Chances of aortic dilation in Ehlers Danlos Syndrome?

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bflare
New Member


Date Joined Feb 2017
Total Posts : 1
   Posted 2/5/2017 2:57 PM (GMT -7)   
Hello. I am a 38 year old male who was diagnosed with Classical EDS about 10 years ago. My father as it who is 59 & his sister who is 55. Their mother, my grandmother also had it & died of what I was told was an heart attack at 45 years old. She had high blood pressure & a heavy smoker, she was also a nurse. I had an echocardiogram at approx 15 years old at which a slight leak was found on one of my valves. I have had another 2 routine echo's since then all normal apart from this slight leak which I was told was that normal it was insignificant. My most recent echo was 3 years ago in which the letter to my doctor said "Mr ........ has now had a cardiac ultrasound to assess the aorta which can become dilated in EDS. I am pleased to say that the cardiac ultrasound is normal. It might be worth a further review in 5 to 10 years or earlier if indicated". I have joined a gym to strengthen up my muscles because I am hypermobile also. I am very fit with good blood pressure & good weight. I keep worrying that even the my aorta was ok in the scans that I may have some kind of problem in the near future especially as my grandmother died because of a heart problem. Also my uncle died in his late 50's who did not have EDS as far as I am aware of a left ventricle thrombosis.

What are the chances of me developing a dilated aorta?

Am I unnecessary worrying?

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20098
   Posted 2/6/2017 8:02 PM (GMT -7)   
hi. you have the right boxes ticked, minor leaks, regurgitation, is very common. all ya markers are good, so live life. keep being positive, keep up fluids as kidneys sort ya blood pressure, as this effects the ticker. otherwise if the doc is happy.......then the genetics takes a whack to the guts. if all of ya markers were bad...............then you might have something to worry about. take care. break the cycle and keep well. thx for posting and sharing.
THE HAPPY TURTLE.

A QUOTE FROM THE HAPPY TURTLE THAT REFLECTS ME.

"COMPLEXITY IS MY WAY OF EXPRESSING MY NEEDS IN A MANNER THAT IS NEITHER DESTRUCTIVE, NOR NEGATIVE"
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