My apologies in advance for the long post - at very least writing this has helped me get my thoughts in order!
Hi guys. I've been hesitant to write this for a while - I'm still not sure if this is the correct sub-forum for this post! - but perhaps someone can help me join some dots on this. (Disclaimer: I live in Tokyo and all advice given me to me by doctors thus far has been in very simple, and *very* broken English.)
I am a 29 year old, slim and active British male (~172cm/58kg). 5 or so months ago I began to experience dizziness
and extremely painful headaches which I sought a CT without contrast for ("normal"), and which were eventually (briefly) resolved with a 12 week course of massage and one final - very painful - acupuncture session. (My broken-English GP told me the headaches were simply "due to the dry, cold weather", however the acupuncture therapist said it was definitely occipital neuralgia
and judging by the way she could turn the pain off and on using a needle or two I think I'd definitely side with her!)The doctors also told me "James Bond is from England and he doesn't get dizzy", and "buy a watch and breathe in every 3 seconds"(!)
Fast-forward to about
6 weeks ago and huge, blue, bulging varicose veins
in my legs have simply not stopped appearing, pulsing and burning (deeply) - they are getting more prominent and painful almost daily. (The left side are dark blue, tangled and concentrated on my inner calf, however the right side are long, hard, straight, a lighter blue and mostly on the back of my thigh.)Other symptoms:
The left-sided headaches (and tender-to-the-touch back of scalp) are back. Daily. Over the past 6-8 weeks or so I have also begun to experience:
- A very strong and random bounding pulse (particularly felt on the left side of my neck, chest and back of head)
- Incredibly strong heart palpitations ("PVCs"?) that stop me in my tracks (picked up in a stress test - see below)
- Pain in/across various veins in my body - particularly in a newly visible, dark blue vein just above my left hip (and - both - aforementioned legs)
- Pain in my left arm (primarily in the largest vein in my bicep?)
- Dizziness and feeling short of breath at almost all times when standing (eased somewhat whilst walking)
- My breathing and movements have also begun to feel incredibly jittery. (Instead of one long, sweeping breath - imagine a gentle wave on a shore - my breathing feels like it's staggered and broken (almost like I'm shivering inside); likewise when I'm moving - I feel like my bodily FPS have been halved)
- Fasciculations (everywhere)
- Occasional temporary deafness (left ear - a few seconds every now and then)
- Dental pain (primarily left wisdom tooth extraction site)
- Sudden coldness / (very) pale skin
- Feinting (vasovagal syncope - see below)
- Anxiety (perhaps obviously!)
- Muscle pain in neck and back (nothing new but definitely worse, however perhaps just from tension)
- In addition, I've also been experiencing intense "internal" tremors/twitching (often at the same time as the bounding heartbeat - particularly felt in/whilst sitting with my back against something or lying flat in my bed).
- These tremors/twitches are visible - have been getting worse daily - and can be seen & felt by others (especially when sharing a bed or bench)
- It may also be worth mentioning that when I stand after a long period of sitting, the veins in the palms of my hands (all veins - both large and small) become very visible and a very dark shade of blue, too.
I eat well, sleep well, walk often, took up swimming last week and take no pills / medication except for a daily multivitamin (and/or light painkillers when the head pain is unbearable).Medical findings:
A recent D Dimer blood test - which I fainted
several minutes after (I've had a problem with vasovagal syncope for as long as I can remember - most notably after being brought around from a general anesthetic / Wisdom Teeth extraction surgery last year), chest CT scan (without contrast), chest X-Ray, blood-test(s), ultrasound of my heart and ultrasound of my legs - again, incredibly painful as he tested for "milking" - have supposedly ruled out DVT, diabetes, significant heart failure and/or any embolisms, however I have been scheduled a follow-up appointment with a specialist (3 weeks later / in 7 days) for "clarification". (The valves in my legs are definitely "faulty and pool for 10+ seconds" - approximate translation.)
I also took a treadmill ECG which I "failed" (experiencing "a very strong PVC from my left ventricle in the recovery period") and recently wore a Holter monitor. (I will get the Holter monitor results at the same aforementioned follow-up / Q&A session in 7 days.)TL;DR (thank you if you've made it this far!): I am experiencing daily occipital neuralgia (left-sided neck/headaches/ear popping), sudden, painful - and worsening - varicose veins on both legs, arrhythmia / PVCs (picked up on an ECG), dizziness / shortness of breath whilst standing, a bounding pulse and intense tremors/trembling particularly whilst lying flat.
Can anyone shine any light / join any dots on what might be happening here?! My father had DVT and died of a heart attack in his 40s and my grandmother (mother's side) died of a sudden brain aneurysm in her 30s so I'm sure genetics / anxiety are playing a part to an extent, but can any of these symptoms - sudden / worsening varicose veins / arrhythmia / occipital neuralgia / PVCs etc - be linked? Or should I be tackling these issues individually (or not at all)?
The doctors here in Japan seem to respond quite well to direct questions when pushed with Google Translate (I have to pay for everything, anyway), however if I ask no questions I simply get no answers. Could POTs / MS / Lyme / Fibro / anxiety / something else be an issue here? Should I request a tilt table test / MRI? Nothing at all?! Thank you all so much in advance for any suggestions on what to do/ask next (and my apologies again if this isn't exactly in the right sub-forum)!
--------------------------Appendix (leg ultrasound summary Google Translated to English):左小伏在静脈起始部に瘤状の拡張を認め、ミルキングで膝窩静脈から10秒以上の逆流を認めるこの際に本人大腿部にも痛みが生じると逆流認めない
"In the beginning of the small saphenous vein, a knoby extension was recognized and reflux from the popliteal vein was observed for more than 10 seconds at the milking. At this time, if a pain also occurs in the thigh of the person, reflux will not be recognized."
"Ultrasonic findings (summary), left small saphenous vein left small saphenous vein in the root of the veins to recognize dilatation of the root → follow the periphery but reflux is unobtrusive and no findings suspected of failure penetrating branches are noticed. It may be a symptom caused by an aneurysm of the left lower saphenous vein. Obvious incomplete penetrating branches are not allowed."