Hello... my name is Amiee and i'm 14 years old.
I was born with a heart condition called dextrocardia (for those who don't know what it is.. it's where my heart is in the wrong side of my chest). This is causing me loads of problems, i have to take all sorts of tablets and things, like warfarin, digoxin, amiodarone and others. I've had 3 ablations in total, first one 7 burns, second one 14 burns and 3rd one 26 burns, it was horrible and now i have a pacemaker which does help get rid of some of the horrible rhythms. I was also diagnosed type 1 diabetic in August.. as if the heart thing wasn't enough!
Anyway, my problem now is that i'm loosing blood because of my heart (i think), i wanted to know if anyone has the same problem as me? i am a regular at the hospital, i keep needing blood transfusions, and even the doctors don't know why!! i'm very fed up with it, this heart thing is getting to me.. i get tired all the time, out of breath and i look blue.. like a smurf!!
ok, i've had my moan!! just wanted to know if anyone was in the same boat as me.