Posted 5/3/2018 9:31 AM (GMT -6)
HELLO! This last year has been a whirlwind. I was first diagnosed with Lyme Disease in May and then a Chriari Malformation in November. I had brain surgery to repair the malformation in December and prior to surgery was diagnosed with PoTS. We somewhat put it on the back burner to see if the surgery would help all my symptoms. Recently though my heart starting going crazy from 31 to 180's with no activity, so I am now under the care of a cardiologist who said to prepare myself for this to be difficult to live with. I just started treatment and am on a medication to stabilize my blood pressure and a beta blocker to lower my heart rate i guess. On my Holter monitor I had some supraventricular ectopic beats, sinus arrythmia and sinus tachycardia as well.
If you have PoTS, what has helped you to live a better life? I am exhausted and have pretty much EVERY symtpom under the sun. Heat is awful, im tired, my body feels like crap, brain fog. The list of symptoms is honestly ridiculous.