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NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 10/17/2005 9:33 PM (GMT -7)   
Hi,
 
I normally post on the Lupus board but I thought I would come over here because I have a lot of heart problems.  I have had mild pulmonary stenosis since birth.  I now have moderate pulmonary stenosis, mild aortic stenosis, heart enlargement and leaky valves.  Today I was having some problems so I went to the Cardio and she is concerned that I may have a shunt.  Does anyone here have that?  Could you share with me what symptoms you have and what has been done for it?
I am scheduled to have a CT of my chest and heart, an echocardiogram with bubbles and a 48 hour HOlter Monitor on Friday.  The doctor also mentioned the possibility of an anomaly of the veins of my heart or a possible pulmonary emoboli.  I am getting pretty worried about all this.  I was just diagnosed in June with Lupus and now it seems like my whole body is falling apart.
Well,thanks for listening.
 
Mary Ann
Diagnosed MCTD, Fibromyalgia June 2005
 
 
Diagnosed with Aortic stenosis, leaky heart valves, heart enlargement on both left and right sides, one side larger than the other - July 2005
 
Congenital Heart condition-Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
 
"No matter what happens, God is in control.  He is God, I am not, what a relief!"


Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 10/17/2005 11:07 PM (GMT -7)   
Hi Mary Ann! tongue
 
It's nice to meet you, but I'm sorry that all this is going on with you!  It's difficult at best to deal with a combination of illnesses and when it does concern your heart, it does get a bit more serious.
 
Here is a link that I think you will find very helpful and if you need more questions answered, please feel free to come back and just ask!!
 
Wishing you all the best!
 
Hugs, Teri tongue
 
I know this is all so overwhelming for you, if you need someone to talk to - I'm here.
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 10/19/2005 5:44 PM (GMT -7)   

Thanks, Teri for the link.  It is great.  I am going to print it out and keep it for further reference.

Mary Ann


Diagnosed MCTD, Fibromyalgia June 2005
 
 
Diagnosed with Aortic stenosis, leaky heart valves, heart enlargement on both left and right sides, one side larger than the other - July 2005
 
Congenital Heart condition-Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
 
"No matter what happens, God is in control.  He is God, I am not, what a relief!"


NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 10/21/2005 7:13 PM (GMT -7)   

Well, I had my tests done today and they are pretty sure I have a shunt.  They are going to do another test in the hospital where they will put me to sleep and put a tube down my throat with a camera attached.  I believe it is called a TEE.  I don't know when that will happen. 

I go back on Nov. 2nd for all the results but they could see the shunting happening on the echocardiogram.

I guess I will do some research and try to find out about this now.

Mary Ann


Possible shunt (hole) in the heart.  October 2005
 
Diagnosed MCTD, Fibromyalgia June 2005
 
 
Diagnosed with Aortic stenosis, leaky heart valves, heart enlargement on both left and right sides, one side larger than the other - July 2005
 
Congenital Heart condition-Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
 
"No matter what happens, God is in control.  He is God, I am not, what a relief!"


Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 10/21/2005 8:13 PM (GMT -7)   

Mary Ann, you sure are learning all the terms quickly - though you sound very on top of things.  That's always a great sign!

Another link that may be of some benefit... http://www.nlm.nih.gov/medlineplus/ency/article/000157.htm
may also be used to search for anything else you need help with in finding.

I wish I knew more to help you, but if you ever need a shoulder, or would like to go into chat, please just let me know!!
 
Bunches of Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 541
   Posted 10/22/2005 11:54 AM (GMT -7)   

Thanks, Teri,  I feel better today now that everything has had time to sink in.  I am going to look at this as a positive thing.  That they will be able to fix it and I will feel a lot better when they are done.  Hopefully, some of the fatigue I have will go away and then I will feel more "normal"

Thanks for the website.  I am going to go and look around on it right now.

Mary Ann tongue


Possible shunt (hole) in the heart.  October 2005
 
Diagnosed MCTD, Fibromyalgia June 2005
 
 
Diagnosed with Aortic stenosis, leaky heart valves, heart enlargement on both left and right sides, one side larger than the other - July 2005
 
Congenital Heart condition-Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
 
"No matter what happens, God is in control.  He is God, I am not, what a relief!"


Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 10/22/2005 12:40 PM (GMT -7)   
My best wishes to you Mary Ann!! yeah
 
Good luck and lots of Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:

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