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Posted 10/17/2005 8:33 PM (GMT -8)
Hi,

I normally post on the Lupus board but I thought I would come over here because I have a lot of heart problems.  I have had mild pulmonary stenosis since birth.  I now have moderate pulmonary stenosis, mild aortic stenosis, heart enlargement and leaky valves.  Today I was having some problems so I went to the Cardio and she is concerned that I may have a shunt.  Does anyone here have that?  Could you share with me what symptoms you have and what has been done for it?

I am scheduled to have a CT of my chest and heart, an echocardiogram with bubbles and a 48 hour HOlter Monitor on Friday.  The doctor also mentioned the possibility of an anomaly of the veins of my heart or a possible pulmonary emoboli.  I am getting pretty worried about all this.  I was just diagnosed in June with Lupus and now it seems like my whole body is falling apart.

Well,thanks for listening.

Mary Ann

Posted 10/17/2005 10:07 PM (GMT -8)
Hi Mary Ann! tongue

 

It's nice to meet you, but I'm sorry that all this is going on with you!  It's difficult at best to deal with a combination of illnesses and when it does concern your heart, it does get a bit more serious.

 

Here is a link that I think you will find very helpful and if you need more questions answered, please feel free to come back and just ask!!

http://www.merck.com/mmhe/sec03/ch028/ch028i.html?qt=cardiac%20shunt%20for%20pulmonary%20stenosis&alt=sh

 

Wishing you all the best!

 

Hugs, Teri tongue

I know this is all so overwhelming for you, if you need someone to talk to - I'm here.

Posted 10/19/2005 4:44 PM (GMT -8)

Thanks, Teri for the link.  It is great.  I am going to print it out and keep it for further reference.

Mary Ann

Posted 10/21/2005 6:13 PM (GMT -8)

Well, I had my tests done today and they are pretty sure I have a shunt.  They are going to do another test in the hospital where they will put me to sleep and put a tube down my throat with a camera attached.  I believe it is called a TEE.  I don't know when that will happen. 

I go back on Nov. 2nd for all the results but they could see the shunting happening on the echocardiogram.

I guess I will do some research and try to find out about this now.

Mary Ann

Posted 10/21/2005 7:13 PM (GMT -8)

Mary Ann, you sure are learning all the terms quickly - though you sound very on top of things.  That's always a great sign!

Another link that may be of some benefit... http://www.nlm.nih.gov/medlineplus/ency/article/000157.htm
may also be used to search for anything else you need help with in finding.

I wish I knew more to help you, but if you ever need a shoulder, or would like to go into chat, please just let me know!!

 

Bunches of Hugs, Teri tongue

Posted 10/22/2005 10:54 AM (GMT -8)

Thanks, Teri,  I feel better today now that everything has had time to sink in.  I am going to look at this as a positive thing.  That they will be able to fix it and I will feel a lot better when they are done.  Hopefully, some of the fatigue I have will go away and then I will feel more "normal"

Thanks for the website.  I am going to go and look around on it right now.

Mary Ann tongue

Posted 10/22/2005 11:40 AM (GMT -8)
My best wishes to you Mary Ann!! yeah

 

Good luck and lots of Hugs, Teri tongue

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