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Posted 4/6/2006 9:58 AM (GMT -6)

I just read where your Mom saved herself from having heart valve replacement! That is just great!

Now if and when you were to get a chance, would you ask her if she ever gets, or has got a gurgling sensation coming from her heart? In other words, can one feel "regurgitation"...

I would also like to say hidy to Delta. She has had bypass surgery a while back, and she just received FOUR stents compared to my receiving 2. She had to wait awhile to even be able to get these stents. Some were inserted into a grafted artery(ies).

I think I had a reaction to the medicine and/or polymer that line these stents, when I had my first 2. Now, I think I am having a reaction to my 2 latest. BTW the latest have a different drug in them.... Taxus stents have Paclataxal, Cypher stents have Sirolimus. My last 2 were of the Cypher variety. They elude these drugs into your bloodstream and prevent restenosis. Paclataxal is a cancer fighting drug. I have not read up on Sirolimus.

You do not hear a lot about these possible reactions, unless you read the data that the FDA scientist and others questioned the manufacturers about. Some of the unknowns were the reaction by patients to these drugs that are blended with a special polymer used to coat the inside of these drug eluding stents.

After my first 2 stents (~6 months ago), I went to an infectious disease doctor. He told me that reactions were not uncommon and for Paclataxal, the effects peaked after about 3 months, then you started feeling better.

So Delta, maybe this can explain some exhaustion or lack of energy for you. I just hope you get better soon :)

TIA Elisha :) (not transient ischemic attack lol)

Rj

Posted 4/6/2006 12:05 PM (GMT -6)

Hi Rj,  It seems I posted that one a little too soon on my mom.  She does have to have two of them replaced in June, found that out about 2 weeks ago.  So, we are a little anxious about that.  The other two valves that need replaced it seems have had some relief with the weight loss and they arnt going to mess with those just yet.  I did ask her about the gurgling sensation and she looked at me kinda funny and said "well yeah it feels like a washing machine with the blood sloshing around all over the place"  (while saying this has her arms moving around in the air??) so hope this helps you Rj.  All I can say is yuck!!!  And glad I don't feel that it sounds creepy.  She has had this for a long time though and I am glad it is going to be fixed somewhat.

I hope you get better real soon too delta...we miss u sad

Posted 4/6/2006 3:45 PM (GMT -6)
Hey, thanks for that information :) Nothing is better than first hand experience. My gurgle may be her "washing machine". I guess I might try and schedule an echocardiogram, if it continues.

I am very sorry to hear that she has to have the surgery for valve replacement. Tell her that I hope all will be well soon :)

rj
Posted 4/7/2006 8:48 AM (GMT -6)
Thank you Rj....She has been living with it for quite some time now.  I am very worried about the surgery as it is very poor odds that the give but the odds otherwise aren't much better either.  Her only problem is that she is going to "click" once it is over.  They are putting in mechanical valves instead of pig.

I hope you start to feel better soon Rj, don't let it go on too long if it is something that is really bothering you.  You never know.....

 

Posted 4/14/2006 11:07 AM (GMT -6)
:-)  aldo, you are such a wealth of knowledge. i have two cypher stents and felt really run down for a long time, never thought about it being the stents. thanks for that scoop.
Posted 4/18/2006 1:20 PM (GMT -6)
:-)  hi  aldo, where are you?
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