Ascending Aortic Aneurysm

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GA1234
New Member


Date Joined Mar 2016
Total Posts : 2
   Posted 3/14/2016 9:49 AM (GMT -6)   
I just found this website and have been reading all of the posts. However, have there been no posts on this thread since May 18, 2013
My husband was dissected an ascending aortic aneurysm starting at aortic root with a 3.9cm in January, 2016. My husband was referred to see a cardiologist and was told to follow up in a year. And the cardiologist didn’t give any recommendation on food, exercise etc. Nothing. We plan to have a second opinion.

We are in Atlanta, if you can share your doctor in Emory University, it would be very appreciated.



I have removed your email address to avoid your mailbox being bombarded with spam. Posting personal information is not allowed for this reason. Thanks.

Post Edited By Moderator (straydog) : 3/21/2016 11:58:18 AM (GMT-6)


TXHeart
New Member


Date Joined Apr 2012
Total Posts : 4
   Posted 3/14/2016 11:30 AM (GMT -6)   
Hi GA1234, I just checked this thread after not being on it for at least 3 years! I am 52 and also have an AAA diagnosed 6years ago at 4.2cm. Mine has been "stable"...no change since then. Although I had normal BP I am on a low dose beta blocker to reduce stress on the aneurysm. My cardiologist advised moderate exercise such as walking or biking but nothing that would cause rapid increase in HR such as running stairs. My doctor is also not in favor of heavy weight lifting. I have a CT scan every 6 months and usually an echocardiogram yearly. Typically, AAA's grow slowly and most literature shows surgery is not considered until it gets to 5.0cm. If you are not happy with your current cardiologist I would definitely get a second opinion. I am in TX so can't help with a referral in GA, but I am sure you can find good information online about doctors in your area. It can be overwhelming at first but the positive side is now your husband can have it monitored and take steps to try and keep it stable.

Shasari
New Member


Date Joined Oct 2014
Total Posts : 8
   Posted 3/14/2016 3:05 PM (GMT -6)   
Hello GA1234,

I too have an ascending aortic aneurysm of 4.7cm, and as part of my doctors' information they say to avoid heavy lifting / weight lifting, or straining in such a way to put the same types of muscular strain on the chest and raise BP as you would weight lifting.

They have prescribed mild cardio exercises for me, and yearly imaging via CT scan to keep tabs on it (I have also a moderate to severe pulmonary aneurysm, but these are rare). I take 25mg of atenolol daily, which is a beta blocker to keep the force with which my heart beats down, thus taking strain off the aneurysm.

As TXHeart said, if you're not happy with your current level of care by all means get a new doctor. I went through 3 in Kaiser before switching to a PPO plan with BlueShield of CA through my employer, and am under the care of a cardiologist at Stanford now, and I don't regret the switches.

Also, I'd suggest reviewing only reputable sites such as Cleveland Clinic, Mayo Clinic, Cedars-Sinai, Stanford, UCSF, UC Davis and other top hospitals when researching to make sure you are getting quality information that's up to date.

Best wishes for you and your husband.

Post Edited (Shasari) : 3/15/2016 10:12:08 AM (GMT-6)


jdiane
Veteran Member


Date Joined Jan 2003
Total Posts : 1156
   Posted 3/15/2016 8:09 AM (GMT -6)   
Hi GA1234, I am also in Atlanta and a patient at Emory. I too have an AA, but I am a congenital heart patient, so I go to the Adult Congenital Heart Disease Clinic at Emory (I see Wendy Book and Michael McConnell). And because I'm congenital, my surgeon there is a pediatric surgeon at Children's who does the Adult Congenital patients at Emory, Dr. Brian Kogan.

I have a prosthetic aortic valve and my AA measures about 3.9. I also am checked once a year. Cardiology isn't great with offering nutrition or exercise info. I am super active and run, climb and do crossfit. I do however watch my weight in strength training to avoid over straining. I eat a natural organic diet, with no sugars or processed foods. I take a beta blocker as preventative care for the AA.

I take my Dad to Emory Cardiology as well and he sees Dr. Lutz, who I've been pleased with. http://www.emoryhealthcare.org/physicians/l/lutz-jerre.html

best of luck to you and your husband.

gcw
New Member


Date Joined Dec 2015
Total Posts : 18
   Posted 4/14/2016 6:11 PM (GMT -6)   
To GA1234: I just came across your post on AAA surgery. I would like to pass on to that I had my surgery on Feb/23/16, at Wake Forest Baptist Hospital. By Dr. Kon, top notch surgeon in this field of AAA. And of this day, 4/14/16 so far all is going well. I had issues coming out from surgery, but those have passed.

I stayed at the hospital for 8 days, and was released. The issues I had while there, was my ox level did not stay where they wanted, and was put on ox, and work up to the level needed. Also as taking pain meds/stool softener was part of the meds, and getting closer to the week, I was given a lax, and by the end of the week was fine. Blood work all was fine. They had me walking the second day, which is the best thing to be done, move, walk. Get out bed. And walked around the hallways, and each day it became less hurting. And off course all folks who have this surgery got a heart pillow to hold on to while walking, sitting, laying. As of this day, I still use it my car for the seat belt, and in bed, and while I cough, hold it tight against my chest, and believe me it helps cushion the coughing.

The only issue I have at this time is sleeping, and from reading other post, this is to follow from this surgery, so I read other folks post, read into internet, and inquire. I am going to try natural helpers, and try to stay away from over the counter. Cause they some time hang on in your system and make you feel worn out, tired, and drowsy. Oh, I do have food issue, not in eating taste, smell, and fluids. It does not take much for me to put food down, and not eat cause of taste is terrible. Fluids to me leave a metallic taste in mount. But its part of the surgery. I did have bloating issues after I came home and gas built up, but (pardon the pun) it cleared out of me.

The surgeon told my wife when I was done, it took a little bit longer, cause it was some what more damaging when they went in, than what he saw in the xray, pics, and so forth. But every thing was done, properly, and corrections were done. I have my valve replaced, the aorta replaced, aneurysm removed. I was on the table a little bit longer. But thank God and prayers and thoughts, all went well. I know reading other post, some folks have issues and still do, and my thoughts and prayers to them for a good recovery and healing.

I now have to wait, to have my physical and lab work done at VA, and had follow up with the heart doctor at VA, which told me the healing all is going well. I do have to return in 6 months for xray and other pics to be sure. Then therapy will be added to my healing and well being. I wanted to return to work sooner, but understanding the surgery was a major blow to the body and mind, so precautions is at the highest to make sure the body returns to what is was before. I have to keep that in my mind and not jump ahead. So I hope this helps you some understand what I went through with the AAA surgery. And if I may, keep inquiring asking questions, look through this site which I am thank full I joined when I did. I got a lot of good insight and answers just reading from other folks going into the AAA surgery and those after it.

So keep reading and asking, and good luck. Oh, by the way, I am 64 years old, cant wait to get back to work, I already counted all the spackle on the ceiling, ahahha! but any I hope this reply helps understand this person coming out from AAA surgery. God Bless.
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