anyone here with POTS?

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rcg108
Regular Member


Date Joined Mar 2016
Total Posts : 66
   Posted 5/4/2016 11:22 AM (GMT -7)   
I just recently found out that I have POTS and my Dr said we could try a beta blocker it wasn't necessary but said if I were his daughter he would try it. I was prescribed toprol I haven't started it yet. I was wondering if anyone else has this and what they do to help I know exercise is a big part of treatment but I'm afraid to exercise since when I stand up my heart rate can go as high as 130 then to 150 just from walking around in the kitchen. I don't know anyone else who has this.

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 19898
   Posted 5/5/2016 3:22 AM (GMT -7)   
I don't have pots but have had meds do similar. I have heard good things from the beta blockers for pots. keep well. if the doc is recommending it, I would try it out.
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Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 6/24/2016 9:30 PM (GMT -7)   
This forum is running a little slow for now, but hopefully someone will come by.
I would say to do your best to keep active, even if it raises your bp, just that maybe wear medical tags or medical id's that say heart condition and then maybe a reference to pots. I carry a medic alert id card and the bracelet sometimes..
Also you can maybe do a google search on pots/heart condition.
Hope this helps and please stay with us on healingwell and posts updates.
When is your next follow up?
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Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 6/25/2016 9:30 PM (GMT -7)   
You can also try getting plenty of fluids and water, as that is supposed to help. Something I read.
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

viscosity
New Member


Date Joined Jun 2016
Total Posts : 8
   Posted 6/29/2016 6:38 AM (GMT -7)   
My doctor says I just have a young heart... When I sleep my resting is about 54. When Im sitting up 64. Standing 99ish.. When im active its about 112... Sitting midday 88. Laying midday 80. Standing midday 104.... So we dont know... cause pots usually goes up and up... Mine just rises more than usual. Im sinus tachy a lot.

CinnamonSticks
New Member


Date Joined Oct 2017
Total Posts : 3
   Posted 10/12/2017 11:59 AM (GMT -7)   
I have been diagnosed with POTS for about 7 mos, but I've been dealing with it for much much longer. Personally, my heart rate is between 110-130 while laying down or sitting, 130-160 while standing, and 150-195 with light exercise (walking, walking up a hill). I've never been on beta blockers but I highly recommend Florinef. Remember that there are a LOT of possible meds to try with POTS.
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