my friends and families mouths, and everyone was very upset, we all wrote letters to the editor, so that he doesnt do that again. It was strange, because he didn't want to have a happy ending. When he added at the end, that I said, "i thought I would be 100% after surgery, guess i was only dreaming, and now a heart transplant is in my future", I almost fell off the chair. HE came with me to my checkup a week before the article came out, and my doctor told me the surgery was a success, and that I was doing great..the words "heart transplant" have never been mentioned, nor did I think that I would be 100% after this type of surgery, but without a doubt improved! AND AM!! Now I know why when my doctor said, "she is doing great, we are very happy with the results", and the reportee replied, "what happens if she gets sick again", and my doctor gave him the strangest look; and said, "why would you say that, when I just got done telling you how well she is doing", so its obvious now, that he wanted MORE drama then there was, (as if there wasn't enough) and did not want to end it on a happy note, which is upsetting too me, I hoped that the article would possible give someone that had this hope and inspiration that you can lead a happy normal life after. But, it doesn't upset me anymore. WE all know the truth, and 75% of that article was false..I am certainly NOT a financial burden to my family, when my insurance covered 100% of the surgery...sigh! That reporter was NOT a nice man to make things up in that article. BUT, the important thing is, I am doing great, and am so thankful to be here, and to wake up every morning!!! HAPPY HOLIDAYS TOO ALL!!!!!!!!!! Cathy