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Aldo
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Date Joined Jan 2006
Total Posts : 289
   Posted 3/26/2006 6:38 AM (GMT -7)   
If I recall correctly, you will have a cath and repair of your pacemaker leads tomorrow. I wish you the best, and hope all will be fixed and just like new :)
 
Dreamgirl, believe it or not, I have taken Vytorin (sp?) for 5 days. Knock on wood but all seems well. The doc gave me some 10/20 samples that are probably a small dose. I really don't want to know right now, lol. If they work, then they will be a life saver for me :)
 
Regards to all,
 
Rj

els
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Date Joined Oct 2005
Total Posts : 4031
   Posted 3/26/2006 8:32 AM (GMT -7)   
Aldo, sharp as a tack you are tongue .  Yes, tomorrow's the big day and I am SO nervous.  My last pacer lead repair was at the end of October at Barnes Jewish Hospital in St. Louis.  I felt the whole thing no matter how much medication they keep giving to me.  It was terrible and painful as they had scarred in place already.  My cardiologist promises that he is going to sedate me and I wont "feel a thing", I guess well see.  Thank you for the good thoughts I will take them with me....
~elisha
 


DREAMGIRL
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Date Joined Jan 2006
Total Posts : 600
   Posted 3/26/2006 7:13 PM (GMT -7)   
:-)  i will say a little prayer for you tonite elisha, please keep us abreast of things.  hey also, vytorin is composed of zocor and zetia, my brother takes it and has done well on it, i ,as usual, had a bd intestinal rraction so i cannot take that one either, i hope it works for you though, that would be a nice releif, you could forget about all the other ways to keep yourself safe. i have not been on the net much this week, busy busy . missed you all.  later

deltacece
Regular Member


Date Joined Aug 2005
Total Posts : 95
   Posted 3/27/2006 1:10 PM (GMT -7)   
Good luck Els with your procedure, i'll keep you in my prayers. And YES!! i'm feeling better today. I'm still having a little problem but every day gets better. I've been up 5 hrs and i'm getting tired, but i wanted to wish you well. I beleive you will do fine. God, family and friends are here for you, and i hope you let us know how you are soon, we will worry until we hear from you. TRIPPLE - HUGS DELTA

{ Listen to your body talk. } Deltacece


els
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Date Joined Oct 2005
Total Posts : 4031
   Posted 3/28/2006 8:30 AM (GMT -7)   
Thank you so much for the good thoughts and prayers....They helped I am sure.  I am home now and pacemaker is clicking right along as it should.  My cardiologist didn't find anything "remarkable" with my angiogram yesterday except for my septal defect the VSD.  So he is saying that my chest pain and shortness of breath is caused by my MSA as these are possible with the disease.  I am rather disappointed as I kind of hoping he would find something and be able to fix it, now I know I have to just live with it and it is sort of a daunting thought for me.  Anyway on the good side he did make sure I was good and loopy, I didn't feel a thing and for that I am eternally grateful.... tongue
~elisha
Cats are like potato chips ~ you can't have just one
 


Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 3/28/2006 10:26 AM (GMT -7)   
els said...
My cardiologist didn't find anything "remarkable" with my angiogram yesterday except for my septal defect the VSD.  So he is saying that my chest pain and shortness of breath is caused by my MSA as these are possible with the disease.  I am rather disappointed as I kind of hoping he would find something and be able to fix it, now I know I have to just live with it and it is sort of a daunting thought for me.

Hey youngin :) I am so glad to hear all went well, but am sad to know that you will "just have to live with chest pain and SOB." This could change, you know. Medical miracles come along due to research, and you could very well get relief. I am so amazed at what they can now do to repair the heart and arteries.
 
I will have to read about your septal defect (VSD), and the MSA. You described it once but I know I couldn't find it. I received soo much of the amnesia drug, during the 2 caths I had in 5 days; my memory is shot, lol. It's funny that I totally remember the procedures but have forgot many things that occurred around that time, at home and all. I hope that it is only temporary.
 
I can really relate with you on eternal chest pain and maybe not so much SOB, but fatigue. I started having angina about a day and a half ago, even though I take timed released nitroglycerin every night. I don't know what is causing it. I have googled the entire net on possible causes, after the rotoblation and stent procedure. The acorn shaped, diamond tipped cutter/apparatus came apart and had to be retrieved while being in the beginning of my Lad. They tend to be aggressive in trying to retrieve any parts that break or become separated and lodge somewhere in the artery. The only other option is to do bypass surgery to retrieve the foreign object. Some are actually left inside! They cause trouble soon after the procedure....
 
I know that I may sound pessimistic, but whatever is happening to me, is troublesome. I am so tired of hospitals and coronary artery disease (CAD)! I know that I am not alone in feeling that way. I'll bet Delta feels this way too :)
 
I slept most all of yesterday and all night. I stopped the Vytorin. I didn't take it last night. I'm sure it is hurting me, and if I were to continue taking it, I would be in the hospital. I have been told by several doctors that the reason you stop any statin that causes "unexplained muscle pain", is that the muscle it affects can be the heart. I have never had angina from taking statins before. This is a new one for me to try, and it might be the source of my angina and bad flu like symptoms, or total fatigue. I surely hope so, because it will all go away.
 
I could have a blood clot. A tool could have been left inside of me. Something is causing my heart muscle to not receive enough blood. WHEW, I have been reading the net too much, haven't I?
 
I requested my medical records from UAB, through my home town cardiologist last week. They should be here by now. My doc only had a very short explanation of the procedure done at UAB. I also read that UAB has a very low rating, when compared to other hospitals, in the area of mortality after a stenting procedure. I hope it is because they are a teaching university.
 
What is your EF (ejection fraction)? This can tell you how badly the septal defect is affecting the overall performance of your heart, as a pump. I will read up on VSD :) Where is Erskine when you need him? Lol....
 
Sorry to be so long and drawn out. I hope you are feeling the very best you can and congrats on another successful cath and repair :)
 
If you get the time would you read the info at the below link? I think it would interest you....
 
Rj
 

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 3/28/2006 11:44 AM (GMT -7)   

Hi Rj,  I am really sorry to hear that your not feeling well.  I dont blame you at all for being sick of doctors, hospitals and the never ending procedures that come along with a serious illness or disease as you have.  I have become kind tired of them myself.  When you are feeling bad and cant really pinpoint the cause of it it is nerve racking.  The one thing you really have going for you is that you are knowledgeable on all this stuff that most people cant wrap their minds around, like me.  I find that my eyes start to glaze over the higher over my head it is. 

Thank you for posting that article, I have saved it to my computer as it would be a good basis for a thesis paper I am thinking.  I will have to do much more research on the topic but I was thinking of doing something along these lines.  You know what they say about great minds......?  It's true!!

I really dont know what my EF is.  I guess I should know..lol.  They found the VSD in September via a Bubble Study and said that for right now it is okay.  I guess I figured if I went for 32 years not knowing it was there then I could live with it how it is.  But I do know better than that.  Would the cath report have it on there? 

Take care of yourself and let us know how your doing 

 


~elisha
Cats are like potato chips ~ you can't have just one
 


Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 3/28/2006 3:27 PM (GMT -7)   

 

Elisha, thanks for the kind words and compliment :) There are too many possibilities for me to wrap my mind around!!! I think that I warp my mind around it, lol. I just know when to throw in the towel and go for a cath :(, or up to this point, I have known when to. It has been a very simple decision to make. I entered the ER 2 times within 5 months and later received 2 stents, each time. I see myself as very fortunate. The unfortunate ones are the folks walking around with time bombs ticking in their chest. They do not recognize angina, and what this angina is warning them of. So, about 40% of people that have their first heart attack die. Many die during a second heart attack. I read that 60% of the people that die of heart attacks have one thing in common; it was their second. Bummer! (My percentages, I am sure, can be argued...The data may be old,)

Yes Youngin, your cath will have a left ventricular EF (LVEF) calculated in the cath report, by computer software and the cardio, unless they did a right side heart catheterization. Did they go through the femoral artery in your leg?

If catheters are introduced through the femoral or groin artery, the procedure is known as "left heart" catheterization, because the catheter goes from the femoral artery to the aorta, coronary arteries, and the Left Ventricle (LV). This accounts for the majority of procedures. Left heart cath can also be performed by using the artery in the arm.

If a catheter is also placed in the right femoral vein to measure pressures within the right side of the heart, the procedure is called "right heart" catheterization. This is used in patients with congenital heart disease, diseases of the heart valve, or certain conditions involving the pericardium, or sac, of the heart. This may also be used in certain diseases of the heart muscle, heart failure, shock, or when measurements of heart output or lung pressures are needed. Right and left heart catheterization is a combination of both. (Hey I looked this up, lol)

You also need to have an echocardiogram periodically don't you think? They also calculate your EF.

Wow, that would be a wonderful thesis paper theme or topic....I have seen the need for this integration or change in approaches, first hand :) Later....

 
Rj
 

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 3/28/2006 3:53 PM (GMT -7)   
Wow Rj,  You just keep on amazin me.... He went in through the femoral artery in my groin area.  So I guess it was an Left heart cath.  I learned something today!!  I was feeling ok this morning but as the day has gone on I have increasing worse.  Is this normal I wonder?  I am sore and bruised in the area he went in which I guess would be expected.  But this afternoon I developed a terrible headache and upset stomach.  I guess I should take my temp...just in-case of fever.  Temp is 100.1 so it is low grade fever.  Should I worry?
~elisha
Cats are like potato chips ~ you can't have just one
 


David_
Regular Member


Date Joined Mar 2006
Total Posts : 68
   Posted 3/28/2006 4:38 PM (GMT -7)   
Hope you're feeling better elisha :)

Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 3/28/2006 9:24 PM (GMT -7)   
Elisha I have been offline for 3 hours (modem broke?) Anyway fever should be monitored after a cath I think, ie, I may have read that in the discharge instructions, maybe not. I will check. You are concerned with a blood clot forming in your leg for sure. You may have caught a virus or bug in the hospital. It is a bad time for you to be doing that!!! Yep the incision site is sore and bruised, but your leg should not be too sore.

If you feel anything different from a normal bug or virus, don't hesitate to go to the ER. A terrible headache is not a good sign to me. I am very cautious myself.

Do the right thing now!

Rj

Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 3/28/2006 9:34 PM (GMT -7)   

Elisha, Here are my signs/symptoms to be reported:

1)Chest pain

2) If you notice numbness or tingling in the involved leg; swelling, pain, bleeding, or drainage at the site.

3) Fever greater than 100.5 degrees


els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 3/29/2006 8:08 AM (GMT -7)   
Thank you Rj,  I took some Tylenol last night for the fever and it came down pretty quickly.  My stomach was pretty upset last night too which I have phenergan for so I took one of those.  It isn't so much my leg as the site that bothers me...but I am pretty bruised so I guess this would be normal.  It just uncomfortable to sit and walk.  But it does feel much better today.  Hopefully it will be gone soon....

~elisha
Cats are like potato chips ~ you can't have just one
 


Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 3/29/2006 9:17 AM (GMT -7)   
Good morning and I am glad to hear that you are feeling better :)

My first cath really caused my leg to hurt. This is not your first though, right? I don't know what caused it, but I went to the cardio and they done an ultrasound or echo on my leg, to check for a blood clot. Nuttin there, lol.

I have found that even while in the hospital, and after being told that I could walk, I did...as much as I could. The same when I got home. I also try to promote good blood flow in the affected leg. When you are upright your blood tends to pool in your feet and legs. Your heart has to overcome the force of gravity (breaking news here, eh?) to get blood to come back to the heart for replenishment of O2 through the lungs. If you are a tad old, he he he, or have heart disease, you need to elevate your legs a few times a day to allow all this pooling blood to get back to the heart easily (taking advantage of gravity again, lol).

You may should be careful though about where you put your legs! I really don't know how it would affect your heart. At least you can lay down...Don't travel for long periods in a car. If you do, move your legs around. Pull over and walk a bit. This will help prevent blood clots in your leg(s). Same for traveling on an airplane...

Keep the Tylenol handy and take aspirin when you can (alternate of course....I think. I can't take aspirin so I have forgotten). You should be taking an aspirin a day. It's anti-inflammatory and an anti-platelet.

If the pain gets worse, or if you notice a change in the color of your leg (red to pale to blue, or any combination of, lol) SEE you doctor immediately.

Now, GET WELL :)

Rj

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 3/29/2006 1:28 PM (GMT -7)   
Thank you Rj.  This is my first Cath and hopefully my last one.  My mom said that the Angio-Seal device that is implanted is what is causing the majority of my pain.  Did you have this Angio-Seal with yours?  Well ya know, besides having had a pencil sized cather stuck up my artery...LOL!  I did get out a while ago and when to the mall and bought some new clothes (always makes me feel better  tongue  )but I really am drained and so I had to beat it home in quite a hurry so I wouldn't be passing out there.  That would be embarrassing.  Due to my hypotension my blood tends to pool in my legs anyway and I have to wear those really pretty white Ted Hose.  And the doctors office called while I was out with my lab results seems my RBC is low, Calcium level is low and Prothrombin is low also....I maybe coming down with something.  But cardiologist wants me to come in to hospital for chest ct to check for blood clot....looks like you were right on track Rj.  I will let you know how it goes.

~elisha
Cats are like potato chips ~ you can't have just one
 


Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 3/29/2006 4:34 PM (GMT -7)   
Howdy again :)

Hey and I don't want to hear of a blood clot now.....I have heard that they are painful. Let's cross our fingers (hope and pray) that it is not a clot. Did you get a nasty shot of lovonox or heparin in your tummy, after the procedure? My blood still won't coagulate like it should. I cut myself shaving while ago and almost had to dial 911, lol.

New clothes and shopping is the best medicine for a lady, no doubt. Myself, I don't know what I need. Oh yeah, some ENERGY! Ha ha ha.

I have had 2 angio seals if I recall correctly. I can't remember how they felt though. I have never had a problem with pain at the site, until I got 2 caths in 4 days. It was a bit tender.

Take much care :)

Rj

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 3/29/2006 6:10 PM (GMT -7)   

Rj,  bleeding to death is not an option here okay??  Be careful when your shaving...lol!

I dont remember getting any shots in my tummy but I do have a bruise so I must of got something there?  I was pretty well out of it, sensitive to medications.  Maybe I was taken by aliens... scool ?   


~elisha~ 
 
ways to help support healing well:
 
 


Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 3/30/2006 6:56 AM (GMT -7)   
Ha ha ha!!!! You can't convince me that you are sick, NOW :) That was great comedy!

I planned to tell you earlier that you need a big ole juicy, rare or medium rare sirloin steak!!!! You could eat beef liver.....Blah.....Also eat cheese and drink milk!

I will have a look see at prothrombin....I have heard of that before...

Well, still waiting on your test results. Oh yeah, is your pacemaker bringing your heart rate and blood pressure up?

Rj

els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 3/30/2006 8:44 AM (GMT -7)   

I love cheese and have been eating lots of it...I share it with my cat Norman too (must be why he is so fat?) and the milk.  I have restarted my multivitamins even though they make me sick to my stomach.  Hopefully that will wear off...  Pacer is ticking right along, heart rate is up which is good.  Blood pressures not so much, this morning I am hovering at 92/58.  I upped my Florinef a few days ago to help bring my pressure up but as yet it hasn't kicked in.  Which is something that is bringing me to my next thought and concern.  I have 3 doctors telling me to increase my salt and caffeine intake in an effort to help sustain my BP's besides the medications I take.  Isn't this bad for the heart and kidneys?  I know that caffeine is bad for my Multiple Sclerosis.  It just seems like there should be something other than this.....

Oh yeah,  My Chest CT was negative!!


~elisha~ 
 
ways to help support healing well:
 
 


Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 3/30/2006 2:51 PM (GMT -7)   

Hey, great news on the ct scan :)

It doesn't sound just right for your docs to be wanting you to take salt and caffeine to increase your BP! But I hain't no doc, so I don't know. Maybe they are looking at some of your blood tests that show a low sodium chloride level. Salt or sodium chloride is a no-no for myself and many others. It causes me to retain water, which can increase some people's BP. When the concentration of salt begins to rise in our blood, the excess is absorbed into the cells of our tissue. The kidneys have already done their best to lower the salt, but can't for whatever reason. The cells in our tissue start to burn so they scream for water to stop the burning. Lo and behold, water is drawn from our blood and retained in those cells which causes edema. So, I know salt can be used in an emergency type situation to increase BP, but it seems a crude way to do it on a continuous basis. Shux, they could give you an amphetamine to increase your heart rate. Why use coffee?

Don't take my doctoring advice or science too seriously :)

Rj


els
Veteran Member


Date Joined Oct 2005
Total Posts : 4031
   Posted 3/30/2006 10:30 PM (GMT 0)   
With this Autonomic dysfunction going on (MSA) my BP is usually low and I am losing consciousness because of it. The two medications I take for bp to keep it up florinef and proamatine most days dont help much. I think the doctors are at a loss as to what to do at this point. I have an appointment with a movement disorder specialist in June at the mayo clinic. Hopefully they will have some ideas.
~elisha~ 
 
ways to help support healing well:
 
 

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