Need to talk to someone about POTS (quite long vent, sorry)

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Regular Member

Date Joined Jun 2015
Total Posts : 27
   Posted 8/9/2015 10:38 PM (GMT -6)   
I feel overwhelmed...ever since about 8 months ago I've had issues with mostly dizziness...I found so much stuff on the internet about how it could be caused by anxiety or whatever, and that made me feel better. But I'd never had anxiety.

Sometimes it's gone or not so bad, but recently it's come back quite a bit. And then I made a discovery...that my heart rate rises from around 70 to like 110/120 when I go from lying to standing. Sooo...POTS.

I don't know what to think, but mostly, I'm sad. I've read everything about POTS on the internet, which isn't much. Things seem encouraging, with some figure about 80% of people seeing improvement or something..but I didn't get this during puberty and grow out of it like it says most girls do...I am 21 years old and it has just begun. I cannot help but think this bodes ill for prognosis.

It hasn't been THAT bad for me. In fact before I did the heart rate test I don't believe I ever noticed being lightheaded when I stand up or anything. I just get dizzy, and it usually gets worse if I've been walking for a while. It's not been hugely life altering- school has been a little bit of a struggle, but I got a 4.0 last semester!...I walk, I go do things with my family...sometimes I just feel dizzy and not very good. I don't get bad headaches or nausea and I've never fainted. There have even been weeks when most of this has gone away.

But the things I've goodness! 25% disabled and unable to work...people say it ruins their lives, dreams...what if this gets worse, doesn't get better? I have not seen much positive online about this to support the optimistic statistics about improvement.

I always somehow thought these issues I've been having would go away.

Sorry for the long vent, I just need someone who knows about POTS to kinda help me put this in perspective about what to expect. No one seems to get it, my mom insists it's emotional and I'm making my heart rate go up when I stand. I'm just scared.

Veteran Member

Date Joined Oct 2009
Total Posts : 5024
   Posted 8/10/2015 5:22 PM (GMT -6)   
Welcome to the forum.

Lots of young women get postural orthostatic hypotension, which triggers POTS. When your blood pressure suddenly drops, like standing up, your heart races to get the pressure back up. I'm no spring chicken and I have this occasionally. In fact it happened to me when I stood up to get on the treadmill for a cardiac stress test this morning.

You need to see a cardiologist about this, but it's usually no big deal. Just get up slowly, says my doc. Some people need to eat a little salt or take a med to get blood pressure up, still no big deal. One of my doctors takes salt for low blood pressure.

You might also have to carry some water to stay hydrated. Still no big deal.

Don't worry about a prognosis until you get a real problem, and I'll bet this is something that will ease up as you get a little older.

But make sure! See a cardiologist! And congrats big time on the 4.0!

New Member

Date Joined Oct 2014
Total Posts : 9
   Posted 8/27/2015 4:29 PM (GMT -6)   
I have POTS too, and maybe other conditions. Im one of the 25%. My advice will just be to forget about the anxiety thing. It doesnt do anything. Well you can FEEL dizzy from anxiety, but you really arent. Its a psychological trick.

POTS however causes this lightheadedness like I also have when walking. Your condition sound benign for the time being, just dont hesitate too seek help from a cardiologist if it gets worse.
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