Odd Condition/Story

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New Member

Date Joined Mar 2018
Total Posts : 2
   Posted 3/7/2018 2:40 AM (GMT -6)   
As a Child I was active Running, Biking and Playing, As I grew older I started having tiredness and shortness of breath At the age of 18 I had almost no symptoms of heart related issues while Pregnant, I Ended up marrying a Man who was abusive because again I was Pregnant this time I swelled up Like a Balloon both legs and feet And it looked like I was carrying twins I was seeing a Obgyn who I showed my Feet and he said oh its normal Just keep your feet up I did but the swelling wouldn't go down, I told this doctor many times something wasn't right and got the same answer your worrying to much just keep your feet up you will be fine, I ended up waking up one morning Feeling as if I was drowning I couldn't breath, I had to fight with my abusive husband to get me to the hospital where I was Admitted with almost no Oxygen intake The did ultra sounds on the baby and my heart and saw what looked to be as they described it a black mass... They Looked panicked they air lifted me to Baltimore MD John Hopkins and they studied me I ended up have my Daughter 2 months early She was tiny Despite my size. They Studied me but saw no Clues to why My heart did this Finally I was released with only a vage diagnosis of Cardiomyopathy. I was fine for a few years.. then at the age of 26 I was pregnant again and put in a High risk Obgyn where I preceded to get Swollen Feet like last time The Obgyn said this is normal just put your feet up, But this time it was just one Leg I went along with it for a while Untill my leg was swollen so bad I couldnt walk with out a walker and my leg felt and looked like rubber, I showed the nurse this and again the doctor said are you keeping your feet up? I said Yes I cant even walk im Stuck in a arm char most of the day I cant even get into bed, I was also Gestational Diabetic with this pregnancy, I finally couldn't take the pain any more and went to Whinnies Palmer Hospital in Orlando FL the doctor took one look at my leg and jumped into action He said he had to check something I begged him not to push on the leg it hurt and he did anyways it put me in agonizing pain they ended up giving me morphine they found out I had a DVT they said this is normal with some pregnancy I had my son and they put me on Blood thinning Belly Shots for over a year, The most recent thing is Last year Nov 13 2017 I had a Stroke I lost Strength in my right hand mostly I felt like i had beer goggles on I could barely walk and my speech was slurred tho it was mostly all over My Bf was the one that figured out something was wrong he was talking to me we had just gone to bed and I remembered what we forgot at the store I mentioned it to him sugar he said something I answered back that I needed water but that isnt what he heard but thats what I heard me say in my head he asked me what did you say? I Repeated it sounded right to me but he said I was talking Jibberish this went on for over a half Hour I wasnt sure what was going on, The next day i was admitted to the ER the doctors laughed at me because I went on my FB and asked friends and family what they thought happend Well My Bfs Sister was a RN in training she urged me to go to the hospital that was a stroke so I did. The doctors all thought I was Nuts Because I came in looking fine yet said I think I had a stroke they looked at my age and Assumed nothing was gunna be there.... then they took the Cat scan and MRIs and confirmed I do in fact have a spot on my brain were the clot hit they did further test revealing I have a PFO that caused the clot that hit my brain Now the doctors have confirmed that they can close thus said hole with Non evasive My issue is No doctor that ive tried accepts my Insurance to get this taken care Of. My heart rate is rarely below 100 these days and am Stuck wearing a watch that vibrates when it gets to high then I have to try and calm it and this is while sitting, Do you know of anyone In Orlando Florida that takes Care Plus who will do this surgery Please I need this done I dont wanna Leave my Kids behind Help! I do have Pictures of the 2nd and the 3rd pregnancy if needed.

Current Diagnosis: PFO "but cant find a Doctor in or around Orlando FL that will take my Insurance and Fix the Hole"
Past Events: Heart Failure, Gull Bladder removal No pain when Doctor Pressed on stomach, DVT/Clotting And Stroke I also have Scoliosis Had IBS with constipation After Gull Removal Now with IBS Diarrhea, was a Gestational Diabetic, Tiredness, Anemic Was on a Iron Drip at one point, Diagnosed with Diverticulitis - inflammation, Zero Energy Most days, and a Heart Beat that at resting sits at 85-115 getting as high as 135 at some points.

Forum Moderator

Date Joined Feb 2003
Total Posts : 16804
   Posted 3/7/2018 3:05 PM (GMT -6)   
Hi AMT, well you have quite a story to tell. Pretty much everyone that comes to Healing Well has a story to tell. Sorry to read everything you have been through.

I know nothing about the type of insurance you have but I do have a couple of suggestions. I am surprised that none of your drs including your PCP have not assisted in any way. You can call your insurance company & they should be able to locate a dr that accepts your insurance. You can also go online with your insurance & see who is listed. There has to be drs in Miami that take your insurance.

Good luck.
Moderator in Chronic Pain & Psoriasis Forums

New Member

Date Joined Mar 2018
Total Posts : 2
   Posted 3/8/2018 12:23 AM (GMT -6)   
Ive Asked Both my Heart and my Normal Doctor they told me they cant help its not my Job. The ones Ive Found Were thru my Insurance ive gotten 3 appointments and All of them canceled the day before with the Excuse we dont take your insurance any more. Im kinda at wits End atm Im growing more and more tired and having less and less energy my poor BF is suffering because of it hes haven to wake up to deal with the Kiddo because ive fallen asleep and wont wake up...
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