Crossing over from prostate cancer forum.

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pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 6/24/2017 6:47 AM (GMT -7)   
Hello,

I joined Healingwell in 2008 after having prostate cancer. I found the posts concerning prostate cancer very useful and informative. Happily I've been able to put prostate cancer behind me since my PSA has been undetectable since my surgery. Hopefully it'll stay that way.

In 2012 I was diagnosed with non-Hodgkin lymphoma and spent 2 years on chemo. I'm presently in remission and hopefully it'll stay that way.

So here I am. I spent a good part of my life with a heart murmur that I just ignored. Whenever a doctor listened to my heart he would point out that I had a heart murmur and I would say yeah, I know. Last summer my primary doctor insisted that I see a cardiologist, which I did. I had an echo and was diagnosed with severe mitral valve regurgitation.

It was determined that I would need open heart surgery to repair the valve. Several tests were performed to determine the condition of my arteries and my heart. They performed a catheterization to determine the health of my arteries. They did another echo with the probe in my throat and another on my neck. The results came back indicating that my heart was strong and my arteries were clear. That was good news.

I'm a long distance runner and I believe that the intense exercise played a big part in my overall health. The doctors told me I would greatly improve my running performance after surgery. With that thought in mind I eagerly went into surgery last December. Since then I've been convalescing, spent time in cardiac rehab, and doing as much exercise as I can at home.

My convalescence didn't really go as well as predicted. A week after leaving the hospital an artery in my nasal cavity hemorrhaged and put me back in the hospital for a few more days. I've been suffering dizzy spells when trying to go upstairs and several chest events such as PVCs, chest pains, tightness, and shortage of breath. My cardiologist put me on fludrocortisone and metoprolol to calm my chest events and bring up my blood pressure. There were undesirable side effects caused by the metoprolol so I was switched to bystolic. Presently I feel normal with no chest events or dizzy spells when doing regular daily activities.

For the past few weeks I've been trying rebuild my stamina using the treadmill and stationary cycling. In the beginning I could barely walk a half mile. Happily it's been steadily improving to the point where I can do intervals (run 1 minute / walk 1 minute, repeat) for 6 miles. I'm doing this on the treadmill. I haven't had enough confidence to try this on the road yet.

Today I'm hopeful that I'll be able to get back to all the activities I was doing before surgery. It's been a little harder than the doctors predicted, but I think I'm going to make it. Now I hope I can contribute some of my experience back to the discussions on this forum.

Thanks for listening, Bob

Pratoman
Veteran Member


Date Joined Nov 2012
Total Posts : 4927
   Posted 6/24/2017 2:27 PM (GMT -7)   
Bob, I'm active on the PC forum, welcome to the heart forum. You'll find it's not very active, the way the pc forum is.

about 6 months after my prostatectomy , in a routine checkup, I had an abnormal ekg, which led to a heart Ct scan, which led to a cardiac catch, resulting in 2 stents. I've got a heavy plaque load, CAC score of 937. I had just gotten past the RALP (mentally and physically), and this destroyed me for quite a while.
But I got over it and try my best to eat right and exercise. Bad knee won't let me run so I do a fair amount of walking, that's about it.

Now I've had wo rises in a row, on PSA, went fro, .<02, to .02 to .033. So SRT may be my next adventure. :-(

Seems like it never ends
Dx Age 64 Nov 2014, 4.3
BX 3 of 12 cores positive original pathologyG6, G6, G8 (3+5)
downgraded to 3+3=6 by tDr Epstein, JH
RALP with Dr Ash Tewari Jan 6, 2015
Post surgical pathology – G7 (3+4), ECE, Margivns, LN, SV all negative
PSA @ 6 weeks 2/15, .<02, remained <0.02 until January 2017, .02, repeat in Feb 2017, still .02. May 2017, <.1 (lab did standard test). Retest May 2017-.033, (new lab). Next test, September Decipher test, low risk, .37 score.
My Story: tinyurl.com/oo9x4aq

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 19949
   Posted 6/24/2017 8:48 PM (GMT -7)   
hi and welcome. a 6 week cardiac rehab program is a must post surgery. hopefully the forum picks up, had been pushing it along for a long time now. been depressed and things. had bp x 2. good to see ya post pratoman.

Zzarth
Regular Member


Date Joined Jul 2016
Total Posts : 146
   Posted 8/29/2017 9:03 PM (GMT -7)   
Pratoman said...
Bob, I'm active on the PC forum, welcome to the heart forum. You'll find it's not very active, the way the pc forum is.

about 6 months after my prostatectomy , in a routine checkup, I had an abnormal ekg, which led to a heart Ct scan, which led to a cardiac catch, resulting in 2 stents. I've got a heavy plaque load, CAC score of 937. I had just gotten past the RALP (mentally and physically), and this destroyed me for quite a while.
But I got over it and try my best to eat right and exercise. Bad knee won't let me run so I do a fair amount of walking, that's about it.

Now I've had wo rises in a row, on PSA, went fro, .<02, to .02 to .033. So SRT may be my next adventure. :-(

Seems like it never ends


OMG, I jump over to look at another forum here, and wham.. Pratoman is here!

Hey, this might not be directly related to your heart condition... but I did want to chime in that I had a AFIB issue about 2 years ago ... and I had it fixed with cardiac ablation.
When the fixed it, they found another electrical issue that was artifically slowing down my heart.. so they fixed that too.

It was the best surgery of my life... it felt like my engine in my car was working 100% again... I lost weight, and felt like a million $'s ... until the PC diagnosis smile

anywho, thought I would share.

Zzarth
Dx 44.
6/16/16: PSA=15.1
7/16: BX=G6, 1 core R-apex 4mm 30% of tissue, R-apex
8/16: Hopkins=G7 (3+4) 70% of core 10% G4
10/16: DaVinci w/ Tewari
Staging: pT2c pN0, 1.8 cm, anterior from apex to mid 3+4=7, 4 component = 20%
Frozen Section: Positive R-APEX posterior (focal) identified and treated
-EPE, -SVI, -M, -LVI, -PI
1/17 0.00
4/17 0.00
8/17 0.05
8/17 #2 - results any day

theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 19949
   Posted 8/29/2017 11:32 PM (GMT -7)   
keep strong my friends. and posting. we need to keep the forum from chf!!!
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