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els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 2/23/2006 12:55 PM (GMT -7)   
Hi everyone,
I have had a few people ask so I thought I would give you all some back ground on me.   I am 32 year old female divorced with no children.  I do have a fat cat named Normandy and a dog named Henry Miller.  I have a Bachelors degree in Psychology and am currently working on my Masters.  I worked for a privately run mental health facility managing two residential care facilities for over ten years.  I left that job in 2004 due to health reasons, even though I miss it so.  I was first diagnosed with Multiple Sclerosis in Sept of 2001.   I became ill again this past summer with low blood pressure and low heart rate.  I ended up with a pacemaker for the bradycardia and after numerous test it was determined that I have Multiple System Atrophy (MSA).  Which is an atypical type of Parkinson's disease.  My family both mother and fathers sides have extensive heart problems so this is a huge concern for me.  However,  I have a wonderful support system and am grateful for all that I have.  Thank you everyone for letting me be a part of your group.....
 


~elisha
 


Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 2/24/2006 6:52 AM (GMT -7)   
Far out youngin :
 
I need a shrink bad, ha ha ha, lol....I am very impressed with what you are doing and what you have done. I am so sorry to hear of the MS and MSA. I know that you'll never give up, and the medical world gives us new medicines and new procedures, everyday. Miracles are happening I tell you :). I have had 2 light strokes, 1 light heart attack (MI) and have small vessel disease (SVD) in my brain and heart. I was told by my neurologist that my kidneys should also be affected by SVD. Haven't so far, I don't think. My last mri showed lacunar (sp) infarcts, and white matter abnormalities due to SVD. I do know that MS involves abnormalities in the M. sheath (can't spell mylinium) of the white matter.
 
I am a tad off upstairs at times. I guess from brain damage. My 2nd stroke affected my understanding of speech, or the order in which the words that I hear, come to my head. That was ~9 months ago, and thank G-d it is better, or I can hear normally most of the time.
 
Yesterday was tough for me. The cath was no problem, but they didn't "fix" me yet. I have been viewing the video cd they made and gave to me, yesterday. Wow, I can see my heart beating as they inject the dye. The video is awesome. You can slow the frame rate, freeze it, or speed it up. It contains "patient notes", but I do not have M.S. Word! I have been looking for a free download, lol. I may buy it. I have to read those notes!
 
I have peripheral neuropathy in my legs and arms. I would like to ask you about something. My arms, from my shoulders to the tips of my hands are starting to go rigid, while the rest of my body is relaxed. I can of course still use them when this happens, but all the muscles and tendons are taught, and ache. Have you ever had anything like this? The neuro said the "holes in my white matter" can "cause anything".....So I assume that is what is causing this.
 
We have lots of warm hearts here :) and I would like to say good morning to all. Myself, I look forward to getting some relief next Thursday. I am a bit suspicious of their intentions though. I don't know if the "stent expert", in this large cardio group that I see, has ever inserted/installed one of these wierd stents. I have the feeling that during the procedure he will say, let's do the CABG, instead. I am paranoid. I may go to the UAB university medical hospital in Birmingham, Al. I see docs in Huntsville Al. I am having lots of angina, but I take nitroglycerine. This pain will be gone, when I get fixed!
 
Well, I guess that I have rambled enough for now.....It does help me to cope, just by posting here. I wanted to say that I am so glad you are here with us.....We have a shrink and a DocER, ha ha ha.. and maybe another chucklehead like myself... (haven't seen one yet, though :)  )
 
RJ
 

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 2/24/2006 9:16 AM (GMT -7)   
Hi RJ,  Wow it sounds as if you have gone through so much.  It is scary when you have problems with the one organ that supplies food to your whole body, I know.  I is kinda cool that you were able to see your cath, I would want to too as I am fascinated by medical stuff like this.  I am so glad that you did come out of everything yesterday well.
As for your question, since I have had MSA I have had some rigidity in my limbs but this mostly occurs when I am trying to do something like eating or writing or walking.  Doctors can see lesions on an MRI (if I understood that correctly) but I wasn't able to have one due to the pacemaker.  I have lesions anyway because of the MS. So who knows what is what, I certainly dont.  I too have some cognitive issues with speech and remembering things related to the MS.  A lot of those have been compounded since the parkinson's though.  What it kind of sounds like is maybe spasticity in your limbs which if you have neuropathy and SVD it could very well be.  Have you ever spoken to your physician about it?  I often have spasms which can range from kicks in the muscles to just a tightening.  I dont know just some ideas to knock around.
I am glad that this site has help for you, I know it has for me.  Take care
~elisha
 


DREAMGIRL
Veteran Member


Date Joined Jan 2006
Total Posts : 600
   Posted 2/24/2006 6:38 PM (GMT -7)   
:-)  THANKS FOR THE BIO ELS, VERY YOUNG LADY INDEED,I TAKE IT WE GET TO HAVE A CHAT OFF ON THE 8TH,  HOPE I DON'T FORGET,I WILL BE ABLE TO BE THERE, IT'S 5PM MY TIME PERFECT SINCE I GET ON THE NET about THAT TIME FOR JUST A LITTLE, MY LETTERS ARE LONG WINDED BUT QUICK, I CANNOT SIT IN THIS CHAIR MORE THAN TWENTY OR THIRTY MINUTES, THAT IS about ALL I AM GOOD FOR, HOPE TO SEE YOU THERE. SORRY, I JUST REMEMBERED I AM NOT SUPPOSE TO USE CAPS.bye

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 2/25/2006 8:19 AM (GMT -7)   
Thats ok dreamgirl.  I think we all know you arent yelling at us. lol!!  I am looking forward to the chat time with everyone.  See ya there.

~elisha
 


DREAMGIRL
Veteran Member


Date Joined Jan 2006
Total Posts : 600
   Posted 2/25/2006 10:50 AM (GMT -7)   
:-)  hi, i just had to make a quick observation. i went over to one of the other forums and boy was it  well,   depressing. and it wasn't the one on depression. life happens doesn't it!!!

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 2/26/2006 8:06 AM (GMT -7)   
Yeah it sure does DREAMGIRL.  I also am a co-moderator on the depression forum, I forgot to mention.  tongue
~elisha
 


DREAMGIRL
Veteran Member


Date Joined Jan 2006
Total Posts : 600
   Posted 3/5/2006 9:00 AM (GMT -7)   
eyes  ouch, then you know how it is,  i sent you a response on a couple of other post this morning, is there a better way to directly speak to someone, i have to keep going back to the old posts and checking in, is that proper, when it was not the person that posted that i am addressing. thanks
 

DREAMGIRL
Veteran Member


Date Joined Jan 2006
Total Posts : 600
   Posted 3/5/2006 9:04 AM (GMT -7)   
:-)  you know  i read so many posts i forget who wrote what. sorry i asked on another if you were married, i was just noticeing you said you are divorced, so you have lots of time to wind down in the evening. i need a more effective way to participate, any suggestions?

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 3/6/2006 8:54 AM (GMT -7)   

Hi dreamgirl,  

Yes I am divorced but my ex husband and I are good friends and go out sometimes.  Weird huh?  I do have a lot of time on my hands in the evenings.  I am kind of a news junkie and am hooked on Nancy Grace on Headline News now.  So that is really all I really do... kinda pathetic I think.  Just me and my fat cat. tongue

You said you need a more effective way to participate?  I am not sure I understand what you mean.  If there is someone in particular that you want to respond to or a post than you can go to the little box with the ! in it and I think that "quote this post" will come up.  You click on that and you can insert what the other person posted into your post then below it you can respond.  Is this what you wanted to know? or does this help?  It is easy to get everyone confused when there are so many.

Take care


~elisha
 


DREAMGIRL
Veteran Member


Date Joined Jan 2006
Total Posts : 600
   Posted 3/6/2006 2:46 PM (GMT -7)   
eyes  well  we will see elisha, i seem not to be bothering anyone so far.  you asked about one of those relaxing fountains from sharper image, i have never tried one of those but i think that would be a great relaxation tool. has anyone heard from also yet?

Kathlyn1950
Regular Member


Date Joined Mar 2004
Total Posts : 462
   Posted 3/14/2006 3:07 PM (GMT -7)   
It was nice reading your bio, els, even though I'm very late in reading it. I'm a psychotherapist in MI, but with my degree in Social Work. My knowledge has helped me at times with dealing with the heart disease and other problems, but when I get down to it, I'm no different than anyone else. I have the same concerns, feelings, etc. It just is really great to have a place to talk to other people going through similar situations. You all are great.

"When you get into a tight place and it seems that you can't go on, hold on — for that's just the place and the time that the tide will turn." Harriet Beecher Stowe

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