Child's Complete Heart Block Question

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jambermush
New Member


Date Joined Jan 2012
Total Posts : 7
   Posted 11/10/2015 2:21 PM (GMT -7)   
Hi there,
My son was diagnosed with a complete heart block just before his second birthday. This was discovered by accident when his routine obs were being done due to a virus he had. He is now 3 and a half. The plan so far has been to monitor him every 6 months with a holter and every 12 months with an Echo scan with a view to him having a pacemaker when the time comes. He was asymptomatic aside from bradycardia until a week ago. He has since been complaining of dizziness, and has stumbled once and lost balance and fallen on another occasion. He was admitted to hospital after the stumbling and monitored overnight but on communication to his heart specialist, he was sent home the following day. After his losing balance and falling I again contacted his consultant and told not to worry until he actually loses consciousness during one of these episodes.
Now I'm sure you can imagine, as a Mother, this is incredibly alarming to hear and even contemplate.
My question is, if the specialist consultant knows my son will be having to have a pacemaker, why are they waiting until he loses consciousness (or worse) before doing so?

Thanks in Advance,
Emma

Katie1912
New Member


Date Joined Apr 2017
Total Posts : 1
   Posted 4/25/2017 3:33 AM (GMT -7)   
Hi Emma,

I know this post is quite old now but I was just wondering what the outcome was for your son? I am in a very similar situation at the moment; my boy was diagnosed at 13 moths and again, we are waiting for him to lose consciousness before he has a pacemaker. How is your son doing now?

Thanks

Katie

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20097
   Posted 4/27/2017 3:20 AM (GMT -7)   
hi katie, the original poster i have not seen around. i keep an eye out. others will pop in. forum is slow. welcome.
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