Heart murmur detected, need feedback

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Minnesota
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Date Joined Jan 2012
Total Posts : 252
   Posted 1/26/2017 8:50 PM (GMT -6)   
Curious if anyone can comment on this.  Last week I was having a pre op appointment by my GP in order to have an ERCP procedure next week for a bile duct issue I have had for a few years now. I normally have posted on the irritable Bowel/Digestive disorders forum but this issue has me here.  My doctor detected a murmur, and had me get an ECHO done that same afternoon.  My docs nurse called me today and said that there is some regurgitation occurring, and that he will send me to a cardiologist soon.  Just wondering what this means.  No symptoms in that area of my body, but I read that an enlarge liver and sweating excessively are 2 symptoms that align with having a murmur.  In the past 3-4 months I noticed that at times when my gut issues are the worst I really sweat a lot more when I exercise, and it smells weird.  Plus the swollen feeling inside me on the right side under the rib cage.  Not sure if my bile duct disorder and this murmur thing are related, or if this is just yet another issue to deal with. 

theHTreturns...
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Date Joined Mar 2009
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   Posted 1/26/2017 9:36 PM (GMT -6)   
regurg means a leaky valve. some overflow, very common. keep us posted. not sure on the duct and murmur combo.
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Minnesota
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Date Joined Jan 2012
Total Posts : 252
   Posted 1/29/2017 11:22 AM (GMT -6)   
Thank you for the reply. When you say common, does that mean a condition that doesn't need anything other than periodic monitoring? Or until symptoms arise? Any time you talk about the heart it can get a bit concerning.

TroubledTurds
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Date Joined Jan 2004
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   Posted 1/29/2017 12:56 PM (GMT -6)   
i was dx'd 4 years ago with aortic vale stenosis (narrowing of the valve) after my GP detected a murmur - had the valve replaced 18 days ago and i'm feeling great -

you just have to keep an eye on it, but hopefully yours can be treated w/o surgery, but if it does come to that, rest assured, it's a piece of cake -

good luck -
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

Minnesota
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Date Joined Jan 2012
Total Posts : 252
   Posted 1/29/2017 1:40 PM (GMT -6)   
well, that is good to know and thanks for sharing. Curious what test led to the dx. The ECHO did confirm that there is regurgitation happening, but I have no clue about what would trigger a surgical procedure versus not having that done. I see a cardiologist in 9 days which obviously will give me an idea of what I am dealing with. But any more details you can share would be appreciated! Thanks!

TroubledTurds
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   Posted 1/29/2017 3:31 PM (GMT -6)   
ya, your cardiologist will certainly shed some light on the situation - it took almost 4 years for symptoms to start showing up for me - although looking back, i can see that there was a gradual decline in my energy level - not sure about how regurgitation alters things tho -
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

straydog
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   Posted 1/30/2017 1:01 PM (GMT -6)   
M, I have regurge in the aortic valve that was found when I was 28, now 63. Over time it has progressed but slowly. I am monitored & checked yearly. Keeping my blood pressure under control is a must because of the valve.

Let us know how your appt goes with the cardiologist. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Paxton
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Date Joined Aug 2016
Total Posts : 1063
   Posted 2/1/2017 2:25 PM (GMT -6)   
Typically, heart valve defects are first noted when the patient presents with a murmur. From the murmur itself, the doctor often cannot determine the cause. An ultrasound (echocardiogram) is usually the first (non-invasive) diagnostic test used to determine the type and severity of the defect. Many valve defects are detected and then monitored with annual echo's for many years before surgery (if any) is necessary.

I was diagnosed with aortic stenosis (narrowing and stiffening of the aortic valve) at age 52. I lived a totally normal life (running, weights, gym 5-6 days a week, travel, etc.) until age 63, when the valve was finally replaced.

As far as enlarged liver and heavy sweating being "aligned" with a murmur, I think you've skipped a few steps in your analysis. The murmur itself is just another symptom that indicates a potential problem with one or more valves or other structures within the heart. The liver and sweating issues may align with regurgitation of one (or more) of the valves, but there are many causes for murmurs - not all linked to regurgitation, and the symptoms you mention may be related to one valve regurgitating, but not the others. (Don't forget - the heart has 4 valves.

Each case is different. Many never do need surgery. Some do. If they say "not now" then just live your life and have it monitored when they tell you to. Definitely see a good cardiologist. If you don't "click" with the doc, find another. Life is too short to have a doctor treat a young person like an oldster.
Age 68 at Dx
PSA history: 2000-2012 0.9-1.2; 06/2012 started T replacement
2013-2015 3.0-3.3 (new normal); 11/2015 4.6; 05/2016 5.7
Biopsy: 12-core biopsy 07/2016; 3 cores G3+3, 5% or less; 1 core 3+4, 15%; 1 core HGPIN; 2% of gland involved. Summary G3+4.
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Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 252
   Posted 2/6/2017 3:52 PM (GMT -6)   
This is what I love about this forum, such great feedback from folks who have been there.  I saw my cardiologist this morning, and he did say my valve is not shutting properly and that some regurgitation is happening, along with my aortic valve being almost too wide....on the upper end of the range of what is considered normal.  He wants me to have another EHCO in 6 months to then compare.  If this is degenerative (which he thinks it will be) that at some point in the future he indicated surgery would be the proper way to treat this, replacing the mitral valve.  In the meantime, I need to be very watchful of shortness of breath, lightheadedness, and abnormal fatigue.  Mentally I am in a bit of a funk because this issue is on top of another health issue I am having with my bile duct as mentioned in the original post.  I also got the feeling from him that surgery would be in my future at some point being I am on the fringe of what he thinks can be a wait and see approach.  I try to be very active and run/bike to stay in shape.  I am 53 and would like to remain as active as I can for as long as I can.  If anyone can share how they handle the "heaviness" of multiple health issues please share.  Just kind of bummed out after hearing this today even though it isn't a surgery situation, at least not yet.

TroubledTurds
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Date Joined Jan 2004
Total Posts : 8346
   Posted 2/6/2017 9:02 PM (GMT -6)   
the first thing i would suggest is continue doing what you are doing until someone tells you otherwise - but again, mine was the arotic and not both so i make be talking out my ass - try to keep as healthy as possible, so if and when the time comes, your body will be as good as it can be - my recovery from my OHS almost 4 weeks has been, at least in my thinking, amazing - and i think being in fairly decent shape has contributed to that -

i experienced a TIA about 17 years ago - it was pretty significant at the time, but because there wasn't anything test wise that indicated why i had it, there wasn't a whole lot to do about - so it didn't long for thoughts of it to quickly diminish -

it's hard to hear that we're having something else to add to our plate - the last thing i wanted to hear was that on top of ulcerative colitis, i now had a heart issue to deal with - it sucks, but the only real viable option is to just go with the flow -

hang in there - i suspect you'll feel better about things everyday -
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

OlderNH
New Member


Date Joined Mar 2017
Total Posts : 3
   Posted 3/14/2017 10:42 AM (GMT -6)   
I'm a male and 80. I was born with a heart murmur. At age 10 I remember the doctor saying I wouldn't last until my mid 50's. about 15 years ago my Internist referred me to a cardiologist. He changed my medications, adding Blood Pressure lowering drugs. I then received yearly echocardiograms. I was graded as having Moderate Mitral Valve regurgitation. In late 2012 my Grade moved from Moderate to Severe. I had no symptoms and was working out weights and treadmill regularly. At 75 I was very active but the medical advice was that I should have my Mitral Valve repaired as it would become medically dangerous later. In November 2012 I underwent Mitral Valve Repair at Boston Brigham Women's. A Ring was attached to my Mitral valve. It reduced some of the regurgitation. But a week later I developed AFIB Atrial Fibrillation. I had Two Ablations which didn't work. So since then I have been on Blood thinners and have to go in monthly for blood tests. I recently underwent treatment for Cardiac Cancer. I'm doing well and back at the gym. The doctors were elated with my fast "waking up" coming out of open Heart Surgery. Luckily the Cardiac Catherization had verified that all my arteries were "open" . Exercise all along I feel, is keeping me alive.
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